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End-of-Life Nursing Education Consortium End-of-Life Nursing Education Consortium ELNEC International ELNEC International Promoting Palliative Care Around the World! Promoting Palliative Care Around the World! Hollye Harrington Jacobs, RN, MS, MSW and Rose Virani, RNC, MHA, OCN, FPCN

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End-of-Life Nursing Education Consortium

End-of-Life Nursing Education Consortium

ELNEC InternationalELNEC International

Promoting Palliative Care Around the World!Promoting Palliative Care Around the World!

Hollye Harrington Jacobs, RN, MS, MSWand

Rose Virani, RNC, MHA, OCN, FPCN

ELNEC - BackgroundELNEC - Background

• The End-of-Life Nursing Education Consortium (ELNEC) project began in the year 2000 as a national education initiative to improve end-of-life care in the United States,

• The project provides undergraduate and graduate nursing faculty, CE providers, staff development educators,, and other nurses with training in end-of-life care so they can teach this essential information to nursing students and practicing nurses. Specialty areas include: pediatrics, oncology, critical care, geriatrics and long term care

• The End-of-Life Nursing Education Consortium (ELNEC) project began in the year 2000 as a national education initiative to improve end-of-life care in the United States,

• The project provides undergraduate and graduate nursing faculty, CE providers, staff development educators,, and other nurses with training in end-of-life care so they can teach this essential information to nursing students and practicing nurses. Specialty areas include: pediatrics, oncology, critical care, geriatrics and long term care

CITY OF HOPE NATIONAL MEDICAL CENTER

Los Angeles, CA

CITY OF HOPE NATIONAL MEDICAL CENTER

Los Angeles, CA

AMERICAN ASSOCIATION OF

COLLEGES OF NURSING

Washington, DC

AMERICAN ASSOCIATION OF

COLLEGES OF NURSING

Washington, DCBetty Ferrell Rose Virani

Hollye Harrington JacobsKathe Kelly

Betty Ferrell Rose Virani

Hollye Harrington JacobsKathe Kelly

Pam Malloy Geraldine Bednash

Pam Malloy Geraldine Bednash

A CollaborationA Collaboration

FundingFunding

• Initially funded by a major grant from the Robert Wood Johnson Foundation (RWJF)

• Additional funding received from the National Cancer Institute (NCI) and foundation funds including Aetna Foundation, Archstone Foundation, the California Health Care Foundation, the Open Society Institute (OSI) and registration fees

• Initially funded by a major grant from the Robert Wood Johnson Foundation (RWJF)

• Additional funding received from the National Cancer Institute (NCI) and foundation funds including Aetna Foundation, Archstone Foundation, the California Health Care Foundation, the Open Society Institute (OSI) and registration fees

ELNEC CURRICULUMELNEC CURRICULUM

• The curriculum was developed through the work of nationally recognized palliative care experts with extensive input from an advisory board and reviewers.

• Each curriculum is revised annually based on participant recommendations and new advances in the field, and is modified for each distinct audience. The curriculum reflects AACN's 1998 publication “Peaceful Death: Recommended Competencies and Curricular Guidelines for End-of-Life Nursing Care.”

• The curriculum was developed through the work of nationally recognized palliative care experts with extensive input from an advisory board and reviewers.

• Each curriculum is revised annually based on participant recommendations and new advances in the field, and is modified for each distinct audience. The curriculum reflects AACN's 1998 publication “Peaceful Death: Recommended Competencies and Curricular Guidelines for End-of-Life Nursing Care.”

ELNEC MODULESELNEC MODULES

1 - Palliative Nursing Care2 - Pain Management3 - Symptom Management4 - Ethical/Legal Issues5 - Cultural Considerations in End-of-Life Care6 - Communication7 - Loss, Grief, Bereavement8 - Achieving Quality Palliative Care9 - Preparation for and Care at the Time of

Death

1 - Palliative Nursing Care2 - Pain Management3 - Symptom Management4 - Ethical/Legal Issues5 - Cultural Considerations in End-of-Life Care6 - Communication7 - Loss, Grief, Bereavement8 - Achieving Quality Palliative Care9 - Preparation for and Care at the Time of

Death

TEACHING STRATEGIESTEACHING STRATEGIES

• Range from two to five-day programs• Combination of lectures, interactive

activities, case studies, small group discussions, role play, and videos

• The syllabus includes the interactive learning activities and material to facilitate use in dissemination efforts

• Range from two to five-day programs• Combination of lectures, interactive

activities, case studies, small group discussions, role play, and videos

• The syllabus includes the interactive learning activities and material to facilitate use in dissemination efforts

“Train the Trainers” Model“Train the Trainers” Model

• Participants expected to gain knowledge of the content as well as skills in teaching the content

• Application process designed to assure the ELNEC participants have established goals for their dissemination of the curriculum prior to attending the course

• Participants expected to gain knowledge of the content as well as skills in teaching the content

• Application process designed to assure the ELNEC participants have established goals for their dissemination of the curriculum prior to attending the course

Examples of International Efforts

Examples of International Efforts

Central & Eastern Europe

Central & Eastern Europe

1st ELNEC International Course Funded by Open Society Institute1st ELNEC International Course

Funded by Open Society Institute

• Week-long ELNEC course held at Schloss Arenberg in Salzburg, Austria, October ’06

• Thirty-nine nursing educators and administrators from 14 countries attended

• Week-long ELNEC course held at Schloss Arenberg in Salzburg, Austria, October ’06

• Thirty-nine nursing educators and administrators from 14 countries attended

# of Participants

Armenia – 9

Estonia – 3

Georgia – 2

Kazakhstan – 1

Kosovo – 5

Kyrgyzstan – 3

Lithuania – 2

Macedonia - 1

Mongolia – 3

Romania – 3

Russia – 1

Slovenia – 1

Slovakia – 3

Tajikistan – 2

# of Participants

Armenia – 9

Estonia – 3

Georgia – 2

Kazakhstan – 1

Kosovo – 5

Kyrgyzstan – 3

Lithuania – 2

Macedonia - 1

Mongolia – 3

Romania – 3

Russia – 1

Slovenia – 1

Slovakia – 3

Tajikistan – 2

Countries in AttendanceCountries in Attendance

The nurses listened with great interest to learn about pain, symptom control,

grief, communication and other aspects of palliative nursing care.

The nurses listened with great interest to learn about pain, symptom control,

grief, communication and other aspects of palliative nursing care.

A computer lab facilitated advancing skills in searching the web and developing

presentations as the participants were constantly in

search of resources to

advance their efforts.

A computer lab facilitated advancing skills in searching the web and developing

presentations as the participants were constantly in

search of resources to

advance their efforts.

Learning together... Learning from each other.

Learning together... Learning from each other.

First ELNEC International Trainers & FacultyFirst ELNEC International Trainers & Faculty

2nd Salzburg, Austria Course held in April 2008

2nd Salzburg, Austria Course held in April 2008

• 39 Nursing Leaders, representing 17 countries attended

• Participants received ELNEC syllabus in Russian translation to take back to teach others in their country

• 39 Nursing Leaders, representing 17 countries attended

• Participants received ELNEC syllabus in Russian translation to take back to teach others in their country

Kyrgyzstan – 3Lithuania – 3Mongolia – 3Poland - 1 Romania – 4Russia – 3Serbia - 1Slovakia – 3Ukraine – 1

Kyrgyzstan – 3Lithuania – 3Mongolia – 3Poland - 1 Romania – 4Russia – 3Serbia - 1Slovakia – 3Ukraine – 1

Countries in AttendanceCountries in Attendance# of ParticipantsAlbania - 2 Armenia – 6 Azerbaijan – 1Croatia - 1Czech Republic -1Georgia – 2Hungary - 1Kosovo – 2

# of ParticipantsAlbania - 2 Armenia – 6 Azerbaijan – 1Croatia - 1Czech Republic -1Georgia – 2Hungary - 1Kosovo – 2

Training participants share their goals for disseminating palliative care education in their own countries.

Training participants share their goals for disseminating palliative care education in their own countries.

Salzburg 2008 Graduating ELNEC TrainersSalzburg 2008 Graduating ELNEC Trainers

TajikistanTajikistan

In 2008 ELNEC held a course in Tajikistan to train 42 health care providers

In 2008 ELNEC held a course in Tajikistan to train 42 health care providers

ELNEC in TajikistanELNEC in Tajikistan

Eager participantsEager participants

… and faculty… and faculty

Tajikistan 2008 Graduating ELNEC TrainersTajikistan 2008 Graduating ELNEC Trainers

AfricaAfrica

In July 2007, ELNEC-International Course Held in Tanzania, Funded by

Oncology Nursing Foundation

In July 2007, ELNEC-International Course Held in Tanzania, Funded by

Oncology Nursing Foundation

• Provided ELNEC training to 38 nurses from 5 African countries

• Provided ELNEC training to 38 nurses from 5 African countries

38 Nurses From 5 Different Countries Attended the 5 Day

Course

38 Nurses From 5 Different Countries Attended the 5 Day

CourseAfrican Countries

– Kenya– Malawi– Rwanda– Tanzania– Zambia

Each returned to their country to improve palliative care

African Countries – Kenya– Malawi– Rwanda– Tanzania– Zambia

Each returned to their country to improve palliative care

The ELNEC Trainingprogram, the first such training in the country, was openedby the Minister of

Health for Tanzania, the Cancer Center Director, and the Director of the African Palliative Care Association

The ELNEC Trainingprogram, the first such training in the country, was openedby the Minister of

Health for Tanzania, the Cancer Center Director, and the Director of the African Palliative Care Association

Training was held at the Ocean Road Cancer Institute, where ELNEC Faculty also consulted with healthcare professionals in the hospital and community.

Training was held at the Ocean Road Cancer Institute, where ELNEC Faculty also consulted with healthcare professionals in the hospital and community.

Tanzania 2007 Graduating ELNEC Trainers

KenyaKenya

In July 2009, an ELNEC-International training program was held in Nairobi, Kenya, with support from OSI.

In July 2009, an ELNEC-International training program was held in Nairobi, Kenya, with support from OSI.

Picture of Kenyan course will be added after course.

Picture of Kenyan course will be added after course.

ELNEC TrainingELNEC Training

In the classroom: In the classroom:

ELNEC TrainingELNEC Training

In the community:In the community:

South East AsiaSouth East Asia

ELNEC in IndiaELNEC in India

In early 2009, two ELNEC courses were held in India, in the cities of Delhi and Vellore, to train 56 health care professionals.

In early 2009, two ELNEC courses were held in India, in the cities of Delhi and Vellore, to train 56 health care professionals.

ELNEC India Faculty featured an international group of palliative care educators.

ELNEC India Faculty featured an international group of palliative care educators.

Delhi ELNEC Trainers Delhi ELNEC Trainers

Vellore ELNEC TrainersVellore ELNEC Trainers

Other CountriesOther Countries

ELNEC Trainer EffortsELNEC Trainer Efforts

• ELNEC’s primary aim is to educate nurses to improve EOL care, with initial efforts focused on the US

• However many ELNEC trainers have had opportunities to travel abroad and educate others

• ELNEC’s primary aim is to educate nurses to improve EOL care, with initial efforts focused on the US

• However many ELNEC trainers have had opportunities to travel abroad and educate others

ThailandThailand

Chulalongkorn, ThailandChulalongkorn, Thailand

MongoliaMongolia

ELNEC Faculty with participants from Mongolia in SalzburgELNEC Faculty with participants from Mongolia in Salzburg

RussiaRussia

Twenty representatives of the faith-based community of the North-West region of Russia completed a train-the-trainers course on palliative care on October 24, 2006 and 365 people participated in two back-to back workshops on palliative care for faith based organizations on October 25-28.

Twenty representatives of the faith-based community of the North-West region of Russia completed a train-the-trainers course on palliative care on October 24, 2006 and 365 people participated in two back-to back workshops on palliative care for faith based organizations on October 25-28.

RussiaRussiaPalliative Care Conference - St. Petersburg,

RussiaDr. Marianne Matzo in Russia

Palliative Care Conference - St. Petersburg, Russia

Dr. Marianne Matzo in Russia

Russia (cont.)Russia (cont.)

A complementary therapy (massage) session as part of a week long conference on palliative care to be taught at St. Petersburg State Medical University.

A complementary therapy (massage) session as part of a week long conference on palliative care to be taught at St. Petersburg State Medical University.

Профилактикасиндрома сгорания

Профилактикасиндрома сгорания

Translation: End-of-Life Nursing Education Consortium

The ELNEC International Curriculum slides and materials were provided to participants in the Russian Language

Translation: End-of-Life Nursing Education Consortium

The ELNEC International Curriculum slides and materials were provided to participants in the Russian Language

JapanJapan

At a Japanese Cancer Conference in Tokyo and Osaka

At a Japanese Cancer Conference in Tokyo and Osaka

ELNECエルネック

ELNECエルネック

専門看護師実践のための緩和ケアのガイドライン

天使大学院マリアン・マッツオ教授

専門看護師実践のための緩和ケアのガイドライン

天使大学院マリアン・マッツオ教授Translation: Specialist Nurse Practice Guidelines

concerning Palliative Care, Tenshi College, Professor Marianne Matzo

Translation: Specialist Nurse Practice Guidelines concerning Palliative Care, Tenshi College, Professor

Marianne Matzo

KoreaKorea

August 2009, ELNEC held a course in Korea

August 2009, ELNEC held a course in Korea

ELNEC GraduationELNEC Graduation

Guadalajara, MexicoGuadalajara, Mexico

Guadalajara, Mexico was the site of the first ELNEC course presented in Latin America. The initiative was the result of efforts by Dr. Sergio Conti (Hospice de La Frontera - Tijuana) and Ms Beatriz Montes de Oca, RN, (Dir., Hospice Cristina - Guadalajara City). A group of nurses under the leadership of Roger Strong, RN, APN, PhD (San Diego Hospice), traveled to Guadalajara to teach the ELNEC curriculum to nurses from all parts of Mexico. The course also included presentations on the progress of palliative care programs in Mexico.

Guadalajara, Mexico was the site of the first ELNEC course presented in Latin America. The initiative was the result of efforts by Dr. Sergio Conti (Hospice de La Frontera - Tijuana) and Ms Beatriz Montes de Oca, RN, (Dir., Hospice Cristina - Guadalajara City). A group of nurses under the leadership of Roger Strong, RN, APN, PhD (San Diego Hospice), traveled to Guadalajara to teach the ELNEC curriculum to nurses from all parts of Mexico. The course also included presentations on the progress of palliative care programs in Mexico.

Puerto RicoPuerto Rico

Maps of ELNEC Activity Around

the Globe

Maps of ELNEC Activity Around

the Globe

NORTH AMERICA

United States (All 50 states)

Canada Provinces (Alberta, Quebec, Ontario)

NORTH AMERICA

United States (All 50 states)

Canada Provinces (Alberta, Quebec, Ontario)

SOUTH AMERICA

BrazilChileColombia GuyanaPeruVenezuela

SOUTH AMERICA

BrazilChileColombia GuyanaPeruVenezuela

CENTRAL AMERICA

MexicoPuerto Rico

CENTRAL AMERICA

MexicoPuerto Rico

EUROPEAlbaniaArmenia AustriaAzerbaijan Croatia Czech Republic EstoniaGeorgia Germany HungaryIreland Kosovo Lithuania Macedonia Norway RomaniaSerbiaSlovakia SloveniaSpain Switzerland Ukraine

EUROPEAlbaniaArmenia AustriaAzerbaijan Croatia Czech Republic EstoniaGeorgia Germany HungaryIreland Kosovo Lithuania Macedonia Norway RomaniaSerbiaSlovakia SloveniaSpain Switzerland Ukraine

MIDDLE EAST/WESTERN ASIA

ArmeniaAzerbaijanGeorgiaIsrael

MIDDLE EAST/WESTERN ASIA

ArmeniaAzerbaijanGeorgiaIsrael

Azerbaijan

ArmeniaGeorgia

AFRICA

Kenya Malawi Nigeria Rwanda South Africa Tanzania Zambia

AFRICA

Kenya Malawi Nigeria Rwanda South Africa Tanzania Zambia

Malawi

Rwanda

ASIA

China Hong Kong Singapore

Japan Korea Mongolia Philippines Sumatra Taiwan Thailand

INDIA

RUSSIA & EASTERN EUROPE

Kazakhstan Kyrgyzstan Tajikistan

ASIA

China Hong Kong Singapore

Japan Korea Mongolia Philippines Sumatra Taiwan Thailand

INDIA

RUSSIA & EASTERN EUROPE

Kazakhstan Kyrgyzstan Tajikistan

AUSTRALIA & S. PACIFIC ISLANDS

AustraliaNew Zealand

AUSTRALIA & S. PACIFIC ISLANDS

AustraliaNew Zealand

Sumatra

For information on International Efforts visit the ELNEC website:

www.aacn.nche.edu/elnec

For information on International Efforts visit the ELNEC website:

www.aacn.nche.edu/elnec

ELNEC InternationalELNEC International

Promoting Palliative Care Around the World!Promoting Palliative Care Around the World!