34th ANNUAL BRAIN INJURY CONFERENCE

Thursday, March 26, 2015Best Western Royal Plaza Hotel

181 Boston Post Road WestMarlborough, MA 01752 (508) 460-0700

www.rplazahotels.com

Registration Information

(508) 475-0032 www.biama.org

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Dear Friends,

As the Executive Director of BIA-MA, I would like to invite you to participate in our 34th Annual Brain Injury Conference on March 26, 2015 at the Best Western Royal Plaza Hotel in Marlborough, MA. For over 30 years, the BIA-MA Annual Conference has provided a place to gather and discuss the challenges facing professionals, survivors and family members, as well as to learn about new developments in the brain injury field.

I am very pleased to announce that Dr. Carolyn Roy-Bornstein will be presenting the keynote, entitled “Telling Our Stories, Healing Our Hearts”. There will be over two dozen workshops offered on a wide variety of topics, including brain injury treatment options, tips for decreasing stressors related to brain injury, legal topics, and alternative therapies. Whether you are a professional, survivor or caregiver, I am sure you will find the keynote and workshops informative and inspirational.

Hope to see you on March 26th!

Best Regards,

Nicole M. GodaireExecutive Director, Brain Injury Association of Massachusetts

Keynote: Carolyn Roy-Bornstein, MD, FAAP“Telling Our Stories, Healing our Hearts”

A Word from the Executive Director

In 2003, Dr. Carolyn Roy-Bornstein’s teenaged son Neil was hit by a drunk driver while walking his girlfriend Trista home after a study date. Trista did not survive her injuries. Neil carries his injuries with him to this day,

in the form of a traumatic brain injury. In an effort to process the experience, Dr. Roy-Bornstein wrote her memoir Crash: A Mother, a Son, and the Journey from Grief to Gratitude.

Realizing that other families affected by traumatic brain injury may benefit from hearing and telling stories from fellow survivors, their families, and caregivers, she contacted Amy Newmark, publisher and editor-in-chief of the Chicken Soup for the Soul series, about collaborating on a book about TBI. In June of 2014, Chicken Soup for the Soul: Recovering from Traumatic Brain Injuries: 101 Stories of Hope, Healing, and Hard Work was published.

Since that time, Dr. Roy-Bornstein has become convinced that writing about our trauma can help us process and make sense of those experiences in profound ways. She has written about this topic in an essay in The Truth of Memoir by Kerry Cohen, published last year by Writer’s Digest, and in another essay called “Going Back to Where it Was” in the Jan/Feb issue of Poets & Writers magazine. She has been leading writing workshops for brain injury survivors at the Krempels Center in Portsmouth, NH for the past year.

About the Conference

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Continuing education credits are offered in the registration price for professionals in the following fields:* • Audiologists• Case Managers*• Certified Brain Injury Specialists • Educators• Licensed Alcohol & Drug Counselors• Licensed Mental Health Counselors* *• Nurses • Occupational Therapists • Physical Therapists • Psychologists • Recreational Therapists***• Rehabilitation Counselors** • Social Workers • Speech-Language Pathologists *If CEUs do not apply, you may request a Certificate of Attendance on the conference registration form. **Applications for these CEUs have been submitted. ***CEU pre-approval is in process. ATRA and NCTRC cannot guarantee that every session offered for this continuing education opportunity will be granted CEUs.

Continuing education credit is provided in part by Commonwealth Educational Seminars. • Psychologists: Commonwealth Education Seminars is approved by the American Psychological Association to

sponsor continuing education for psychologists. Commonwealth Educational Seminars maintains responsibility for these programs and their content. Psychologist attending this program receive 6 hours of credit.

• Social Workers: Commonwealth Educational Seminars, Provider #1117, is approved as a provider for continuing education by the Association of Social Work Boards, 400 Southridge Parkway, Suite B, Culpeper, VA 22701,

www.aswb.org.

Audiologists and Speech-Language Pathologists: This course is offered for 0.6 ASHA CEUs (Intermediate level, Related area). Information pertaining to financial and non-financial relationships can be found on the BIA-MA website at www.biama.org.

To obtain a Conference Attendance Certificate, each professional must sign in at the CEU registration table, attend the Keynote Address and three workshop sessions, for a total of 6 hours, and sign out at the end of the day. This year we will once again be using an online certification process: Evaluations must be submitted within one week of the close of the

conference to receive certificates. Further details will be provided upon registration.

Continuing Education Credits

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7:00-8:00 RegistrationContinental Breakfast and Exhibits

8:00-8:15 Welcome - Nicole GodaireExecutive Director, Brain Injury Association of Massachusetts

8:15-9:45 Keynote Speaker - Carolyn Roy-Bornstein, MD, FAAP“Telling Our Stories, Healing our Hearts”

9:45-10:15 BreakNetwork with Exhibitors

10:15-11:45 Session I - Workshops 1-10

11:45-12:00 BreakNetwork with Exhibitors

12:00-1:00 Lunch in the Main Ballroom and Zachary’s Restaurant

1:00-2:30 Session II - Workshops 11-19

2:30-2:45 Break and RefreshmentsNetwork with Exhibitors

2:45-4:15 Session III - Workshops 20-28

4:15 Continuing Education Certificates & Certificates of Attendance

Schedule of the Day

Eileen Chernoff, RN, MBA, LicNHAAnn Coney, MBARuth Crowley, MS, CCC-SLPDanna Delaney-Young, CBISMichelle Demore-Taber, ScD, CRC, LRC, CBISCatherine Dennehy, MSPTNicole M. Godaire, CBISMarine Johanson, LPNWIlliam KowalczykLaura MacFeeleySandra Madden

Janet McBride-Roy, CTRSDaniel Meninger, MSPTBeth MurphyZelinda Pereira, CBISRebecca Pritchard, MS, OTR/L, CSRSJoseph Ricciardi, PsyD, ABPP, BCBA-D, CBISTress Ricker, LSWMargaret RiveraLisa Saba, CBISHeller Shoop, MSStacey Sirotta, MS, DPT, CBIS

Conference Committee

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Session I 10:15-11:45 am

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1. Waiver Soup: Opportunities for Community Living through Home and Community Based Services (HCBS) Waivers Intended Audience: AllAmy Bernstein, Director of Community Based Waivers, MassHealth

Massachusetts now has a total of 10 HCBS waivers serving adults with brain injuries, other disabilities and elders. This session will review the benefits of HCBS waivers, waiver eligibility rules, services available through the waivers, and how to find the right waiver.

2. Talking with Pictures: Using PhotoVoice to Make a Difference for Yourself and Others with Acquired Brain InjuriesIntended Audience: Survivors/FamilyLaura Lorenz, PhD, MEd, Director Research & Education, Brain Injury Wellness Center and Therese M. O’Neil-Pirozzi, ScD, CCC-SLP, Northeastern University, Spaulding Rehabilitation Hospital

A review of participatory research using PhotoVoice to understand personal and environmental factors impacting community integration in Lexington, MA adults aged 55+, with disabilities from brain injury and other neurological conditions. Photos, captions, and experiences will be shared, as well as cognitive-communicative strategies to maximize use of PhotoVoice.

3. Compassionate Caregiving: Instilling Hope When We Have Little Left to Give!Intended Audience: Caregiver/FamilyDonna McCarten White RN, PhD, CS, CADAC-II, Addiction Specialist, Lemuel Shattuck Hospital

This workshop will present a new perspective on the issue of compassion stress and how it may potentially impact our daily lives. Research presented will demonstrate how caretaking behaviors in the professional, as well as caregivers in the community at large, may increase the risk of specific stressors that often lead to stress, feelings of being overwhelmed and compassion fatigue.

4. Treating Substance Abuse Following TBIIntended Audience: ProfessionalsChristopher Carter, PsyD, Director of Continuity for Brain Injury and Spinal Cord Services, Spaulding Rehabilitation Network

A review of the contribution of substance abuse to brain injury, the risks associated with relapse or use of sub-stances, barriers to traditional treatment programs, strategies for encouraging participation in treatment and ac-commodations to make treatment more effective.

5. One Care: MassHealth + Medicare, What Is It and Why Should I Consider Joining?Intended Audience: AllRoseanne Mitrano, Director, One Care Program and other panelists

For over a year, One Care has served as a new coordinated care option for MassHealth beneficiaries between the ages of 21-64 who also have Medicare (sometimes referred to as ‘dual-eligibles”). One Care members have access to an expanded range of benefits and receive all MassHealth and Medicare benefits through one coordinated plan. In this 90 minute workshop, MassHealth will present an overview of the One Care program, followed by a panel discussion and Q&A session. The panel will include representatives from MassHealth and all three of the One Care plans (Commonwealth Care Alliance, Fallon Total Care, and Tufts-Network Health).

Session I 10:15-11:45 am

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6. Assessment and Treatment of Patients in Post-Traumatic Confusional State (PTCS)Intended Audience: ProfessionalsAnne Citorik, MS, CCC-SLP, CBIS, Speech-Language Pathologist, Carrie Charney, MS CCC-SLP CBIS, Speech-Language Pathologist Practice Leader, Brooke Lenahan, MS, CCC-SLP, CBIS, Speech-Language Pathologist, and Kaitlin Trucchi, MS, CCC-SLP, CBIS, Speech-Language Pathologist, all from Spaulding Rehabilitation Hospital

This presentation will provide a comprehensive description of post-traumatic confusional state and will discuss recent literature and assessment tools utilized with this population. A case study will be presented to illustrate key points.

7. Considerations for Vision Rehabilitation for People with Brain Injuries Intended Audience: ProfessionalsDenise Chrystine Peralta, MS, MEd, OTR/L, OT , Occupational Therapist and Bianca Fillion, MEd, COMS, Director of Orientation and Mobility Services, both from MAB Community ServicesThis session will enable attendees to identify the types of vision loss common in people with brain injuries as well as explain functional field of vision loss which is usually diagnosed by a Low Vision Specialist. Attendees will learn to recognize the effects of vision loss on behavior and activities of daily living and understand how mobility training should be provided. Recommendations for adaptive equipment will be discussed, as will strategies for training the individual with vision loss. Finally this session will identify community resources available to people with vision loss and brain injuries.

8. The Epidemiology of Acquired Brain Injury In MassachusettsIntended Audience: AllHolly Hackman, MD, MPH, Epidemiologist, Massachusetts Department of Public Health and Francesca LaVecchia, PhD, Clinical Neuropsychologist, Massachusetts Rehabilitation Commission

In 2014, the Massachusetts Department of Public Health and Massachusetts Rehabilitation Commission completed an epidemiological assessment of acquired brain injury in Massachusetts. Major findings, as well as their limitations and implications, will be reviewed and discussed.

9. Hands-on Practicum: Behavior Management Techniques for Inpatient Use across the Rehabilitation Continuum - Part 1Intended Audience: ProfessionalsPam Ayotte, CTRS/L, (Team Leader of Therapeutic Research), Tricia Desrocher, PT, MS, CSRS, Program Director, Ryan Dumigan PT, DPT, Clinical Instructor, Erin Fabian, PT, DPT, CSRS, Physical Therapist, and Susan Riley, OTR/L, Inpatient Occupational Therapist, all from Northeast Rehabilitation Hospital NetworkA comprehensive overview of behavior management, including assessment of behavior problems, identification of environmental factors affecting behavior, and treatment considerations. PARTICIPANTS MUST ALSO ATTEND PART 2.

10. Special Needs Trusts: Basics & BeyondIntended Audience: AllRichard Blank, Esq, Partner, Rubin & Rudman, LLP, and Co-Author of “Managing A Special Needs Trust”A special needs trust can be a wonderful tool for preserving a disabled individual’s government benefits and financial resources. This workshop is designed to make a complicated subject, the special needs trust, less complicated. After a whirlwind tour of key government benefits, the focus will turn toward the basic elements of a trust and the scope of permissible distributions. Both housing and transportation will be covered. Time permitting, the workshop will conclude with a reality check by discussing what can go right and what can go “not so right”.

Session II 1:00-2:30 pm

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11. Defining the Massachusetts’ No Wrong Door System (NWD) and the Aging and Disability Resource Consortia (ADRC)Intended Audience: AllMarylouise Gamache, BA, ADRC Coordinator, Carole Malone, Directory of Community Programs, and Rachel Weiner, Director of the Options Counseling Program, all from Executive Office of Elder Affairs. Ann Shor, Inde-pendent Living and Assistive Technology, Massachusetts Rehabilitation Commission

This workshop will share information about the Aging and Disability Resource Consortia, the No Wrong Door System and access to long term services and support in Massachusetts. Please come and meet your state and local ADRC colleagues.

12. Interactive Poetry Writing Workshop: Rediscovering Individuality through the Sharing and Healing Power of Artistic ExpressionIntended Audience: Survivors/CaregiversPhilip Hasouris, Poet

To create a supportive environment, participants will take the time needed to reflect on life. The experience teaches stress management and allows an opportunity to connect with your inner artist. Learn how poetry can relieve stress and have long-term health benefits.

13. Preventing and Responding to Challenging Behavior following Brain Injury: Tips and Strategies using Applied Behavior Analysis Intended Audience: Professionals/CaregiversJennifer Silber, PhD, BCBA-D, Clinical Director and Whitney Wood, MS, Doctoral Intern from May Center School for Brain Injury and Related Disorders

This workshop will review strategies from the field of Applied Behavior Analysis that are effective when working with individuals with brain injury. Strategies for both preventing challenging behavior from occurring as well as responding appropriately will be discussed.

14. Project Career: Interprofessional Development to Support the Transition of Students with TBI from Post-secondary Education to EmploymentIntended Audience: AllKaren Jacobs, EdD, OTR/L, CPE, Clinical Professor, Rebecca Fleischer, Research Assistant, Colleen Moore, BA, Research Assistant, Angelina Telatovich, Research Assistant, and Amanda Nardone, BS, Technology and Employment Coordinator: Project Career, all from Boston University

A 5-year inter-professional NIDRR-funded development project designed to improve the employment success of undergraduate students with TBI through the use of assistive technology (iPads) and Career Support Services. Case studies will be incorporated in the interactive workshop.

15. Driving after Brain Injury: Determining Driver CompetenceIntended Audience: AllRachel Bernzweig, OTR/L, Occupational Therapist, Fairlawn Rehabilitation Hospital

A comprehensive overview of how brain injuries affect an individual’s ability to drive, the impact of non-driving in the community, the process for determining driver competence, and community resources for non-drivers.

Session II 1:00-2:30 pm

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16. Neurologic Continuum of Care: Evidence-Based Model of Post-Hospital System of CareIntended Audience: Professionals Frank D. Lewis, PhD, National Director of Clinical Outcome Services, NeuroRestorative

The first objective of this workshop will be to describe the nature of and evidence for neural plasticity after a severe brain injury. Building on knowledge of brain plasticity, the second objective evaluates the efficacy of four levels of post-hospital care (active neurorehabilitation, neurobehavioral intensive, day treatment, and supported living) based on the outcomes from 1276 adults with acquired brain injury. Finally, functional variables most important to success in each of the four levels of care will be discussed.

17. Employment and Disability BenefitsIntended Audience: AllLinda Landry and Thomas Murphy, Staff Attorneys from the Disability Law Center.

This workshop will discuss disability benefits and work incentives as well as an overview of employment discrimination protections. After the workshop, staff from the Disability Law Center will meet privately with participants about their benefit and employment issues.

18. Hands-on Practicum: Behavior Management Techniques for Inpatient Use across the Rehabilitation Continuum - Part 2Intended Audience: ProfessionalsPam Ayotte, CTRS/L, (Team Leader of Therapeutic Research), Tricia Desrocher, PT, MS, CSRS, Program Director, Ryan Dumigan PT, DPT, Clinical Instructor, Erin Fabian, PT, DPT, CSRS, Physical Therapist, and Susan Riley, OTR/L, Inpatient Occupational Therapist, all from Northeast Rehabilitation Hospital Network

A comprehensive overview of behavior management, including assessment of behavior problems, identification of environmental factors affecting behavior, and treatment considerations. PARTICIPANTS MUST ALSO ATTEND PART 1.

19. Secondary Trauma - Impact on Family Intended Audience: Caregivers/ProfessionalsDorothy Bergold, LICSW, CBIS, Clinical Social Worker and Sally Johnson, LICSW, Clinical Social Worker, from Spaulding Rehabilitation Hospital

Overview of how family members experience emotional trauma as a result of the brain injury. Ways to support family members and strategies for families experiencing trauma will be explored. A family member will share her experience of trauma and recovery.

Session III 2:45-4:15 pm

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20. Successful Transition using the MFP Demonstration and the MFP and ABI Home and Community Based WaiversIntended Audience: AllNancy Weston, Department of Developmental Services and Kerri Zanchi, MSW, LCSW, Assistant Commissioner, Massachusetts Rehabilitation Commission

A panel discussion facilitated by MRC and DDS waiver staff. Panel members will be comprised of enrolled ABI and MFP Waiver participants and waiver case managers. The panel will highlight: nursing facility transition, coordina-tion of services, challenges/opportunities to overcome barriers.

21. Integrative Speech-Language & Cognitive Therapy approaches with the TBI Patient Intended Audience: ProfessionalsKari Star, MS, CCC-SLP, Speech-Language Pathologist, Southcoast Ear, Nose & Throat Speech andSwallowing Disorders Clinic

Practical short course with hands on demonstrations & role playing of therapy approaches and materials with the TBI patient. Participants are encouraged to bring case studies for discussion.

22. Using iDevices in Brain Injury RehabilitationIntended Audience: AllJoanne Heffernan, MS, CCC-SLP, Speech-Language Pathologist and Lucia Watson, M.S., CCC-SLP, Speech-Lan-guage Pathologist, from Sargent Rehabilitation Center

Handheld touch screen devices such as iPhone and iPad are popular because they are powerful, portable and easy to use. Successful implementation of this technology requires thoughtful matching of the individual with the right tools as well as systematic training.

23. Neurologic Music Therapy - From Neuroscience to Clinical ApplicationIntended Audience: AllBrian Harris, MA, MT-BC, NMT, Neurologic Music Therapist, Spaulding Rehabilitation Hospital/ MedRhythms, LLC

Overview of Neurologic Music Therapy as it applies to Sensorimotor, Speech & Language, and Cognitive goals resulting from neurologic disease or injury. The neuroscientific principles will be presented, case videos will be shown, along with interactive activities, demonstrating clinical applications.

24. Further Strategies for Applying Behavioral Principles in the Neurorehabilitation of People with ABIIntended Audience: ProfessionalJoseph Ricciardi, PsyD, ABPP, BCBA-D, CBIS, Assistant Vice President and Director of Clinical Services andBrian Jones, MA, CBIS, Clinician, from Seven Hills NeuroCare

ABA is an approach to skills development that can support a neurorehabilitation program for people with ABI. However, ABA practitioners must integrate neuropsychology and other disciplines to be successful. This workshop will provide strategies and recommendations for implementing ABA-based practices in neurorehabilitation programs for people with ABI. Strategies for presenting comprehensive behavior support plans, goals selection, skills development, and outcomes monitoring will be discussed.

Session III 2:45-4:15 pm

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25. Adaptive Sports Centers: Helping Individuals of All Abilities Lead Active LivesIntended Audience: AllSandra Villante, CTRS, CBIS, Certified Therapeutic Recreation Specialist, Spaulding Rehabilitation Hospital

A comprehensive overview of sports and recreation programs that occur throughout the year. Demonstrations of specific equipment used such as hand cycles and court sport chairs. Case studies will also be presented to illustrate the benefits of the program.

26. Healthy Responses to the Stresses of Brain InjuryIntended Audience: AllSarah Gray, PsyD, Psychologist, Spaulding Rehabilitation Hospital

An overview of positive coping strategies, mindfulness techniques and relaxation exercises will be presented along with opportunities to experience the positive impact of these techniques through demonstration and experiential exercises. Participants will be provided with practical tools for encouraging positive responses to stress for them-selves, their clients, and family members.

27. What to do after discharge from therapy? Strategies for Caregivers/Survivors for return back to lifeIntended Audience: AllJulia Krasheninin, MS, CCC, SLP, Speech-Language Pathologist and Karla McAuliffe, MA, CCC-SLP, Speech-Lan-guage Pathologist, from Fairlawn Rehabilitation Hospital

Comprehensive review of cognitive strategies for attention, organization, executive function; adaptations for home, school, and work environments; review of applications for cognition.

28. Insights on Cognitive Remediation Treatments to Improve/Restore Attention, Memory, Processing Speed & Executive FunctionIntended Audience: All Javier Arguello, Founding Executive Director, Cognitive Pro, LLC (COGX)

Frontal lobe injuries are among the most common for brain injury patients, affecting: attention, working memory, processing speed and executive function abilities. How effective are common ABI treatments at restoring these after injury? How well do treatments target these cognitive skills given what we know is scientifically possible to accomplish? The talk will provide a review of the most common approaches and best practices for treating/restoring cognitive impairments. Overview of available methodologies will be presented along with a review of the scientific literature that supports cognitive skill malleability (ability to restore cognitive skills) with various approaches, and evolution of the cognitive training industry.

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BIA-MA MembershipBecome a member of BIA-MA to take advantage of discounted conference rate! Survivor - $5 Individual - $35 Caregiver/Family Member (up to 4 people) - $50 Professional - $75 Professional PLUS - $125*

*Includes a one year print subscription to The Journal of Head Trauma Rehabilitation, plus a print subscription to The Challenge, the Brain Injury Association of America’s magazine.

As a BIA-MA member, you will receive:• Discounts on registration for annual statewide conferences, workshops and trainings• BIA-MA’s Quarterly Newsletter, Heads Up Headlines• Online access to The Challenge, the Brain Injury Association of America’s magazine• Recognition in our BIA-MA Quarterly Newsletter and Annual Report• Invitations to programs and special events• Informational updates and advocacy alerts via e-mail

RegistrationONLINE REGISTRATION ONLY

To register go to: www.biama.org/conferences.html

• Limited scholarships are available to survivors and family members: fee $10• Printed registration form available by request for brain injury survivors and families• Conference registration includes breakfast, lunch, educational workshops.• FOR QUESTIONS OR INQUIRIES CONTACT: Laura MacFeeley, Education Coordinator, lmacfeeley@biama.org,

(508) 475-0032 x 30• CANCELLATION POLICY: Cancellations made on or before March 13, 2015 will receive a full refund.

Cancellations made between March 14 - 20 will be charged a $30 administrative fee, deducted from the refund. NO REFUNDS will be provided after March 21, 2015.

• To sponsor, exhibit or present a poster, please visit: www.biama.org/conferences.html• No walk-in registrations will be accepted

PROFESSIONALS (& OTHERS)Member $130Non-Member $170

SURVIVORS & FAMILY MEMBERSMember $ 60 Non-Member $ 75

STUDENTSMember $105Non-Member $120

ON or BEFORE MARCH 1STPROFESSIONALS (& OTHERS)

Member $170Non-Member $210

SURVIVORS & FAMILY MEMBERSMember $ 75

Non-Member $ 90

STUDENTSMember $120Non-Member $135

AFTER MARCH 1ST

30 Lyman St., Suite 10Westborough, MA 01581

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Permit #233Worcester, MA

34th Annual BIA-MA Brain Injury Conference!

Thursday, March 26, 2015Best Western Royal Plaza Hotel, Marlborough, MA

KEYNOTE SPEAKER: Dr. Carolyn Roy-Bornstein“Telling Our Stories, Healing Our Hearts”

Register Online at www.biama.org