2018-2019 annual report - essential tremor...et has never been more critical. today, the ietf is the...
TRANSCRIPT
InternationalESSENTIAL TREMOR
Foundation
2018-2019ANNUAL REPORT
©2007 IETF
OUR STORY
In 1988, a neurologist and pioneer in the field of movement disorders zeroed in on tremor conditions.
Dr. William Koller, at the University of Kansas Medical Center in Kansas City, Kansas, ran clinical trials and took a particular interest in essential tremor (ET), but also other types of tremor including orthostatic tremor, tremor from multiple sclerosis, tremor resulting from brain trauma, etc. His devotion to the field led to the establishment of the International Tremor Foundation (ITF) in 1988.
Based in Chicago, the organization focused on all types of tremor and shared an office with the United Parkinson Foundation. Formal documents of incorporation for the foundation were filed in 1992.
In 1997, the merger of the United Parkinson Foun-dation with the Parkinson Disease Foundation (in New York) prompted the ITF to relocate. Executive Director Catherine Rice moved the foundation to the Overland Park, KS region of Kansas City. This new location positioned them closer to their founder, Dr. Koller.
As the organization grew, so did its need to focus in on one area of tremor. Over a 10-year period, other organizations had been formed to focus on tremors associated with other diseases and conditions. This, combined with Dr. Koller’s investment in essential tremor, led to a more refined focus and a name change for the organization in 2001 – the International Essential Tremor Foundation (IETF).
Throughout its history, the IETF has continued to expand its reach and raise awareness and support for essential tremor across the globe.
It is estimated that essential tremor affects more than 10 million people in the U.S. alone, and that number continues to increase. The need for an organization that raises awareness to and advocates for people with ET has never been more critical.
Today, the IETF is the leading organization in the world dedicated to those affected by ET.
MISSIONThe International Essential Tremor Foundation provides hope to the essential tremor (ET) community worldwide through awareness, education, support and research.
Awareness. We promote greater ET awareness and educate at every level— from healthcare providers to caregivers to the general public.
Education. We empower individuals to regain control of their lives, by providing education-al information, treatment options and coping skills.
Support. Our network of support groups across the globe provides inspiration and fellowship among those living with ET.
Research. We fund scientific research to iden-tify more effective treatments and to discover a cure for ET.
Essential tremor is a neurological condition thatcauses a rhythmic shaking of the hands, head, voice
and/or torso, making everyday activities such as drinking, eating and writing difficult, if not impossible.
There is no known cure.
“Essential,” in medical terms, refers to “a symptom that is isolated and does not have a specific underlying cause.”
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The Archimedes spiral in our logo is a diagnostic tool for essential tremor. Asking a patient to draw an Archimedes spiral is one of the ways physicians diagnose ET.
OUR TEAM EXECUTIVE DIRECTOR REPORT
The IETF is the leading essential tremor (ET) organization in the world, working to advocate for people with ET through education and awareness of the condition. We promote learning through educational programs and activities. We connect people together through support groups and connect ourselves to organizations to help advocate for our cause. Through research, we are working to discover new methods of treatment and providing hope to people with ET. This would not be possible without the help of many people.
First, I would like to thank our loyal donors, support group leaders, and corporate partners for their support and generosi-ty. This fiscal year the IETF raised over $1 million dollars for the second year in a row. As the number of patients diagnosed with ET continues to increase, your support becomes even more important. We cannot do what we do, including raising awareness, providing educational materials and events, scholarships to students affected by ET, and awarding more than $800,000 in research grants without your donations of time, talent, and treasure.
I also want to thank our staff, Dawanna Fangohr and Tammy Dodderidge. They do a great job on a variety of projects in-volving our finances, support groups, database management, and our marketing and communications. Their hard work and dedication allow us to further our mission to provide hope to the ET community worldwide through awareness, education, support, and research. The next time you call, e-mail, or write please thank them for all they do for the IETF and the ET community.
And of course I want to thank our Board of Directors and Medical Advisory Board who are committed to the mission of the IETF and guarantee we meet our financial and research commitments along with the ethical and moral responsibilities for everyone with essential tremor.
The IETF continues to try to improve the way we deliver our messages. This year we hosted two teleconferences on a variety of topics (see page 8). If you missed one of the teleconferences recordings of each call are posted on our website on the “Education Programs” page. We also continue to host region-al ET Education Forums. During our 2018-19 budget year, we visited Minneapolis, MN; Dallas,TX; Tampa, FL; and San Diego, CA. We have future events scheduled in St. Louis, MO, and Kansas City, MO. We hope you can attend one of these events when we come to your town.
To improve our mar-keting and communica-tions efforts, the IETF has increased its social media efforts focusing on Twitter, Facebook and Instagram. We also share stories on our Tremor Talk blog. If you are on social media please follow the IETF and share our posts. This is an easy way for you to
help us increase awareness and educate people on ET and the resources the IETF provides to patients, doctors, and anyone interested in learning more about ET.
We continue to strengthen our current partnerships and build new ones with a variety of companies, associations, and other non-profits who focus their efforts on promoting ET edu-cation and awareness. Several of our partners are continuing their efforts to explore new treatment options or improving existing treatments. Working together we can combine our efforts for a unified voice for the ET community.
So as we start the new fiscal year we continue our commit-ment to work for you on raising ET awareness, providing the most up-to-date information through Tremor Gram, Tremor Talk, and our social media channels, and funding research to find the cause and hopefully someday a cure for ET.
Thank you again for your support of the IETF. Feel free to contact our office if you need materials to share via personal meetings, phone calls, or social media. You are our best advocates, and we hope you continue to spread the word about essential tremor and the IETF.
Sincerely,
Patrick McCartney, Executive Director
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Board of Directors
Kelly E. Lyons, PhDPresident
Shari FinsilverVice President
Paul RoddenSecretary
Mitch Fiser, CPA, CFPTreasurer
Melissa Armitage, MPA
Paula Nauer, MD
Patrick M. Reidy
Heath Steele
Medical Advisory Board
Holly Shill, MD - ChairKelvin Chou, MD Keith Coffman, MDArif Dalvi, MD Leon S. Dure, IV, MDRodger Elble, MD, PhDW. Jeffrey Elias, MDLeslie J. Findley, TD, MD, FRCPCole Giller, MDMark Hallett, MDAdrian Handforth, MDPeter Hedera, MDArif Dawood Herekar, MDJoseph Jankovic, MDMichael M. Johns III, MDSheng-Han Kuo, MDPeter LeWitt, MDElan D. Louis, MDFatta Nahab, MDWilliam Ondo, MDJill L. Ostrem, MDAlexander Rajput, MD, FRCP(C)Sara Salles, DOMark Stacy, MDClaudia Testa, MD, PhDJay Van Gerpen, MD
Staff
Patrick McCartney,Executive Director
Tammy Dodderidge,Marketing & Communications Manager
Dawanna Fangohr,Finance, Database & Volunteer Manager
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OUR AWARENESS INITIATIVES
Raising awareness to essential tremor and connecting with the essential tremor community are part of the daily work of the International Essential Tremor Foundation. We’ve highlighted some of our top awareness initiatives for 2018-19.
The IETF partnered with The Villages, Florida, one of the largest retirement communities in the United States, to raise awareness about essential tremor. Through a series of advertisements in The Villages Newspaper, the IETF defined essential tremor, provided information about the mission of the IETF and offered free ET information packets. More than 350 residents responded.
(At right) Wonderful things happened with 16-year-old Mark Lowell decided to raise money for the International Essential Tremor Foundation during Na-tional Essential Tremor Awareness Month. He raised more than $1,400, and also raised awareness about the condition. Most importantly, he felt under-stood. (He is shown here with his principal and assistant principal.)
“For a lot of my life this has been something that I have had to face by myself. And this entire experience has made me feel like I’m not alone.”
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National Essential Tremor Awareness Month
In March, we asked people around the world to help us “Shine a Light on Essential Tremor” during National Essential Tremor Awareness (NETA) Month. From sharing posts on social media to hosting individual fund raisers, the essential tremor com-munity once again stepped up to take part in this annual awareness effort. Here are some of our results:
• Reached 83,576 people through Facebook • Earned more than 48,000 impressions on
Twitter• Achieved 59,078 pageviews on the IETF
website• Raised $43,583 in donations• Distributed 268 NETA Posters• Gained 446 new page followers on Facebook• Accepted 238 new people into the ET Awareness Group on
Facebook (a closed online support group)
(At left) Donors who gave $30 or more received this NETA Month t-shirt. Donors giving at least $50 received both the t-shirt and tote bag.
ET Awareness Campaign with The Villages, Florida
©2007 IETF
Are they making it difficultfor you to eat, drink, write,dress and even talk?
You are not alone!More than 10 millionpeople in the U.S.struggle with essentialtremor (ET).
ET is a neurologicalcondition characterizedby a rhythmic tremblingin the hands, head,voice or trunk.
Facts About Essential Tremor• OftenmisdiagnosedasParkinson’sdisease,ETiseighttimesmorecommon.• Estimatesshow4%to5%ofpeopleages40to60haveETand6.3%to9%ofpeopleage60or older have ET.• ETisnotconfinedtotheelderly.Infact,manyteensandchildrenhaveit.• ETisgenetic.EachchildofaparentwhohasEThasa50%chanceofinheritingthegenethat causes the condition.
Learn More about Essential TremorTheInternationalEssentialTremor
Foundationprovidessupportforpeoplewithessential tremor through awareness programs, researchfundingandeducationalmaterials.
To Request a FREE ET Info PacketCalltoll-free1-888-387-3667,
[email protected] online, www.essentialtremor.org
“I’ve had people all my life ask me why I shake, asking if I’m scared. People have saidI’m on drugs because I shake or am an alcoholic. I’m so tired of the embarrassment.”
www.essentialtremor.org
Are Tremors Impacting Your Life?(At right, top) A newspaper advertisement educated people about the symptoms of essential tremor and offered a free information packet. (At right) A news-paper insert provided the facts about essential tremor and detailed the services provided by the IETF. A free information packet was offered with this insert as well.
Welcome Series ConnectsIndividuals to the IETF
Connecting more people with essential tremor to the IETF was the goal of this Welcome Series campaign. It encouraged people to connect with the IETF by signing up for the email and/or mailing list, and provided them with information about the services provided by the IETF. It has connected more than 375 new individuals with the IETF to date.
Networking with Healthcare ProvidersTo increase awareness of the needs of ET patients and to provide greater resources for healthcare providers, the IETF attended several healthcare provider confer-ences in 2018-19.
• American Academy of Neurology, Los Angeles, CA
• Parkinson’s Symposium, Overland Park, KS• American Academy of Family Physicians, New
Orleans, LA• Movement Disorder Symposium, Overland Park,
KS
In the spring of 2010, Rep. Dennis Moore (D-KS) introduced House Resolution 1264 to create an officially recognized National Essential Tremor Awareness Month.
OUR EDUCATIONAL RESOURCES
2018-19 Essential Tremor Education Forums
• June 23, 2018 in Minneapolis, MN at the Minneapolis Airport Marriott• September 15, 2018 in Dallas, Texas at the Sheraton Dallas Hotel by the
Galleria• October 27, 2018 in Tampa, FL at The Westshore Grand Hotel• March 2, 2019 in San Diego, CA at the University of California, San Diego
All year long, the IETF works to educate people with essential tremor about the latest diagnostic tools, management techniques, treatment options and current research. Through education forums, teleconferences, publications, the Tremor Talk blog and other educational resources, we strive to keep everyone informed and connected.
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Essential Tremor Teleconferences*• April 18, 2018 -- Surgical Options for
ET• Sept. 12, 2018 -- ET vs. Parkinson’s:
How Do They Differ?
IETF Websitewww.essentialtremor.org
*Recordings of the teleconferences are available online at www.essentialtremor.org/teleconferences/
We had 221,223 users to our web-site during the 2018-19 budget year (a four-fold increase over the previous year). There were 514,439 pageviews.
Tremor Talk Magazine
Tremor Gram E-Newsletter
Tremor Talk Blog
Brochures and Other Printed Materials
Published three times a year, this 32-page magazine is provided to all donors to the IETF. It features research and support articles, support group listings, stories from the ET community and more.
Each year the IETF provides thousands of copies of informa-tional materials about essential tremor to physicians, medical institutions and the ET community. We had a 15% increase in subscribers to
our Tremor Gram enewsletter during the 2018-19 budget year. A total of 22,900+ people receive it each month.
The Tremor Talk Blog shares stories of hope for people with ET. We have guest bloggers from the ET community, the medical community, the scientific community and student scholarship recipients. More than 183,000 people visited the Tremor Talk Blog site during the 2018-19 budget year.
The IETF supports college students with essential tremor by awarding eight scholarships each year.
Scholarship Program
OUR DEDICATION TO RESEARCH OUR FINANCIALS
Research is the key to finding the cause of essential tremor. Advancing knowledge about its cause can lead to promising new treatments, therapeutic interventions and even a cure someday.
Supporting research is part of the mission of the IETF. Here are some of our research initiatives:Research Grants. Each year, the IETF requests grant proposals from the scientific community to further our understanding of essential tremor. We seek proposals that address the nosology, etiology, patho-genesis or treatment of essential tremor or other topics relevant to essential tremor.
Research Advocacy. Advocacy is the empowering arm of research. Planting seeds with scientists/researchers, technology groups and others who have the expertise and connections needed to conduct essential tremor research is key.
Clinical Trials Recruitment. Testing the safety and effectiveness of medications and devices is critical to their approval. That’s why clinical trials are important. The IETF regularly promotes the essential tremor research studies looking for participants.
Brain Bank. The IETF continues its recruitment for brain tissue for several Brain Banks throughout the United States. These research banks study the post-mortem brains of people with essential tremor.
“New and ongoing research for ET gives hope to us young people. Even though our con-ditions may worsen over time, there are also so many ways modern medicine can help us live our lives normally and we all need to work toward that goal together.”
—Deirdre, IETF College Scholarship Recipient
Since 2001, the IETF has contributed more than
$800,000 to essential tremor research
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Learn more about ET research and IETF-funded research at www.essentialtremor.org/research/.
REVENUE
EXPENSES
TOTAL REVENUE $1,121,746
TOTAL EXPENSES $ 630,900NET ASSETS $3,496,561
78%
76%of revenue comes from direct
contributions from donors
of expenses goes to Research, Education,
Awareness, & Support
Contributions $ 434,541
Investment income $ 114,295
Grants $ 50,000
Memorials/Bequests $ 276,962
Exempt function revenues $ 7,046
Research $ 97,175
Special events1 $ 112,789
Program2 $ 496,474
Management/General3 $ 92,062
Fundraising4 $ 42,364
1 Includes revenue received from National Essential Tremor Awareness Month. 2 Includes awareness, education, support and research activities and initiatives. 3 Includes expenses related to office overhead such as supplies, computers, copier, salaries, and rent. 4 Includes National Essential Tremor Awareness Month activities, annual appeal, and annual donations.
OUR SUPPORT GROUPS
United States
Huntsville, ALDan Seaman256.337.4616 [email protected]
Gardendale, ALSuzanne Frazier205.602.4332 [email protected]
Sun City West, AZRoss Stapleton [email protected]
Gilroy, CA Shirley Place [email protected]
Palm Desert, CAJanine Judy 760.285.0411 [email protected]
Roseville, CA Paula Lavin [email protected]
San Diego, CA Edwin Peterson [email protected]
San Ramon, CA Sharon Alexander 925.487.5706 [email protected]
Monument, COMargaret [email protected]
CT, rotates throughout stateHelen Moser [email protected]
Daytona Beach, FLJanet Hirst 386.801.3906 [email protected]
Jacksonville, FLBarbara Noell 904.685.1234 [email protected]
Lady Lake, FLKen Taylor 352.787.3866 [email protected]
Tampa, FLKelvin Fenelon [email protected] Alvin Lacdao [email protected]
West Palm Beach, FLHarvey Glasser 631.493.9203 [email protected]
Dalton, GACindy Crafton [email protected]
Savannah, GABill Atkinson [email protected]
Aurora, ILChristine [email protected]
Winfield, ILLynn Bernau 630.497.2142 [email protected]
Overland Park, KS Dawanna Fangohr913.689.2732 [email protected]
Wichita, KS Rita Sevart316.249.5222 [email protected]
Louisville, KY Erika Ganong 502.291.3676 [email protected]
Cambridge, MAAllen Perez [email protected]
Clinton, MACarole [email protected]
Elkridge, MDHazeline [email protected]
Detroit (Metro), MITom & Sabrina Pilarski [email protected]
Grand Rapids, MIJulie [email protected]
Kalamazoo, MIBarbara [email protected]
Minneapolis, MNHeather Boeser952.977.3239 or 952.993.5495
St. Paul, MNSandra [email protected]
Lee’s Summit, MOJohn [email protected]
Gulf Port, MSKatelyn [email protected]
Sylva, NCTed Kubit828.631.5543 [email protected]
Albuquerque, NMKen Whiton 505.453.1732 [email protected]
Hauppauge, NYHarvey Glasser 631.493.9203 [email protected]
North Salem, NYBrian [email protected]
Mogadore, OHBrenda Libbey 330.980.4155 [email protected]
Portland, ORSue Tolley [email protected]
Hazleton, PA Karla Foose 570.495.9714 [email protected]
Horsham, PA John Krzeminski [email protected]
New Holland, PASherilyn Lapp 717.355.6264 [email protected]
Pittsburgh, PA Darla Yesko 412.351.4564 [email protected]
Turbotville, PA Marianne Yeagley 570.850.6223 [email protected]
Moore, SCJohn [email protected]
York, SCSylvia [email protected]
Nashville, TNJim Crowley 615.509.2386 [email protected]
Abilene, TXBob Kolquist [email protected]
San Antonio, TXJohn Nemeth [email protected]
Spring, TXJanice Morrison [email protected]
Tyler, TXElizabeth Guthrie East Texas Medical Center Neurological Institute [email protected]
Woods Cross, UTTrudy Hutchinson [email protected]
Centreville, VAShani [email protected]
Charlottesville, VAJohn Watterson 434.973.2510 [email protected]
Roanoke, VADee [email protected]
Kirkland, WARobert Delf 206.601.9217 [email protected]
Middleton, WIKathy Muirhead 608.824.9130 [email protected]
Shirley Silver was nine years old when she began to shake, but she wasn’t formally diagnosed with essential tremor until she was an adult. She felt self-conscious, nervous and even ashamed of her shaking.
As an adult, she got involved in an International Essential Trem-or Foundation (IETF) Support Group and it changed her life.
“My knowledge, my confidence – everything – was boosted by this group. It was wonderful. It took me all that time to say ‘I’m not the only one,’” she recalled.
Shirley shared her story with the IETF in 2018 at the age of 91. She passed away a short time later. We applaud her brav-ery and share her life lessons to help others.
A Life-Changing Experience
Support in Your AreaEssential Tremor (ET) Support Groups are informal self-help groups run by and for people with ET, under the umbrella of the IETF. They are places to talk openly about the challenges of living with ET, share ideas and feel connected.
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international
Brisbane, AustraliaKarthick Thangavelu614 13 269 [email protected]
Shepparton, VictoriaAustraliaChristine Beer614 27 331 [email protected]
Odense C, Denmark Claus [email protected]
Bonn/Cologne, GermanyAlbert BrancatoSelbsthilfegruppe Essentieller [email protected]
Kpedze Awlime, Ghana Tomi Albert
Greater Noida, Uttar Pradesh, IndiaAjit [email protected]
New Delhi, India Divya [email protected]
Madrid, SpainIgnacio [email protected]
Princes TownTrinidad & TobagoRebeca [email protected]
ET Online Support GroupFor individuals who don’t have an ET Support Group in their area, or can’t get out to a support group, there is support available online through the Essential Tremor Awareness Group on Facebook. Everyday, thousands of people connect to share stories and ideas, and provide support for each other.
www.facebook.com/groups/5884699022/
OUR DONORS
Legacy Society
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Members of the IETF’s Legacy Society are those who have named the IETF as the ultimate beneficiary of a planned gift. Such gifts might include a bequest and/or gifts of life insurance. These gifts contribute to the stability and long-term growth of the organization. It is the ideal way for their support for the foundation to live on for years to come.
Deceased Donors
Warren Conklin Apgar Bequest
Robert Barfoot
Thelma Beatty Trust
Berner Charitable and Scholarship Foundation
James Breene
Marietta Budak
Butler Family Trust
Shirley A. Cavanagh Bequest
Willima B. Cole Trust
Nancy M. Craig Trust
E. Ruth Crum Trust
Beryll G. Deming Trust
Margaret Edwards Estate
Irene Feimer Anger Bequest
Howard Fisher Trust
Albert Gendron Living Trust
Anne Gilstrap
Lorraine Hellstern
Shirley Henry
Frans Jahger
Edmond Jamieson
Laurita Hall Johnson Trust
Dorothy Helen King Bequest
Rose Kleiner Trust
Lois Kreider
Barbara Kurtz Trust
Margaret Loyd
Thomas MacNair
Richard Marcus
Lynn W. Martin Estate
Stephen A. Mohorich Estate
Paul T. Perney Trust
Dina Philips
Schmier Family Revocable Trust
William & Mary Shelley Trust
Dorothy Stevenson
Martin Stinar Trust
Delbert D. Utgaard Trust
Melville VanBuskirk Bequest
Kathleen Wambold Estate
John Zgliobicki Jr.
Lola Zimmerman
Living Donors
Judy Adams
Patricia Anesi
Leslie Balas
Karen Christenson
Lillian Courtheoux
Shari & Stan Finsilver
Marilyn Foreman
Goodenough Family Trust
William Hatton
Sam Hodges
Joseph L. Hores
Raymond & Sarah Lamont
Carol Post
Byron Scott
Jacqueline Sydow
Janet Whittlesey
Leon Wilhelm
For information on becoming a Legacy Society member, contact IETF Executive Director Patrick McCartney toll free at 888.387.3667.
President’s Club
Mr. & Mrs. Jeff Affeldt
Alvin and Fern Davis Foundation
J Bell
Mr. & Mrs. David Berryhill Jr.
Mrs. Esther Blum
Ms. Liz Blunt
Mr. & Mrs. J. Robert Booth
Leslee Breene
Chester Brown
Mr. Paul Broyhill
Mr. & Mrs. John Cakebread
Iris Chapman
Mr. Ken Cosgrove
Ms. Lillian Courtheoux
Damien Foundation
Mr. Kevin Donovan
Patricia Dupree
Mr. Carmen A Eanni
Ms. Helen Ensign
Shari & Stan Finsilver
Stanley Fishfader
Mr. & Mrs. William Froelich
Mrs. Bonnie Goldberg
Ms. Margaret Gorman
Deidre Hall
Mr. John Harper
Mrs. Agnes Heersink
Howard Fisher Charitable Trust
Iglewski Family Foundation
Jewels of Eagle’s Trace
Diane & Berland Johnson
Judith Johnson
Irene Johnson
Ms. Susan Kahn
Mr. Jay Kirchoff
Ms. Margaret Klein
Steven Klinker
Ms. Sally Knight
Mr. & Mrs. Thomas C Koehler
Mrs. Michele Leber
Mr. Terry Lee
Stephen Lescher
Mr. Michael Libman
Mark Lowell
Dr. Kelly Lyons
Emile Maamary
Mr. Thomas M MacNair
Mr. Michael Mahoney
Ms. Bonnie Mandel
Richard Marcus
Mr. John Marth
William A. McBride
Mr. Paul McGrady
Mrs. Stephanie Mendel
Mrs. Marsha Morgan- Sitterley
Mrs. Beverly Myers
Jerry Neilson
Ms. Charlotte Norris
Robert Oster
Mr. & Mrs. Randal Peterson
John Ricker
Mr. & Mrs. Larry Roberts
Joseph Robinson
Mrs. Selma Rosen
Mr. Porter Slagle
Ms. Florence A Slater
Mr. & Mrs. Jerry Slater
Mr. & Mrs. Lee Smith
Mr. John W Sondheim Ms. Emily Greenberg
Mr. Frank Soroka
Mr. & Mrs. Walter Stearns
Stephenson National Bank & Trust
Mr. & Mrs. Gerald Swanson
Mrs. Judy Task
Mr. Jerry Taylor
Ms. Nancy Uppal
Mr. John S Watterson III
Mr. & Mrs. John Williams
Mr. & Mrs. Leo Wilz
Mr. Fred M Young Jr.
Donors who contribute $1,000 or more to the IETF annually are recognized as “President’s Club” members. Many thanks to the individuals who made this commitment during our 2018-19 budget year.
Connect With Us
Join our email list – www.EssentialTremor.org
Read our blog – TremorTalk.org
Find us on Facebook – www.Facebook.com/InternationalEssentialTremorFoundation
Follow us on Twitter – www.Twitter.com/EssentialTremor
Follow us on Instagram – www.Instagram.com/essentialtremorfoundation/
Watch our videos – www.YouTube.com/EssentialTremorIETF
Follow us on Linked In – www.linkedin.com/company/the-international-essential- tremor-foundation/
International Essential Tremor FoundationPO Box 14005, Lenexa, Kansas 66285-4005 U.S.A.
888.387.3667 (toll free) 913.341.3880 (local)www.essentialtremor.org [email protected] (email)