2015 annual report - almost home kids · 2015-12-17 · 2 almost home kids 2015 annual report liska...

Almost Home Kids 2015 Annual Report Liska + Associates 691043 12.08.15 Released

2015 Annual Report


At Almost Home Kids our Mission is to provide transitional care in a home-like setting to children with complicated health needs, training for their families and respite care.

Front Cover: Enzo with Danielle, AHK RN

Jessica (AHK Clinical Aide) and Gabe

Almost Home Kids — 2015 Annual Report

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The Almost Home Kids model is present in any place there is a need without regard to geographical boundaries. All key community and policy stakeholders are fully committed to the AHK model and recognize it as the premiere standard of care.

2015 was an exciting year for Almost Home Kids, our community engagement in Chicago increased by over 70% as new volunteers signed up for recreational opportunities with our children, corporate groups volunteered for story hours, supporters brought in Wish List items and a myriad of other thoughtful projects helped to make our house a home. In Naperville the Margaret M. & Thomas M. Curran Healing Garden became a reality as the garden was transformed into a beautiful serene space that is fully accessible and will be enjoyed by young and old alike. Our international program welcomed children from as far afield as Kuwait and Russia, and our clinical outreach expanded into many more local and national healthcare systems.

This year also brought Almost Home Kids closer to our Vision statement (above) established in 2010. Our plans are moving forward to expand and meet the needs of more children with medical complexities and their families, within and outside of Illinois. Our partnerships with children’s healthcare centers and state systems help us provide the best level of care for all children with medical complexities. Nationwide, the medical community has embraced our model of care and our resolve for the future is strong.

Your support allows us to realize our mission and directly impacts our community’s most vulnerable children and families. On behalf of the more than 1,400 children we have served, we thank you for your dedication. Your willingness to donate your time, expertise and funds really does make an enormous impact, and we are extremely grateful to have so many wonderful supporters.

Sincerely,

Deborah A. Grisko, RN President & Executive Director

Bill Neustadt Chairman, Board of Directors

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The Almost Home Kids Model AHK is licensed by the Illinois Department of Health, under the Alternative Healthcare Delivery Act as a Children’s Community Health Care Center. It is the only community-based facility in Illinois dedicated exclusively to the care of children with complex medical conditions. The organization is poised to share its expertise with other institutions therefore increasing the capabilities and capacity of the region to care for children with complicated health needs.

How We Do It

Transitional Care — A bridge from hospital to home

AHK provides a 120-day Transitional Care Program for children who are ready to be discharged from a hospital but for whom preparations at home need to be made. In a comforting environment, children receive 24-hour medical and nursing support from skilled pediatric nurses. AHK trains families on how to both care for their child with medical complexities and how to prepare their home.

Respite Care

The Respite Care Program at AHK offers children a comfortable place to stay with access to medical and nursing support while their parents/caregivers tend to personal or urgent family issues. The Respite Transportation Program provides roundtrip transportation for children from their home to an AHK facility.

Community Support

In addition to training and care, AHK provides community resources and activities that become a support system the family can depend on for years to come.

Hailey with volunteer, Jenni

Medically Complex DefinedChildren who are medically complex and are in a stable condition, but dependent on life-sustaining medications, treatments and equipment and have a need for assistance with daily-living activities.

Eligibility Requirements■ Ages from Birth to 21■ Children who are Medically Complex■ Children who are Technology Assisted

Services■ Medical Home Provider■ 24/7 care by Pediatric Advance

Life Support (PALS) and Ventilator Certified Registered Nurses

■ On-site Pediatric Medical Director■ Speech Therapy■ Occupational Therapy■ Physical Therapy■ Development Therapy■ Nutrition Consultation■ Weekly Care Conferences■ Discharge Coordination Meetings■ Individual Educational Coordination■ Fully Accessible Playground (Naperville)■ Beautifully Landscaped Grounds with

Wheelchair Accessible Paths (Naperville)■ On-site Respite■ Emergency Respite■ Respite Transportation Services■ Case Management ■ Parent Advocacy Assistance■ Care Coordination — Medical Team■ On-site Pediatric Nurse Practitioner■ Counseling Services■ On-site Social Worker■ Medical Education Program■ Sleep Study Program■ On-site Certified Child Life Specialist

Community of SupportFrom navigating the healthcare system to providing emotional support, Almost Home Kids introduces families to a continuum of care that is community based.


Physical Therapy at Almost Home Kids

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Program Updates: Keith Veselik M.D. Medical Education Program

AHK’s goal is to improve the quality of life for its children and families, which means, that we offer excellent clinical care, play a role in better training the medical community in knowledge, skills and perceptions that will allow them to competently serve this important and vulnerable population. The Keith Veselik, M.D. Medical Education Program is a prime example. This program improves the lives of high-risk children both now and in the future by training current and future physicians about the medical complexities and social realities of this unique population in the community setting. Thus far this year, residents from ten teaching hospitals have been on-site gaining critical knowledge at both AHK homes.

Dr. Smith, Heaven and Palliative Care Fellow Residents and Gabe with Dr. Smith

Enrique with Mary Pat

Maria with Jen and Dana

Children staying at AHK are considered medically complex due to a wide variety of medical diagnoses including prematurity, chromosomal defects, cerebral palsy, respiratory problems that require a ventilator, or victims of physical trauma. They all are at risk for physical disabilities and delay in their overall development due to their medical diagnosis, history of prematurity or prolonged hospitalizations. At AHK one of its goals is to improve the quality of life for its children and families. The Physical Therapy Program, launched in 2014, brings physical therapists onsite several days a week to focus on improving physical abilities and promoting mobility, function and quality of life for the children. They accomplish this through therapeutic exercise, strength building, use of assistive devices and education.

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51% Individuals

32% Foundations

12% Corporations

3% Civic

2% In-Kind

Almost Home Kids Private Donations: $1,155,438

For each dollar contributed to Almost Home Kids:

51%

12%

32%

3% 2%

86% goes to Programs and Services

7% for Management

7% for Fundraising

Our Financial SummaryOur fiscal year 2015 runs from September 1, 2014 to August 31, 2015. During this time AHK’s Program Expenses totaled $5.8 million, which included investments toward expansion initiatives and significant capital improvements in Naperville.

This is up 3.7% over last year and the increase is attributed to employee benefit costs. This year, we enhanced the capabilities for our clinical team and increased efficiency in care coordination by converting to an electronic medical record system called EPIC.

After receiving $3.9 million fee for service revenue from the State of Illinois, third party insurance companies and cash payments, AHK turned to philanthropy to close the gap for our medical services.

With the generosity of 1,370 donors, AHK’s fundraising contributions for the year tallied $1.1 million.

The organization remains focused on fundraising efficiency and is committed to providing critical healthcare services for children, regardless of a family’s ability to pay.


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1 Executives from United Airlines tour AHK Chicago 2 Enzo with volunteer, Brett 3 Lisa with volunteer, Niko 4 Axel with volunteer, Mary

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Our Thanks

Your Support Makes an Impact■ In Fiscal Year 2015, over 2,187 gifts were received at AHK, totalling $1,155,438. These gifts play an essential

role in providing the very best care for our children and support for their families.

■ Volunteers have always been a critical part of the care we provide at AHK. This year, volunteer hours at AHK Chicago increased more than 50% compared to the previous year!

■ More than 150 individuals and organizations supported the Margaret M. & Thomas M. Curran Healing Garden, purchasing commemorative brick pavers or naming sculptures, trees and sitting walls.

In an effort to better steward the donations entrusted to us, as well as the environment, we have omitted the multiple page listing of our donors this year in the Annual Report.


Board of DirectorsBill Neustadt Neuco, Inc., Chairman Chairman/Board President

Josh Prangley JP Morgan, Vice President, Investment Banking Vice Chair

Ron Blaustein Lurie Children’s Hospital Chief Financial Officer

Julia Chappell Design Center at the Merchandise Mart Managing Director, Marketing

Theresa Danko VOA, Sr. Vice President, Business Development

Deborah A. Grisko, RN Almost Home Kids, President and Executive Director

Michael Hoffman, MD Elmhurst Clinic, Pediatrician

Matthew Mullarkey Centerpoint Properties Sr. VP, Special Projects

Paula Noble Lurie Children’s Hospital Former Chief Financial Officer

Lakesha Rose RosePhillips, Principal

Christopher Schenkenberg Grant Thornton, Partner

Michelle Stephenson, DNP, RN, NEA-BC Lurie Children’s Hospital Chief Patient Care Services Officer & Chief Nurse Executive

Marita Sullivan JMG Financial Group, Principal

President’s CouncilDan Ault Cabrera Capital Partners, Principal

Paul Bogdanski Grant Thornton, Senior Manager

Jen Clune Clune Construction, Sr. Vice President

Adam D’Auguste Lend Lease, Vice President

Josette Goldberg Goldberg Executive Coaching, President

Bregan Herrold Director, Global Financial Planning Beam Suntory

Jen Horsley HelloWorld, Senior Vice President

Kimberly Hyla Millennium Garages, Director of Marketing

Carolyn Johnson Continental Automotive, Senior Staff Engineer

Ann Karch, MD Pediatrician

Bethany Keown Community Volunteer

Marty Koehler Assurance, Vice President, Employee Benefits

Ryan Murphy PricewaterhouseCoopers, Partner, Investigations and Forensics

Katie Ossman Vice President Water Street Healthcare Partners

Bill Rogers Jones Lang LaSalle, International Director

Tom Roth Village Bank and Trust

Susan Schwartz Corboy & Demetrio, Partner

Sarah Tromans The Drake Hotel, Director of Finance

Shawn Tyrrell Adventist Hospitals Vice President/Chief Nursing Officer

Kathy Wennerstrum Community Volunteer

Medical Advisory Committee (MAC)Michael Hoffman, MD Elmhurst Clinic, Pediatrician Chair, Medical Advisory Committee

Patti DeJuilio, MS, RRT-NPS Central DuPage Hospital

Larry Desch, MD Advocate Hope Children’s Hospital Division Chair, Pediatric Dev.

Denise Goodman, MD Lurie Children’s Attending Physician, Critical Care

Natasha Henner, MD Lurie Children’s Dept. of Pediatrics/Neonatology

Dr. H. Kim, MD Edward Hospital, Director of Pediatric Emergency Room

Jaideep Singh, MD Comer Children’s Hospital, Professor of Pediatrics

Keith Veselik, MD Loyola University Medical Center, Professor of Pediatrics

Layenie Anderson, RN Director of Case Management

Chris Bender, MD DuPage Pediatrics, Pediatrician Medical Director – AHK Naperville

Deborah A. Grisko, RN President and Executive Director

Ann Karch, MD Pediatrician Associate Medical Director, AHK

Peter J. Smith, MD Comer Children’s Hospital Associate Professor of Pediatrics Medical Director – AHK Chicago

Almost Home Kids would like to acknowledge the dedicated individuals who serve on our Board and Committees. Their work and involvement makes an immeasurable difference in the lives of our children with medical complexities.

Naperville Location 7 South 721 Route 53 Naperville, Illinois 60540630.271.9155

Chicago Location 211 E. Grand Avenue, 6th FloorChicago, Illinois 60611312.229.0170

AlmostHomeKids.org

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“I really want people to know how important Almost Home Kids is; it truly changes lives and sets parents up with the knowledge and medical support to take care of their children at home.” — Hannah Vandiver (Audrey’s mom)

2015 annual report - almost home kids · 2015-12-17 · 2 almost home kids 2015 annual report liska...

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