2012 nmss-wi chapter progress report

2012 PROGRESS REPORT

Commitment • Leadership • Integrity • Excellence • TeamworkLIVING OUR VALUES

MS stops people from moving. We exist to make sure it doesn’t.

National Multiple Sclerosis Society

Founded in 1946, the National Multiple Sclerosis Society has affiliated Chapters serving each of the 50 states including Wisconsin, all striving to address the challenges of living with MS. Research is at the forefront of these initiatives, and thanks to the generosity of volunteers, donors and fundraisers, the Society is funding more MS research, providing more services to people with MS, offering more professional education and furthering more advocacy efforts than any other nonprofit MS organization in the world.

MS in Wisconsin

More than 10,000 children, women and men in Wisconsin have been diagnosed with MS, giving the state what is believed to be one of the higher prevalence rates in the nation. Headquartered in Hartland, the Wisconsin Chapter proudly serves those individuals as well as those who love and care for them.

2012Board of TrusteesKenneth Minor, Chair Sonic Foundry, Inc.

David Rodgers, Vice Chair Briggs & Stratton Corporation

Michael Lutze, Vice Chair Ernst & Young

Tom Golden, Vice Chair M3 Insurance Solutions, Inc.

James Rose, Treasurer Baker Tilly Virchow Krause, LLP

Robert Sowinski, Secretary Diversified Insurance Solutions

Alyson Zierdt, Past Chair Attorney, Retired

Colleen Kalt, President & CEO National MS Society-Wisconsin Chapter

Anne Brouwer McMillianDoolittle, LLP

Robert Buhler Open Pantry Food Marts of Wisconsin, Inc.

Dennis Christiansen Community Advocate

Robert Engel Retired, M&I Bank

Pamela Evason Windermere Wealth Advisors, LLC

Paul Jones Harley-Davidson, Inc.

Wayne Larsen Ladish Company Foundation

Martin McLaughlin Reinhart Boerner Van Deuren, S.C.

Bruce Olson The Marcus Corporation

Shelley Peterman Schwarz Meeting Life’s Challenges, LLC

David Raysich Plunkett Raysich Architects

Patricia Raysich Community Advocate

Jeffrey Steren Steren Management/McDonald’s

Robyn Turtenwald Community Advocate

Molly Walsh Groundwork Consulting

2012 Progress Report 3

We are people who want to do something about MS now. We mobilize people and resources to drive

research for a cure and address the challenges of everyone affected by MS.

And as an organization whose vision is to create a world free of MS, we strive to live by a set of core

values that guide our work and actions on a daily basis:

Commitment • Leadership • Integrity • Excellence • Teamwork

You’ll read more about our values in this National Multiple Sclerosis Society-Wisconsin Chapter 2012

Progress Report, and how those principles translate into serving everyone affected by MS in the best ways

possible. We share them, along with highlights from the year, so you can be sure that your support and

assistance have been well placed.

That’s because none of what has been accomplished

since Sylvia Lawry started the Society in 1946 has

been done without the support of volunteers, donors

and fundraisers – friends like you who believe

wholeheartedly in what we will accomplish together.

Thank you for your belief in that mission.

Ken Minor Colleen G. KaltBoard Chair President & CEO

We have a very clear view of who we are, what we do and what we value.

Ken Minor and Colleen Kalt at the 2012 Bike MS: TOYOTA Best Dam Bike Ride.

Quality of Life Those familiar with the Wisconsin Chapter are likely also familiar with Wendy Machi and the network of family and friends who have supported her since her MS diagnosis in 1983. Her namesake, Team Wendy, is a cornerstone of Bike MS: TOYOTA Best Dam Bike Ride, with her husband, children, other family members and friends taking turns riding tandem with her.

Team Wendy organizes numerous “Do It Yourself” fundraising events each year to support quality-of-life programs and services offered by the Chapter as well as critical research into treating and curing MS. The team’s Blarney Bash is one of those events: an evening of music, raffles, silent auctions, food and fun. In 2012 – its 10th anniversary year – Blarney Bash raised nearly $25,000.

“Each year the Blarney Bash is held to raise money and awareness to help fight and find a cure for the debilitating disease that is multiple sclerosis. We do it for people like Auntie Wendy, who continue to fight each day to complete everyday activities that we all take for granted,” said Ashley Gorski, Blarney Bash coordinator and member of Team Wendy. “Together, there is always hope for a cure.”

“WE ARE PASSIONATE IN OUR cOMMITMENT

TO PEOPLE AffEcTEd By MS. WE STRIVE TO

IMPROVE QUALITy Of LIfE WhILE SEARchING

fOR ThE cURE.”

4 National Multiple Sclerosis Society-Wisconsin chapter

Blarney Bash organizers continued their commitment to the MS Movement in 2012 by raising $25,000 through the 10th anniversary event.

Commitment

The Machi family at the 2012 Bike MS: TOYOTA Best Dam Bike Ride.

MS Research In 2012, experts described MS-related research as “breathtaking,” “exploding” and “the most dramatic ... in all of neurology, and perhaps all of medicine, for the last 15 years.” More than 325 projects were funded through donations to the National MS Society, including eight in Wisconsin. In July, $18.4 million was committed to support 52 new projects and fellowships, including a nearly half-million dollar grant to Bonnie Dittel, Ph.D., a senior investigator at BloodCenter of Wisconsin, Blood Research Institute of Milwaukee who focuses on immune system regulation as it relates to MS.

Dr. Dittel is studying the effects of a molecule that signals the immune system in an animal disease that is similar to MS. Previous work showed that mice with low levels of the molecule had a more severe form of the disease than mice with normal levels. With the new grant, Dr. Dittel is investigating the role the molecule plays in suppressing the cell activity that damages myelin. That research will lead to a better understanding of how immune system activity in the brain is controlled, and could provide clues for new ways to treat MS.

“ WE ARE LEAdERS IN ThE VISION Of A WORLd fREE

Of MS. ThROUGh cREATIVITy ANd hARd WORk,

WE AccELERATE ThE PAcE Of ScIENTIfIc dIScOVERy,

PROMOTE QUALITy hEALTh cARE, STIMULATE

cOMMUNITy RESOURcES ANd SERVIcES, AdVOcATE

fOR fAVORABLE GOVERNMENT POLIcIES, ANd ARE

ThE WORLd’S BEST SOURcE Of INfORMATION

ABOUT MULTIPLE ScLEROSIS.”


Wisconsin researcher Bonnie Dittel, Ph.D., was among those to receive National MS Society funding for a research project in 2012.

Leadership

MS Snowmobile Tour participants are leaders in raising funds for MS-related research, generating nearly $283,000 at the 2012 Tour.


Scholarships The compounding cost of medical care and lost wages can leave little room to afford college tuition for families touched by MS. The National MS Society’s scholarship program was created to offset those expenses, awarding $44,000 to 27 Wisconsin students in 2012 alone.

The Ladish Company Foundation, the charitable arm of one of Milwaukee’s oldest and most well-respected industrial manufacturers, went above and beyond its 20-year, $200,000-plus giving history with the Society by committing in 2012 to fund four renewable four-year scholarships, each valued at $5,000 annually. Brianna Laack was the first Wisconsin scholar to receive The Ladish Company Foundation MS Scholarship and is using it to help pay for her undergraduate degree at UW-La Crosse. A different student will be selected by the Scholarship Committee each year to receive a four-year scholarship.

“Funding from donors like the Ladish Company Foundation fuels our MS Scholarship Program,“ commented Jane Jacobson, member of both the Wisconsin Chapter and National MS Society Scholarship Committees. “We are so grateful for all the continued generosity that supports it and recognizes the Chapter’s ability to be a good steward of the resources entrusted to it.”

“ WE ARE hONEST ANd STRAIGhTfORWARd IN

ALL ThAT WE dO. WE TREAT EVERyONE WITh

dIGNITy ANd RESPEcT. WE AcT RESPONSIBLy

WITh RESOURcES ENTRUSTEd TO US. WE ARE

AccOUNTABLE ANd AcT IN AccORdANcE

WITh ThESE VALUES.”

Integrity

Brianna Laack and her mom, Lynne. Laack was the first Wisconsin scholar to receive a new renewable scholarship provided by The Ladish Company Foundation.

Ten of the 27 scholarship recipients in 2012 met with Chapter donors and suporters at the On the Move Milwaukee luncheon.


Tim Pagel, center, surrounded by his wife, parents and in-laws at the fifth annual Challenge Walk MS.

Achieving Goals Together Challenge Walk MS is about setting high expectations and achieving them, and the fifth annual event in 2012 was no exception. It drew more than 220 participants from 16 states who together exceeded the $385,000 fundraising goal by an additional $55,000.

Funds each year come both from walkers and Super Crew members, volunteers who raise the $1,500-per-person minimum and focus on the comfort and care of the walkers. The Sole Sisters team is a perfect example of that. Each year some members walk while others host a rest stop with a unique theme. They do so in honor of Tim Pagel who, since being diagnosed with MS in 2000, has given up a promising career in professional golf management along with many other activities he once enjoyed. By being part of Challenge Walk MS, he and his team are among others who have high expectations about the future of MS.

Said Tim’s wife, Liza: “The money we raise will be used to continue current medical research and will help in the development of new medications and treatments.”

“ WE SET hIGh STANdARdS Of PERfORMANcE

ANd SERVIcE dELIVERy, ANd WORk TOWARd

ExcELLENcE IN EVERyThING WE dO.”

Excellence

Cheri Higgins and Laurie Halbach were among the more than 220 Challenge Walk MS participants who helped exceed the event’s

fundraising goal in 2012. In total, nearly $440,000 was raised.

Supporting Each Other One of the best examples of those who help the National MS Society address the challenges of living with multiple sclerosis are self-help group leaders, trained facilitators who believe positive personal change can happen through individual effort with the support of others. There are more than 40 groups in Wisconsin, some with a specific focus (e.g. mothers who have MS), some that actively work to reach the newly diagnosed, and some that make a point to raise awareness and funds through Chapter events.

The MASH (Madison Area Self-Help) MS Group, for instance, hosts a variety of speakers at its monthly meetings. Its leaders and members also are a mainstay at the Chapter’s annual Bike MS: TOYOTA Best Dam Bike Ride, where they spend the afternoon signing riders’ bibs after they cross the finish line in Madison. The tradition is a highlight of the weekend for many riders as a one-on-one reminder of what they raised money and biked hundreds of miles for.

“ WE AdVANcE ThE INTERESTS Of PEOPLE AffEcTEd

By MULTIPLE ScLEROSIS ThROUGh INdIVIdUAL

ANd TEAM AchIEVEMENTS. WE REcOGNIzE OUR

VOLUNTEERS ANd STAff AS OUR MOST VALUEd

RESOURcES. WE ENcOURAGE cOLLABORATION

AcROSS ORGANIzATIONAL BOUNdARIES.”


Teamwork

Madison Area Self-Help (MASH) MS Group members have a tradition of signing rider bibs at the Bike MS: Best Dam Bike Ride finish line each year.

Family, friends and co-workers show their support of loved ones affected by MS by participating in Wisconsin Chapter events as teams.


Advances in Research in 2012 n The approval of a second oral therapy for relapsing forms of MS

n The launch of the International Progressive MS Collaborative, the largest effort to date to speed

research to stop progressive forms of MS

n The discovery of what could be a target of the immune attack in people with MS

n The completion of the first human trial of an experimental therapy targeting myelin repair

n Progress in restoring functions using innovative techniques

n Advances in uncovering triggering factors, bringing us closer to finding ways to prevent the disease

The MS Research NOW speaker series reached more than 350 individuals affected by MS in Wisconsin. Events were held in Wausau, Janesville,

Milwaukee, Green Bay and Madison and featured Colleen Hayes, Ph.D.,

Randall Schapiro, M.D. and Aaron Field, M.D., Ph.D.

Two new self-help groups were added in Wisconsin, increasing the total to 40. A one-day conference was held at the Wisconsin Chapter headquarters

to help facilitators plan for their group meetings for the following year.

“First touch” connections were made with more than 220 individuals who were newly diagnosed

with MS or newly disclosed.

Chapter representatives made more than 70 visits to MS clinics throughout the

year to provide information and answer questions for those diagnosed with MS.

MS College Scholarships totaling $44,000 were awarded to 27 Wisconsin students, including one diagnosed with multiple sclerosis and another who was

recognized nationally as a Top Scholar.

More than $87,000 was provided in financial assistance to 144 individuals

to help them afford wheel chairs or wheel chair accessories, in-home therapy, respite

care, the installation of modifications to make homes and automobiles accessible,

and more.

Chapter Highlights from 2012

MS Camp Scholarships were provided to 15 children from families affected by MS, allowing

them to attend the accredited Wisconsin summer camp of their choice for up to one week.

Monthly hour-long teleconferences were held on topics including spasticity,

bowel and bladder issues, and eating healthy and maximizing physical therapy

specific to MS. The educational sessions were provided for free and available for

people to listen to from home.

The Wisconsin Chapter joined with other regional chapters to establish the Midwest Lending Library, a way of providing free access to accurate, current

and comprehensive information to people with MS, those

who care for them and health professionals. The library

offers books, DVDs and CDs for free on a variety of MS-

related topics such as symptoms, management, emotional

health, exercise and family support.

More than 475 people touched by MS heard from keynote speakers

Dr. Loren Rolak, Amy Rowell and Kelly Malucha at the MS Summit in the Wisconsin Dells.


The fifth annual Challenge Walk MS was a record-setting success, drawing more than 220 participants and raising

nearly $440,000, well above the $385,000 goal.


On the Move Luncheons gave those who have MS and their family members,

friends and colleagues the opportunity to hear from Wisconsin’s own Dr. John

Fleming, whose probiotic worm egg study is making headlines around the world

for its positive initial findings.

The Chapter worked with Dr. Alexander Ng in holding a free half-day dance lesson for those with MS. It was designed

to promote the benefits of dance-related exercise as related to

stability, balance and mobility for those with MS. Some of those

who attended hadn’t danced in years.

The free MS Connection magazine included features on financial planning

specific to those with MS, adaptive hunting, local research studies and care

facilities, and legal insight into Social Security Disability Insurance and was

mailed to more than 30,000 households each quarter.

More than 1,500 letters and emails reached Wisconsin state representatives and senators in Madison on World MS Day, thanking

them for their support of programs that help those affected by MS and

urging them to do so in the future.

$4.8 million plus was generated through

the generosity and kindness of Wisconsin

donors, event participants, corporate partners,

foundations and volunteers in 2012 to create

a world free of MS.

Do It Yourself Fundraisers throughout

Wisconsin produced and coordinated more

than 160 community events and generated

more than $225,000 for the mission.

Several families remembered the Chapter in

their wills, contributing more than $50,000

in Legacy gifts to the MS Movement.

Nearly $51,500 was given to the Chapter in

memory of friends and loved ones.

Also of Note ...


PATRON $50,000 –$249,999Community Health Charities of WI Ken and Karen Minor Open Pantry Food Marts of Wisconsin – Robert BuhlerRick D. RomeneskoChuck and Anne ScherwinskiRichard and Susan Wilkey

ChAMPION $10,000 –$49,999Anonymous Apple Holler Charity FundraisingJohn Earl BaumgartDan and Kate BertramBriggs & Stratton CorporationDennis Christiansen and Kathleen BurchbyJeremy and Heidi CrullIan and Sally DuncanMichael and Jenny Egan Robert and Susan Engel Epic Systems CorporationForest County Potawatomi CommunitySheri GavinGreat Rivers United Way IncPatrick and Lisa HaakThe Hall Family

Ben and Tanya RomeneskoSam’s ClubSCA Tissue North America LLCAndy and Lindsey ScherwinskiSteve and Jane SchmiedingSchreiber Foods IncPaul D. StoltmanOlive I. ToussaintLenore VanSanten – In Honor of Nancy Bryce

FRIEND $5,000 –$9,999 Ace Precision Machining CorpJeffrey S. Alley – In Honor of Aunt DebbieAmerican Family InsuranceAurora Health CareAuto Paint & SupplyBaird Foundation IncKen and Sharon BareBecker Law Office SCBennett and Jeremy BersonJoseph and Nancy BoppreCharles R. BrooksC R Canvas Specialties

Hardee’s – Eau ClaireThomas and Patricia HellerMartin and June HillertHillert MS FundJerrad and Devlynn IhlenfeldDouglas and Jane Jacobson Evan and Linda JaegerJamie J. JalovecKevin and Marianne JorgensenKohl’sDennis and Sandra Kuester The Kumlien FamilyLadish Company Foundation – Wayne LarsenGreg and Barbara LenzM & I FoundationAnthony and Wendy MachiMae E. Demmer Charitable TrustThe Magnus FamilyMarcus Corporation Foundation IncJoseph W. MetzEd and Celeste MichalskiMilton Family Recreation IncMS Golf Scramble – Tim Pagel BenefitPat Haak Charity Golf OutingConnie J. PlierRabbits Unlimited Ltd. Rabbit HuntDavid and Jamie Rodgers

2012 Donors and FundraisersThANk yOU


Terry L. CampbellDamn Yankees Wateringhole LLCDavid V Uihlein Foundation The deJong FamilyRandy and Judith EddyEngel Tool and Forge Co IncDan and Bonnie ErschenKatie FitzmierThe Fraboni FamilyJay and Janet FulkersonThe Gamma FamilyThe Golden FamilyHeartland Produce CoHM2 IncThe Hogan FamilyPam HolzhaeuserMilton and Sarah HwangMark and Sara JappinenJere and Peggy JohnsonMellisa L. JohnsonColleen G. KaltPam KrigerJay Laurie and Jeane KroppJim and Susan KruegerHarry and Kay LumLux FoundationAnthony Q. MaassThe Mainz FamilyJim and Kelly MaluchaJeffrey R. MartocciRalph and Donna MayerWendy M. McCarthyFran McLaughlinRoss and Vicki McVeyZachariah MielkeThe Milbrath FamilyJohn and Janet MillerMichael MillerMichael and Amy MilzThe Muszynski FamilyNATO of WI & Upper MichiganNeighborhood Pub IncNicole A. NiebuhrThe Noltner FamilyMichael Olah and Sara Motisi Olah Bruce and Barbara Olson

Mary L. BluemnerBMO Harris BankMichael and Carie BoldtThe Brady FamilyDavid and Lisa BrennanJack and Tara BreunigMatthew P. BrownDebora M. BrownMichael and Nancy BurkardTrevver BussMichelle ButtchenShane ButtchenCaleb and Lori CallahanBobbi L. CarrelRajiv CastellinoPatrick and Bess ClemensCordon Family FoundationThe Croal Family – In Honor of Dorothy Berghaus CroalMichael and Eileen CroalCroal OpenWendy J. DallmanDean Health Systems IncGarry H. DeckerMaria DeCremerDeForest Towne Center AssocAndrea R. DekkerPaul and Roxanne DenamurLori T. DeNobleHarold and Elizabeth DettingerKevin and Betsy Devine

James D. OrourkeStephen and Lori PagelowPuelicher Foundation IncDavid and Patricia RaysichRBC Wealth ManagementDavid and Kaia ReichenbacherJohn E. ReyzerRobert W. Baird & Co. Inc.Jerry and Barbara RyanJames and Patricia SauserMark and Kathleen SchauderRichard Schauss and Anne BrouwerBritney A. ScherwinskiRobert and Mary SchmidtLuann SchreiberMark and Kari SchuhBrenda S. SellenDennis and Roberta TeuscherMichael and Danyel TorgersonTom and Judie TrepczykBill M. TwiegUW HealthThomas and Stacey VanRensVonnie J. VoightWalk With StrengthLiz WiestJames and Elizabeth WigdaleThe Wittig Family

LEADER $2,500 –$4,999 Scotti AdrianGregory and Angela AldousNancy C. AliotaDavid and Ute Anderson – In Honor of Cheryl RomenskoDavid Anderson and Nancy GilliganAssociation of Wisconsin Snowmobile Clubs IncRita R. BacherMark and Lisa BarbianKelli BarsnessJoseph and Patricia BeineThe Berg FamilyMichael Betlach and Paulanne ChelfThe Blanke and Perna FamilyThe Bloomenkranz Family


John and Polly DickmannDiversified Insurance Solutions, IncJohn M. DownsDonna M. DraegerBill and Janet EllisJames A. EngelThe Erdmann Family David and Lisa FayFirst Business BankThe Fistler FamilyRichard A. FrankenThe Freeman FamilyGardner FoundationAngela GeninMichael GilbertsonJeffrey N. Gingold The Govek FamilyRick GovekPenny GraffGrafton CoupleKaty E. GrapengieserGreat Wolf Resorts IncJames M. GreenGreen Bay Packers FoundationTom and Karen GriffithEric GrimstadLarry and Diane Hackbarth – In Honor of Kate Hackbarth MalmonThe Hagen FamilyThe Halverson FamilyJill HassenfeltThe Helm FamilyPhil HinmanJoel HoagThe Jerome and Dorothy Holz Family FoundationThe Hudson-Mairet FamilyBetsy M. HuffordRick F. HuhnJohn HutmacherInstitute of Supply Management Milwaukee IncJack DeLoss Taylor Charitable TrustMichael P. JohnsonSusan R. JohnsonErick R. Jones

Joe D. MeyerAmy A. MillerEileen A. Miller James P. MillerJay M. MinorikKari and Ashlee MoeThe Moehn FamilyKimberly A. MooreMSBC LLCMSRUNTHEUS IncNational A & W Franchisees AssociationJeremy and Heather Natzke Autumn N. NeugentNew Moon Ski & Bike ShopTom and Erin OetjenMadyn and Erika OLearyNancy OlearyGene OligJeffrey Olsen and Molly Walsh Tina L. OpeltThe Osiecki FamilyPaul and Patricia PachniakDon and Karen Pagel

Jill E. JonesRobert and Kelly JordanJesse B. JuedesJames and Judith Kaestner April A. KamnetzThe Kamnetz FamilyKathy’s Kause – In Memory of Kathy MahieuFrederick and Karen KelroyKelvin and Laura KimballSam and Bonnie KlikaRobert M. KlimoskiJoseph W. KmochJeanette Knipfer Robert and Debbie KnudsonThe Koffman FamilyTod M. KolinskiLori Kolosowsky and Sally EubanksLindsey M. KrauseKeith KunugiThe Kuzia FamilyJohn S. LambieBill and Karen LarsonGary Lawrence and Elizabeth PageLeah’s LadiesMeghan E. LemkeNancy LiverseedJames and Michelle LockDavid and Donna LohmanMichael Lutze M3 Insurance Solutions for BusinessThe Mackesey FamilyJulie A. MaddenMadison Area Antique Classic Boat SocietyMadison Gas & Electric Foundation IncPaul and Karen MatteoniThe Maynard FamilyMayo Clinic Health System – Franciscan HealthcareAndrew M. McCormickDaniel and Patricia McKeithan Marsha McKinnonThe McMahon FamilyFaith C. Mentink


Tim and Liza PagelAndrea R. PalmisanoJoy E. PennellPentair Residential Filtration LLCCorey M. PetersonThe Pielage FamilyKing and Martha Pierce – In Memory of NicoleJoe PitterleJanice J. PluerKathleen Poblocki Power Test IncEdward and Keri PriceRaymond ProeberLinda PucelBruce H. PyfferoenNicole ReikowskiMichelle ReinenStacey RemingtonRexnord FoundationMarian P. RezelRick’s Lawn & Garden LLCEric and Breanna RiesJulene M. RohrerJames and Terri Rose Melvyn and Lori RousseauRobert and Karen RozinskiSafway ServicesCurtis and Jen SauserKim K. Schaefer

Windhover FoundationGreg YoungBill and Alyson ZierdtJeremy and Casey Zurek

MEMBER $1,000 –$2,499 Harold W. AalandAbbot Pennings HS ReunionDennis J. Abere DDSRick and Stephanie AdamichThe Allard FamilyDavid B. AllenThe Anderson FamilyAnitta L. AndersonDeborah A. AndrewsDiane Marie AndersonJohn M. AndersonJackie Diane AndersonLaura AndersonTerry and Betty AndersonMarc and Deborah AndracaAnne AngeliAnonymousJoanne AntonopoulosDavid and Beth AnziaBenjamin A. ArciszewskiJohn A. ArenaArrowhead High School – Hoops for Hope

Dave and Karla SchmidtTed and Molly SchmidtDebbie SeilerKelly J. SiebersDale and Nina SlowikAlison R. Smith – In Honor of Angie Hollister, Kathy Ferguson, Dennis Smith and Pam HolzheauserRobert and Mary Sowinski The Steinert FamilyLyn SteinmetzSteren Management Co Inc – Jeffrey Steren The Steven FamilyWilva SuchanekRon and Mindy SweeneyHubert and Jacqueline SydowThe Diane Thompson FamilyThe Jay Thompson FamilyThe Thomsen FamilyThrivent Financial for Lutherans – AppletonTony Machi Fruits & Vegetables IncRobyn A. Turtenwald W/S Machine & Tool IncKen and Katie WaddellMurray C. WaltonKathleen A. WeinkaufBeverly A. WelchMandrow and Gretchen Wenzel

April A. ArvanTraci AumuellerB7 PharmacyThomas J. BaasThe Backhaus FamilyDavid A. BagleyLeroy E. BakerSteve and Laci BankerDavid and Sharon BargerDavid and Reid BarnesLouise M. BarreraBarbara R. Barrow Robert J. BartelsKenneth and Gregory BarthRichard BatchelderGreg and MaryBeth BauerRichard and Renee BauerMike BaumgartJames and Emily BeamanDaniel and Cindy BeckSusan M. BeckJacqlynn S. BehnkeJon BehrensThe Below FamilyBemis Company FoundationTony and Suzanne BenevengaLawrence and Kathy BennettJonathan J. BergKenneth H. BergmanErin BergwallCraig and Debbie BernardeRachel Moss BeroJohn W. BessentGeorge M. BeyerJohn and Barbara BiglerThe Bingen FamilyMatthew J. Bingham Merrilee BlackmerCody and Rebecca BlauertDennis and Judy BlazekSonya BleierMelissa M. Blettner William and Laurel BlockBloodCenter of WisconsinSol Z. BloomenkranzBJ and Annie Bockhop

Jeff and Nikki BuskeJames S. BussePatty ButenhoffGerardo and Mark CaballeroNick F. CableLewis and Susan CadkinDavid Calhoon Nancy J. CampbellWilliam and Deborah CampbellCapps IncDan and Allison CardonaGordy and Nancy CarlsonMary C. CarrauxLaverne C. CasellaCatalano Produce, Co.Kelly J. CechVern and Nancy ChandlerScott S. ChapinThe Chavez FamilyHillary ChesterCarol M. ChinnBrent and Stephanie ChristensonKaren ChristensonRachel ChristensonRichard ChristensonNorman and Carol Christman Clack CorporationAdam and Alicia ClarkThe Clark FamilyDarryl and Eileen ClementsDonn and Ann ClermontGlenn and Peter CoenenCoffee PotWilliam and Faye CoffmanJoseph CohenColumbia St. Mary’sCommunity First Credit UnionConcours MotorsJennifer Bryce ConigliaroAnn J. ConroyThe Contreras – Tadych FamilyMichael R. Corbett – In Honor of Donna ArciszewskiWendy CoronaTeresa CoronadoTarin L Costello

Nicholas BodwinThe Boldt FamilyRichard A. BondTina M. BonikowskeJohn and Jacqueline BorjaNicole Marie BorleyJohn and Valerie Bostrom Boucher Group IncAmber L. BouchezPatrick and Gail BoweThe Breiling FamilyErica J. BreitrickDeanna M. BriesJames BrindleyBroadlands Golf ClubAnthony M. BrodzellerJim J. BroennimannTheresa Brosnan SchulerScott BrownKim BrownBrande A. BrowneTom and Laurie BuchbergerThe Bucheger FamilyJason J. BuchholzSteven M. BuckauJenna Lee BuengerPeter and Mary BuerosseScott and Julie Burns


The Courtney FamilyCroal & Associates Inc – In Honor of Dorothy Berghaus CroalJohn and Kimberly CrosbyKlaus and Lori CrossThe Cummings FamilyApril CurleyWendy J. CzajaWayne F. CzypinskiThe Daines FamilyJack and Lois DallmanDanny Haskell’s Pub & GrillData Dimensions Lee and Beth DavisNancy L. DebbinkMitchell and Susan DegenhardtCarlos DelgadoMatthew and Nicole DenisTrudy R. DeRemerDesigns By CarolJason and Daniela DidierDigicorpSteven A. DingesCorey Dintelman and Pamela DvorakDiversified Management IncLisa A. Van DonselThe Dooley FamilyCharles and Joan Dorgan Kathleen Doroteo-TadychThe David Drozdowicz Family The Pete Drozdowicz FamilyDuck Creek CampgroundNorman and Cathy DuesterhoeftMarie Dummer, Team MaybelleDynamic Stampings IncThe Ebben FamilyPatricia Ebli The Ehlenfeldt FamilyTerri L. EllingerEllsworth CorporationEmployee Benefits CorporationThe Engebos FamilyGeoffrey M. EngelPhyl M. Erickson – In Memory of Kathy MahieuJoe and Justin Erschen

Keith and Michelle ErvinLloyd EstkowskiEvason Investments LLC Pam EvasonJoseph W. FangmannKeran FarrellLisa M. FarrellGordon and Judith FaulknerMark and Catherine FehrenbachJohn and Jaydee FellenzThe Fenrick FamilyThe Ferg Family – In Memory of Tom FergFestival FoodsRoy N. Fine Matthew and Andrea FingerFirst Weber Group FoundationBruce FischerJordan FisherJohn Fitzgerald and Debra Anklam Shirli A. FlackMichael J. FlemingMark and Lynette FochsDebra M. ForbesStephen and Terri FormellaDavid ForrestFox Communities Credit UnionPatrick and Linda Foy John W. GraffBarbara H. FranckJill M. FranczekEllen FravelTerrence and Christina FrettDeborah A. FreyKristen FriedrichsDave and Karen Frittitta – In Honor of Mary MadiganJan L. FroelichRussell and Nicole FryeBrian and Kate FuchsJohn E. Gahan IIIAaron GallusBilly A. GammaJoshua and Julie GanshertLee and Sharon GarbePerrie Garland and Michelle Keith


Arnold L. GatrelThomas and Elaine GehdeThe Gehrke FamilyGene and Ruth Posner Foundation IncGenesis Machining IncGeorge Kress FoundationDonald E. GillBradley and Sheila GillamThe Giunta FamilyTia and Autumn GodfreyAnthonie (TJ) GoedheerDavid GoehlenPete GoepfertRenee M. GoodellKelly GoodmanPeter GoodmanGordon H. and Judith B. Moore Family TrustKurt and Kandie GorskiDennis and Karen Grace Sheryl M. GraceEvelyn GraffEllen GrangerThe Graves FamilySharon GravesJerry GrazianoGreater Milwaukee Foundation – In Memory of Michael FratantunoGreater Milwaukee Foundation – David C Scott Foundation FundSteven and Jennifer GriesbachDaniel R. GriffinSteven and Heidi GrinkerThe Griswold Family

Jake J. GrumbeckThe Gruner FamilyThe Guendert FamilySarah HaaseLelia HaegerThe Haessly FamilyLyle HafermanThe Haggerty FamilyThe Haigh FamilyAshley HakesBrian and Laurie HalbachLindsay M. HaleDan and Linda HamptonDan and Kimberly HansenMatthew HansenHarbour Management LLCMichael and Christin HardingCrissie E. HarrisonKathy HartmanMeta HartmanHastings Air Energy Control IncMarilyn L. HauberMark P. HealMegan C. HeggStevie and Emily HeimDeanna and Molly HeimanSteve and Jennifer HeinzenMichael HenkePeter Herber Jr. Scott and Mary Ann HerlitzkeJulie HerrickTom Herricks

JF Ahern CoJockey InternationalAlyssa A. JohnsonBritton JohnsonDiane M. JohnsonDouglas M. JohnsonHeath JohnsonImogene P. JohnsonThe Johnson FamilyKathy JohnsonPalmer JohnsonRonald and Patricia JohnsonLynnsey E. JonesPaul and Tina Jones James and Cindy JorgensenGarth and Michelle JorgensenJohn and Mary KacmarynskiVickie KallienMatthew R. KaminskiDavid and Karen KaphingstThe Karls FamilyMaribeth KarpinskiBrian and Mary KarstenLindsey M. KedrowskiDavid and Jeanne KetterhagenThe Kilde FamilyMaureen E. KindJulie KingThe Kinishi FamilyRandall S. KirkJeff and Angela KjorlienJohn and Karen KlettiJo Anne M. Kline – In Memory of Joey KlineDarrell G. KluckDolores KnierKnights of Columbus Council 47Scott Knoblock and Leyla BronsonMelanie KnoepkeDaniel KnoppDavid Knuth Jr.Linda Knutson – In Memory of My Dad John PetersenThe Kober FamilyRonald T. KoehlerJason and Pat Koenig

Howard and Kerri HerrildStephen F. HesselBenjamin J. HesselinkCheri L. HigginsDoug and Carol HigginsJack and JoAnne HillDaniel and Ruth HillerErin M. HilsenhoffChris N. Hinrichs Sherry L. HochThomas and Karol HoerthErik HokansonThe Holen FamilyMeghan and Alyssa HollyRichard A. HollyHoward-Suamico School DistrictNikki HoweThe Hutchens FamilyHydrite Chemical CoIEWC Global Solutions CorpInternational Brotherhood of Electrical Workers Local Union 494The Iverson FamilyPenny P. JacobsenVern JacobsenDavid P. JaegerDavid JaehnDawn JanischJans JanitorialSarah O. JelencicThe Jesberger FamilyJewish Community Foundation


Thomas and Judy KoenigKohler Co.Mark and Patricia KollAllison J. KomaromyKevin and Rachel KoontzRupert G. KotzeNancy KowalskiShawn KozeyKevin and Brenda KozinskiChristine M. KramerJohn and Kim KramerJoshua and Jessica KramerMarcellus R. Kramer – In Memory of Arnie Kramer Ryan KramerChester L. Krause Donald and Jo Anne Krause Larry KrauseKrause Foundation Alycia L. KrebsChuck KreimendahlThe Kreitlow FamilyJohn and Amy KrenzRandall and Mandi KresselDesiree M. KreutzpaintnerNick J. KrollWayne and Sandee KrollKevin KronschnablDave and Suzanne KropilnickiThe Krueger FamilyJason D. KruegerKim KruegerBradley and Jill KudickTamara Kuhn MartinPatricia M. KurthKwik Trip IncThe LaCourse FamilyPhilip and Madeline LamphearJonathan P. LangMary G. LangenfeldJames and Vida Langenkamp – In Memory of Jeanne Gill Heideman Michael J. LankeDaniel and Jennifer LautenschlegerTony LawrenceCindy LeBlanc

Nancy M. McVaryRichard O. MedlandRhody and Carolyn Megal Christine L. MeinholzMenasha Corporation FoundationMercy Health SystemJudee L. MeyerMary Jo MeyerMGIC Investment CorporationMichael’s Cycles Inc.Karen M. MichelRick and Bonnie MickelsonRick (Harold) and Carol MilesDonald and Carol MillerDuane and Deborah MillerLeigh A. MillsRobert and Gail Milne

MMI Legacy Group, IncThe Monahan FamilyTim and Amy MoschkauPaula S. MosengThe Mosz FamilyHeidi MotiffLouis and Ashley MuenchJames and Diane MullenSean and DeeDee MullenRandy MurdockJack G. MurrayKathleen NalbertThomas A. NeillAlan and Nicki Neipert

David B. LeefMichelle LeHouillierRebecca LeMireKristina M. L’EmpereurSarah J. LerandDalton and Susan LerdahlDonn and Debbie LeschAllen L. LeverettHolly J. LiddicoatTina M. Liebetrau – In Honor of Kathy CernigliaJo Ann LiermanThe Lindgren FamilyChad R. LindmarkJoe W. LindmarkBob LubetskiAllen R. LuedtkeThe Lunder FamilyPaul and Kari LusicLeRoy and Anne LutzJacob and Kelly MaguigadGerald E. MainmanSusan MalekManowske Welding CorpThe Marek FamilyRonda L. MarishDonna M. MarkestadMarkos FoundationMarshfield ClinicMichael MartzAlok and Zia MaskaraJoy MatheinBarbara MatousekMayer Family FoundationThe McAllister FamilyMcCarthy Grittinger Weil Financial GroupEmilie McClureJames E. McCormack Arthur M. McFarlandThe McGrady FamilyDennis and Marilyn McGrewThe McKenna FamilyPatrick McMahonRosella and Kassie McManusJames R. McQueen


David Neira Jr.John P. NeisJason and Stefanie NeustedterNew Berlin Lions Club IncWayne NewbyLee and Renee NewmanBrad J. NiebuhrThe Nierzwicki FamilyJoseph A. NimmerJoan R. NinkJeff R. NoltnerJillian NondorfStephen J. NonnKevan and Barb NorinKelly NovotnySavannah G. NovyDennis NowikAron and Amy OechsnerHugh and Julie O’HalloranAndy C. OLearyCarol OlearyOlk Leasing LLCEric and Kathryn OlsenDennis C. OlsonKenneth and Norma OlsonO’Neil, Cannon, Hollman, DeJong & Laing SCMark and Tammy OrgelDean and Jean OsethMichael and Margaret OtemanEvan OttP&H Mining Equipment IncStephanie R. PaceyPam M. PageHelen P. PagenkopfLisa A. PaluchStanley and Elizabeth PanekThomas ParksDonna M. PatelskiKeith N. PaulDean PavlueBarbara J. PawelkiewiczPBBS Equipment CoKristine PearsonThe Peeters FamilyTricia Perkins

Mark A. ProvenzanoBarbara J. PrzybylskiDave and Carole PucelyRobert W. PurvisSteven L. PyfferoenDoug QuesnellR&R Insurance Services Inc.Jeff and Cari RaddemannAjita RajendraPete and Kristine RathkampJohn and Elizabeth RauJohn and Marie RawlinsTim and Suzanne ReederTony ReevesTim E. ReganREI Engineering IncLaurie L. ReinenThe Renier FamilyMark and Karen RhyanKurt RichThe Ricker FamilyFred and Toni RingelDavid J. RingoenSara RioldiMary M. Risberg – In Memory of Quinn RisbergThomas D. RistauRobinson Metal IncRock In Your World

The Petersen FamilyRandy and Mary PetersonThe Phelps FamilyScott PhillipsPam Phillipson – In Honor of Kristin and EricaDave and Joan PikeEric and Melissa PillsburyJason J. PinkowskiLinda J. Pinkowski – In Honor of RobertaKenny and Joanne PitterleMark and Brianna PitterleVictor E. PlantingaPlymouth High School Student Council – In Honor of Pam HolzhaeuserJeff PoiriorCaroline Pollock-ChoGregory F. PonziKeith A. PopkoEd and Carrie PouwelsScott Powell and Katrina CravyPPC FoundationPrairie Riders Snowmobile ClubMindy C. PrestonPrevea HealthChristopher T. PricePro Engineering and Manufacturing IncBill and Stacie Prochaska


Ryan and Elizabeth RoeckerThe Roewer FamilyChad and Anne RogalskiThomas and Margaret Rohan David RolstonBeth A. RomeneskoCheryl A. RomeneskoRookies Sports BarBill and Lisa RosenthalMarilyn RossThe Rourke FamilyTimothy and Kattie RouselatosJason and Amy RowellDan and Patricia RozinskiCarol RubinMandy RuffBrad and Tina RuhSusan C. RunningPaul A. RuteckiMartha J. Rutkofske Sherri A. Sable-MeyersMax Samson Rebecca S. SandlinCheryl SandnerAlex SansoneGreg and Joya Santarelli Erin SardesonThomas and Kay SchankeJoseph and Jodi Schiestle Dan and Linda Schilling

State Bar of WisconsinTodd N. SteffanusJoan M. SteinkeSteven and Autumn StelzlEd and Naomi StewartJeffery and Marie StolpaTim and Beth StoneJoyce D. StonerScott and Holly StonerStrand Associates IncSub-Zero Foundation IncSunburst Snow Tubing & RecThe Tarran FamilyKaren K. TaylorTDS Telecom Service CorpTDS Telecommunications Corp.Tello’s Grille & Cafe LLCTom and Linda Terwilliger The Animal House Pet Clinic, S.C.Scott ThesingTanya M. ThomasAntoinette K. ThompsonJody ThompsonThrivent Finanical for Lutherans – Fond du LacPatrick and Mary ToppSteve TorrettaTransPak CorporationDarrek TravisKristi L. TravisWendy TremaineGary TresselScott and Marina TreuerPaula R. TrieglaffTrust Point IncDenna TugelMary C. TurkeUnited Way of Greater MilwaukeeUniversity Hill Farms Assoc IncShannon M. UttechJeff and Lori VanDalenMary D. VanDeKampThomas J. VanderbiltScot A. VanhandelC.J. and Kathleen VanSistine – In Honor of Margaret Romero

Paul and Adam SchlechtRobert L. SchlossmannCraig and Bobbi SchmidtThe Schmidt FamilyMark and Susan SchmidtDaniel and Jessica SchneiderJay and Marieka SchneiderThe Schoenick FamilyThe Schonert FamilyMark J. SchrangRobert G. SchulerMargot SchumacherGregory and Jennifer Schwister Walter SeeJon C. SeebeckTom SermersheimServo Instrument CorporationJulia SetwynDorothy SevlieJohn C. ShawSheahan FarmsMichael Sigman and Kelly Krieg-Sigman Silverman Family FoundationSKF USA Inc.Cari J. SlaterPhillip J. SlingerMatt R. Vande SluntBrenda SmithRae SmithScott A. SmithScott and Brenda SmithThe Socha FamilyGwen M. SolbergThe Solomon FamilyConstance M. SondalleDan and Maggie SonnemannNancy SorensenRobert and Joan SorensenEric and Maryellen SoverBob C. SperberDuane and Jacqueline SrnkaDonald R. StacyDale and Karen StaegeThe Stanke FamilyBrian Stark



Liz VegaKevin and Kaitlyn VeliquetteChad and Shanna VenneEdward J. Vertovec Jr.Tom and Janet WaldhartCaitlyn WallaceCharles WallmanDavid and Nancy Walsh Robert M. WardE & D Water Works IncJack and John WatermanRyan and Abby WatsonWaukesha Co Comm Fdn Megal Fund – Rhody and Carlyn Megal John and Karen WawrzonkowskiBill D. WeberSusan WeberRichard WeeksBrian and Chris WegnerPaula WeikertDavid B. WeisbergDonald and Joanne WeinbergRichard and Barbara Weiss Steven and Melonie WeissGary WelchWade and Paula WestWilliam and Michelle West

The Wittmann FamilyChad M. WojtysiakSteven WolfRichard L. Wolman John M. WoodWilliam J. WoodThe Wrenn FamilyThe Wurster FamilyJeffery W. YabukiYoung Automotive IncHolly R. ZanderThe Zick FamilyAngela C. ZimmermannJohn and Donna ZornZorn Compressor & Equipment IncAimee E. ZuccoBarb and Lauren ZuccoThe Zumach FamilyDarren ZumachBarton and Colleen Zwitter

Ellen J. WestdorpKay WetzelWheelchair Recycling ProgramCaroline A. WheelerThe Wheeler FamilyLee and Diane WhitcraftRick D. WhiteKathryn E. WickerPhyllis WiederhoeftBrad and Elizabeth WiestRonald WilcoxKrista N. WildWilde Autos IncToni WilkePaul and Connie WillemsenThe Wilz FamilyWindsor Elementary SchoolThe Winkler FamilyJames A. Wisniewski Jr.Scott and Linda WitczakJason A. Witt

This progress report is for the 2012 financial year. Donations and fundraising contributions reflect the period October 1, 2011 through September 30, 2012. Every effort was made to ensure the accuracy of the listing. We apologize for any mistakes or omissions, and ask that you contact the Chapter so that we can correct our records for future publications.


2012 financialsNational Multiple Sclerosis Society Wisconsin Chapter, Inc.

Statement of Financial Position – Years Ended September 30, 2012 and 2011

ASSETS 2012 2011 Cash and investments $1,897,509 $2,016,579 Contributions receivable 239,207 136,914Endowment funds 161,701 158,816Other assets 98,265 67,734

Total assets $2,396,682 $2,380,043

LIABILITIES AND NET ASSETS 2012 2011Due to National MS Society $360,055 $357,150 Other liabilities 348,931 273,740

Total liabilities 708,986 630,890Net assets 1,687,696 1,749,153

Total liabilities and assets $2,396,682 $2,380,043

REVENUES 2012 2011 Support from the public: •Specialeventsrevenue $3,793,913 $3,788,415

(includes in-kind donations of $73,159 for 2012 and $87,238 for 2011)

•Specialeventexpense (443,780) (443,142)

Total received from special events 3,350,133 3,345,273 Annual campaigns 934,623 801,291 (includes in-kind contributions of $2,600 for 2012 and $2,504 for 2011)Legacies 50,313 41,390

Total support from public 4,335,069 4,187,954 Other revenue: •ReceivedatNational 76,947 93,866 •Interestincome 9,064 6,968 •Programfees 450 8,695 •Miscellaneousincome 16,406 3,404

Total other revenue 102,867 112,933

Total revenues $4,437,936 $4,300,887

Statement of Activities – Years Ended September 30, 2012 and 2011

EXPENSES 2012 2011Programservices: •Research $1,205,880 $1,066,908 •PublicSupportto 672,477 637,107

National Headquarters •Clientprograms 755,709 792,119 •Communityprograms 404,208 339,368 •Professionaleducation

and training 141,622 144,203 •Publiceducation 578,964 567,125

Total program services 3,758,860 3,546,830 Supporting services: •Fundraising 482,575 458,480 •Managementandgeneral 257,958 286,393

Total support services 740,533 744,873

Totalexpenses 4,499,393 4,291,703Change in net assets (61,457) 9,184 Net assets, beginning of year 1,749,153 1,739,969

Net assets, end of year $1,687,696 $1,749,153

n Research&ProgramServices 83.6%n Fundraising 10.7%n Management&General 5.7%

2012 2011n Research&ProgramServices 82.6%n Fundraising 10.7%n Management&General 6.7%

The Wisconsin Chapter meets all Better Business Bureau 20 Standards Charity Accountability.

Early and ongoing treatment with an FDA-approved therapy can make a difference for many people with multiple sclerosis. Learn about your options by talking to your health care professional and contacting the National MS Society at nationalMSsociety.org or 1-800-FIGHT-MS (344-4867).

Wisconsin’s Centers for Comprehensive MS Care The Wisconsin Chapter’s Affiliated Centers for Comprehensive MS Care meet specific criteria established by the National MS Society for treating those who have been diagnosed with multiple sclerosis, and have a demonstrated partnership and strong collaboration with the Society. The collaboration focuses on the patient experience and requires an extraordinary commitment to a range of services that address the broad spectrum of needs in maximizing health, independence and quality of life for those with MS. Centers for Comprehensive MS Care in Wisconsin are:

• Aurora Medical Group Neurology Clinic, Green Bay

• Froedtert & The Medical College of Wisconsin Multiple Sclerosis Clinic, Milwaukee

• Marshfield Clinic MS Center, Marshfield

• St. Luke’s Medical Center Regional Multiple Sclerosis Center, Milwaukee

• Waukesha Memorial Hospital ProHealth Care Neuroscience Center, Waukesha

• University of Wisconsin Hospital and Clinics Neurology/MS Clinic, Madison

Partners in MS carePartners in MS Care is another designation in recognition and support of quality MS care across many types of health disciplines. Consideration is given based on MS experience, demonstrated MS knowledge and involvement in the MS community and National MS Society activities. In 2012 two facilities in Wisconsin became the first in the state to receive this new designation: Dean Neurological Institute and Spine Center in Madison and Gundersen Lutheran Medical Center in La Crosse.

Clinical Advisory Committee The Wisconsin Chapter is grateful to the members of the 2012 Clinical Advisory Committee for their continued support in providing oversight, advice and guidance related to medical issues surrounding multiple sclerosis, including the latest information about advancements in treatment, research and care management.

• Loren A. Rolak, M.D., Chair Marshfield Clinic MS Center

• John O. Fleming, M.D. University of Wisconsin Hospital and Clinics Neurology/MS Clinic

• Bhupendra O. Khatri, M.D. St. Luke’s Medical Center Regional Multiple Sclerosis Center

• Eric F. Maas, M.D. Aurora Advanced Healthcare

• Stanya Smith, M.D. ProHealth Care Neuroscience Center Waukesha Memorial Hospital

• Merle Teetzen, M.D. Aurora Baycare Medical Center MS Clinic

• Douglas Woo, M.D. Froedtert & The Medical College of Wisconsin Multiple Sclerosis Clinic

1120JamesDr.Ste.A|Hartland,WI53029800-242-3358|262-369-4400

wisMS.org|[email protected]

2012 nmss-wi chapter progress report

Documents

ms research

nonprofit ms organization

world free of ms

past chair attorney

chair sonic foundry

challenges of living

support of volunteers

ken minor colleen