2011 alzheimer’s educational conference life after the …€¦ · thank you for joining us at...

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2011 Alzheimer’sEDUCATIONALConference

PALM BEACH COUNTY

CONVENTION CENTER

WEST PALM BEACH

FLORIDA

LIFE AFTER THE DIAGNOSISMAY 5 &62 011

PRESENTED BY:

ALZHEIMER’S COMMUNITY CARE

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Amy Dean, Co-Chair Palm Healthcare Foundation

Amy Dean is the Vice President of Strategic Programming & Policy at Palm Healthcare Foundation, where she is responsible for oversight and facilitation of the foundation’s grant making and nursing workforce initiatives. Ms. Dean serves on the board of the Palm Beach County Workforce

Alliance and the steering committee of the National Nurse Funders Collaborative. Ms. Dean holds a Master of Business Administration from the University of Chicago Graduate School of Business and a Bachelor of Health Services from Florida Atlantic University. “I’m pleased to be co-chairing this premier conference that brings Alzheimer’s disease and related disorders to the forefront and addresses the concerns of an ever-growing population,” commented Amy Dean.

Agenda Task Force Chair

Sherri Greenblatt

Exhibitor Task Force Co-Chairs

Kathy HubbardJeffrey Taleff

Committee

Trish ErnstFaith ManfraRob Sommer

Gayle StevensMarcia TeeleAllison Tomek

Dr. David Watson

THANK YOUCONFERENCE CO-CHAIRS

2011 ALZHEIMER’SEDUCATIONALConference WELCOME

Tenna Wiles, Co-Chair Palm Beach County Medical Society

Tenna Wiles has been the Executive Director for Palm Beach County Medical Society since 1998. Ms. Wiles is the current president of Palm Beach County Community Health Alliance and past president of the Florida Conference of Medical Society Executives. “Between the ground-breaking Alzheimer’s research being performed daily and the ongoing health care issues that affect us all, there is a relevance and importance to this conference as never before,” stated Ms. Wiles. “The Alzheimer’s Educational Conference is an opportunity to educate and address the needs of a diverse group comprised of family caregivers, health care professionals, legislators —virtually anyone who is concerned with Alzheimer’s disease and related disorders.”

Thank you for joining us at the 2011 Alzheimer’s Educational Conference!

We have themed this year’s event, “A Life After the Diagnosis,” and over the next two days, you will have the opportunity to hear many experts discuss the ways families may have a life after the diagnosis of Alzheimer’s disease or a dementia disorder.

Because of the growing incident rate of Alzheimer’s disease and the need for more education, we have increased the scope of our

educational platform. As you browse this year’s agenda, you will see sessions ranging across caregiver stress, research, clinical trials, vascular dementia, legal issues such as guardianship and durable power of attorney, behavioral management and the list goes on.

Our keynote speaker, Ms. Gail Sheehy, is the best-selling author of 16 books including “Passages” and her latest publication, “Passages in Caregiving.” I know you will truly enjoy listening and learning from her as she shares her inspiring story of her own 17-year journey as a caregiver for her husband. Ms. Sheehy will discuss how families across the globe are facing the same challenges we all are, and they are able to have a quality of life beyond the diagnosis, using creative strategies and a network of support. You will find her presentation dynamic and engaging, and I know

you will come away with a new outlook on the different phases of life and how we can enjoy them to the fullest.

Also on our roster of plenary speakers are Dr. Juergen Bludau, from Brigham and Women’s Hospital, Division of Aging. Dr. Bludau will explore strategies and tips for better communication between families living with Alzheimer’s disease and their physicians—something that is becoming more and more important each day. I am especially excited to introduce Laura Jones and her “Caregivers’ Tribute” to recognize and honor the strength and determination our caregivers share. And last but absolutely not least, Dr. Ron Davis of Scripps Research Institute, who will share the latest developments from his team.

I am grateful for the support of our Conference Co-Chairs, Ms. Amy Dean and Ms. Tenna Wiles. On behalf of our Board of Directors, I thank Amy and Tenna for their leadership, support and dedication to caregiver and professional education in our local communities. Please join me over the next two days as we learn and enrich our lives.

Mary M. Barnes, President and CEO

Tania RogersKeynote Luncheon EmceeWPTV NewsChannel 5Anchor/Reporter

Amy Dean Tenna Wiles

COMMITTEEEMCEE

Program Design/Layout by Lee Harmon Graphic Design772-220 -6826 • www.lhgdesign.com • [email protected]

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251 The Club, Palm Beach Florida Power & Light Company

Gail Sheehy

THANK YOUSPONSORS

GRAND BENEFACTOR

THE SYDELLE AND ARTHUR MEYER FOUNDATIONLuncheon

SYDNEY GOLDSTEIN DR. JUERGEN BLUDAU

Breakfast

Reception

Goodie Bag Name Badge

Premier Concurrent Session

Concurrent Session

Program Book Toolkit

Refreshment Respite Room

Physician’s Dinner

Media

Conference Kick-Off Host Community Partner

Viki Kind, M.A.

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THANK YOUEXHIBITORS

PREMIUMAlzheimer’s Association

AmeriGroup

Area Agency on Aging/ Your Aging Resource Center

Caregiver Services Inc.

Champion Home Health Care

Comfort Keepers®

LifeCare of Florida

Mangrove Bay

Senior Helpers

Seniors Helping Seniors® of Palm Beach County

The Karp Law Firm, P.A.

UNS (United Nursing Services)

211 Palm Beach/Treasure CoastAARPAbingdon at TraditionACCERAAdvent SquareAlpert Jewish Family & Children’s ServiceAlways Best Care Senior Services Inc., Treasure CoastAmedysisAmerican EldercareBarrington TerraceBrightStar CareCare Trak International, Inc.Department of Veterans Affair West Palm Beach VA Medical Center Evercare by United HealthcareExpicare Nursing Agency, Inc.Felinton Elder Law and Estate Planning CentersHeartland Healthcare of Boynton BeachHeritage ParkHorizon Bay Senior CommunitiesHospice By The Sea, Inc.Hospital Without WallsLake Forest Park

Levin Home CareMemory Disorder Center at North Broward Medical CenterMemory Disorder Center at St. Mary’s Medical CenterMorseLifeNew Day Adult Care CenterPalm Beach County Division of Senior ServicesPalm Beach County Library SystemPalm Beach Neurological CenterPalm Beach County Sheriff’s Office Crime Prevention UnitPremiere Research Institute at Palm Beach NeurologySeniorBridgeSunshine Senior PlacementTequesta TerraceThe Volen CenterUniversity of Miami, John P. Hussman Institute for Human Genomics, Univ. of Miami-Miller School of MedicineVi at Lakeside VillageVIP AmericaVIP Benefit Services of America

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DR. JUERGEN BLUDAU MAY 5Are You Hearing What Your Doctor is Saying?

Juergen H. A. Bludau, MD, was born in Germany and educated in England. He received his medical degree from the Royal College of Surgeons in Ireland and completed his postgraduate studies in the USA. He is a board-certified, Harvard fellowship-trained geriatrician, and currently the Clinical Chief and Director of the clinical geriatric services at the Brigham and Women’s Hospital, Division of Aging. Dr. Bludau is an Instructor in Medicine at Harvard Medical School, and a member of the Scientific Advisory Board of the Gerontological Economic Research Organization in Kreuzlingen, Switzerland. Dr. Bludau regularly speaks at local, national and international conferences. Dr. Bludau’s interests are the primary care of dementia patients, the development of improved out- and in-patient geriatric services, and the geriatric education of nurses. To that extent he has developed a curriculum for practicing nurses and has given several courses at Beijing Hospital No. 1 and Fudan University School of Nursing in Shanghai. Dr. Bludau resides in the Boston area with his wife and their three children.

LAURA JONES MAY 5A Caregiver’s Tribute

Laura Jones is a caregiver to her husband, Jay, who was diagnosed with Alzheimer’s disease several years ago at the age of 49. Laura, who works and is also a mother to their eight-year-old daughter, will relate how she and her family live and continue to adapt to this ever-changing disease. Her powerful message of love, commitment and resilience is sure to inspire all caregivers. Her family’s journey has been profiled on ABC World News Tonight and she and her husband, Jay, have been national advocates on behalf of people with younger-onset Alzheimer’s disease and related dementias.

DR. RON DAVIS MAY 6Scripps Research Institute, Florida’s Department of Neuroscience, Chairman

Ronald Davis is one of the nation’s leading experts on the molecular biology of learning and memory. He completed his doctorate in genetics at the University of California, Davis, in 1980 and was a postdoctoral fellow with Norman Davidson at the California Institute of Technology where he began to use molecular biological tools to approach the problem of learning and memory. He has supervised a laboratory for the last 30 years studying learning and memory at Michigan State University, Cold Spring Harbor Laboratory and the Baylor College of Medicine. His laboratory has also developed optical imaging procedures to visualize how memory is represented in the brain of the intact fly. He was the Vice Chair of Research in the Department of Psychiatry at Baylor College of Medicine and subsequently the Director for the Center for Memory and Learning at that institution. He has received numerous awards for his pioneering research. He is currently the Chair of Neuroscience at the newly founded campus of the Scripps Research Institute in Jupiter, Florida.

GAIL SHEEHYMAY 6

As the bestselling author of 16 books, including Passages, Gail Sheehy has rocked the culture and changed the way millions of women and men around the world look at the stages of their lives. In 2010 she took on the most challenging and personal issue in her latest book: Passages in Caregiving: Turning Chaos Into Confidence. She tells the inspiring story of her own journey of 17 years caring for her husband and fills the book with stories of families who we can all relate to, and their most creative strategies.

Bill Moyers wrote: “Trust me, there is no better guide to caregiving.”

“This is one of those rare books that can lighten even the heaviest of loads.”

– Rosalynn Carter

As a literary journalist, Ms. Sheehy was one of the original contributors to New York magazine. A contributing editor to Vanity Fair since 1984, she won the Washington Journalism Review Award for Best Magazine Writer in America for her in-depth character portraits of national and world leaders, including both Presidents Bush, Bill and Hillary Clinton, Newt Gingrich, Margaret Thatcher, and Mikhail Gorbachev. Ms. Sheehy is a seven-time recipient of the New York Newswomen’s Club Front Page Award for distinguished journalism.

One of the most popular speakers on the lecture circuit, Ms. Sheehy offers dynamic programs based on her groundbreaking investigations and observations of the lives of men and women within different phases of their lives and how they can enjoy them to the fullest.

2011 ALZHEIMER’SEDUCATIONAL PLENARY SESSIONSConference

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FLOOR PLAN

PALM BEACH COUNTY CONVENTION CENTER

LEVEL 1 (GROUND FLOOR)

LEVEL 2

Exhibit Hall

Hall A 330'x150' 49,500 29' 2" 2,961 3,371 2,750 – 280

Hall B 330'x151' 49,830 29' 2" 2,961 3,371 2,750 – 280

Hall AB Combined 330'x301' 99,330 29' 2" – 6,808 6,650 – 552

Meeting Rooms

1A 25'x39' 975 14' 43 85 60 36 –

1B 42'x23' 966 14' 48 90 50 36 –

1C 42'x23' 966 14' 48 90 50 36 –

1BC Combined 42'x47' 1,974 14' 100 208 120 60 –

1D 42'x30' 1,260 14' 67 127 60 44 –

1E 42'x28' 1,176 14' 67 127 60 44 –

1DE Combined 42'x58' 2,436 14' 116 224 120 68 –

1F 42'x40' 1,680 14' 95 175 70 52 –

1G 32'x19' 608 14' 28 56 30 28 –

1H 32'x20' 640 14' 28 56 30 28 –

1I 32'x19' 608 14' 28 56 30 28 –

1GH Combined 32'x39' 1,248 14' 68 108 50 44 –

1HI Combined 32'x39' 1,248 14' 68 108 50 44 –

1GHI Combined 32'x58' 1,856 14' 92 186 80 60 –

1J 32'x19' 608 14' 28 56 30 28 –

1K 32'x19' 608 14' 28 56 30 28 –

1JK Combined 32'x39' 1,248 14' 68 108 50 44 –

1L 52'x30' 1,560 14' 70 165 80 52 –

Dimensions SquareFootage Ceiling Height Class

Room Theater Banquet HollowSquare

10x10Exhibits



10x10Exhibits

Ballroom

Entire Ballroom 111'x198' 21,978 24' 6" 1,152 2,070 1,250 – 111

Grand Ballroom 111'x111' 12,321 24' 6" 560 1,152 640 172 65

Ballroom A 36'x72' 2,432 24' 6" 128 279 120 76 –

Ballroom B 38'x72' 2,736 24' 6" 128 279 120 76 –

Ballroom C 37'x72' 2,664 24' 6" 128 279 120 76 –

Ballroom AB 75'x72' 5,400 24' 6" 252 560 300 108 –

Ballroom BC 75'x72' 5,400 24' 6" 252 560 300 108 –

Ballroom ABC 111'x72' 7,992 24' 6" 384 736 400 140 –

ABC & Corridor 111'x87' 9,657 24' 6" – – – – –

G.Ballroom & Corr. 111'x125' 13,875 24' 6" – – – – –

Meeting Rooms

2A 43'x30' 1,290 14' 71 135 60 45 –

2B 43'x30' 1,290 14' 71 135 60 45 –

2C 43'x28' 1,204 14' 71 135 60 45 –

2AB Combined 43'x60' 2,580 14' 144 252 130 60 –

2BC Combined 43'x58' 2,494 14' 144 252 130 60 –

2ABC Combined 43'x87' 3,741 14' 210 414 190 92 –

2D 43'x30' 1,290 14' 71 135 60 45 –

2E 43'x30' 1,290 14' 71 135 60 45 –

2F 43'x28' 1,204 14' 71 135 60 45 –

2DE Combined 43'x60' 2,580 14' 144 252 130 60 –

2EF Combined 43'x58' 2,494 14' 144 252 130 60 –

2DEF Combined 43'x88' 3,784 14' 210 414 190 92 –

Exec. Boardroom 25'x43' 1,075 14' – – – – –



10x10Exhibits



10x10Exhibits

LEVEL 1 (GROUND FLOOR)

LEVEL 2

Exhibit Hall

Hall A 330'x150' 49,500 29' 2" 2,961 3,371 2,750 – 280

Hall B 330'x151' 49,830 29' 2" 2,961 3,371 2,750 – 280

Hall AB Combined 330'x301' 99,330 29' 2" – 6,808 6,650 – 552

Meeting Rooms

1A 25'x39' 975 14' 43 85 60 36 –

1B 42'x23' 966 14' 48 90 50 36 –

1C 42'x23' 966 14' 48 90 50 36 –

1BC Combined 42'x47' 1,974 14' 100 208 120 60 –

1D 42'x30' 1,260 14' 67 127 60 44 –

1E 42'x28' 1,176 14' 67 127 60 44 –

1DE Combined 42'x58' 2,436 14' 116 224 120 68 –

1F 42'x40' 1,680 14' 95 175 70 52 –

1G 32'x19' 608 14' 28 56 30 28 –

1H 32'x20' 640 14' 28 56 30 28 –

1I 32'x19' 608 14' 28 56 30 28 –

1GH Combined 32'x39' 1,248 14' 68 108 50 44 –

1HI Combined 32'x39' 1,248 14' 68 108 50 44 –

1GHI Combined 32'x58' 1,856 14' 92 186 80 60 –

1J 32'x19' 608 14' 28 56 30 28 –

1K 32'x19' 608 14' 28 56 30 28 –

1JK Combined 32'x39' 1,248 14' 68 108 50 44 –

1L 52'x30' 1,560 14' 70 165 80 52 –



10x10Exhibits



10x10Exhibits

Ballroom

Entire Ballroom 111'x198' 21,978 24' 6" 1,152 2,070 1,250 – 111

Grand Ballroom 111'x111' 12,321 24' 6" 560 1,152 640 172 65

Ballroom A 36'x72' 2,432 24' 6" 128 279 120 76 –

Ballroom B 38'x72' 2,736 24' 6" 128 279 120 76 –

Ballroom C 37'x72' 2,664 24' 6" 128 279 120 76 –

Ballroom AB 75'x72' 5,400 24' 6" 252 560 300 108 –

Ballroom BC 75'x72' 5,400 24' 6" 252 560 300 108 –

Ballroom ABC 111'x72' 7,992 24' 6" 384 736 400 140 –

ABC & Corridor 111'x87' 9,657 24' 6" – – – – –

G.Ballroom & Corr. 111'x125' 13,875 24' 6" – – – – –

Meeting Rooms

2A 43'x30' 1,290 14' 71 135 60 45 –

2B 43'x30' 1,290 14' 71 135 60 45 –

2C 43'x28' 1,204 14' 71 135 60 45 –

2AB Combined 43'x60' 2,580 14' 144 252 130 60 –

2BC Combined 43'x58' 2,494 14' 144 252 130 60 –

2ABC Combined 43'x87' 3,741 14' 210 414 190 92 –

2D 43'x30' 1,290 14' 71 135 60 45 –

2E 43'x30' 1,290 14' 71 135 60 45 –

2F 43'x28' 1,204 14' 71 135 60 45 –

2DE Combined 43'x60' 2,580 14' 144 252 130 60 –

2EF Combined 43'x58' 2,494 14' 144 252 130 60 –

2DEF Combined 43'x88' 3,784 14' 210 414 190 92 –

Exec. Boardroom 25'x43' 1,075 14' – – – – –



10x10Exhibits



10x10Exhibits

LEVEL 1 (GROUND FLOOR) LEVEL 2

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T H U R S D AY M AY 5, 2011 8:00 AM - 9:00 AM Registration | Breakfast | Exhibit Hall Opens | Patient Respite Room Opens

9:00 AM - 11:30 AM Opening Remarks | Morning Plenary Session (Dr. Juergen Bludau) | Breakout Sessions

11:30 AM - Noon Visit Your Exhibitors

Noon - 1:30 PM Lunch | Caregiver Tribute (Laura Jones)

1:45 PM - 4:30 PM Breakout Sessions

6:00 PM - 8:00 PM Author’s Reception (Tickets $50 per person)

F R I D AY M AY 6, 2011 8:00 AM - 9:00 AM Registration | Breakfast | Exhibit Hall Opens | Patient Respite Room Opens

9:00 AM - 11:30 AM Opening Remarks | Morning Plenary Session (Dr. Ron Davis) | Breakout Sessions

11:30 AM - Noon Visit Your Exhibitors

Noon - 1:30 PM Lunch Keynote Speaker (Gail Sheehy)

2011 ALZHEIMER’SEDUCATIONALConference SCHEDULE AT A GLANCE

2011 ALZHEIMER’SEDUCATIONAL DETAILED SCHEDULEConference

THURSDAY MAY 5, 201110:30 - 11:30 AM BREAKOUT SESSIONS

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ROOM 2A ARTHRITIS AND ALZHEIMER’S DISEASE: RECENT ADVANCES IN RESEARCH

Summary A presentation focusing on new research which suggests that there’s a silver lining to this inflammatory joint disease. Rheumatoid Arthritis (RA) patients appear to be about 8-fold less likely to develop Alzheimer’s disease (AD) than the general population. While it has been commonly assumed that RA patients’ usage of non-steroidal anti-inflammatory drugs (NSAIDs) helped prevent the onset and progression of AD, NSAID clinical trials have proven unsuccessful in AD patients. We sought instead to identify intrinsic factors within RA pathogenesis itself might underlie RA’s protective effect.

Presenter Timothy Boyd, Ph.D., Medical Sciences, is a Biological Scientist at University of South Florida’s Health Byrd Alzheimer’s Center. He is a researcher and the first author on this groundbreaking new study.

Audience Professionals and Experienced Caregivers

ROOM 2B EMPOWERED FOR DIFFICULT DECISIONS

Summary Are you struggling to make medical decisions, car key decisions, or end-of-life decisions? Attendees will learn the decision-making pathway, framework and tools to use when making decisions for those who can no longer speak for themselves. This is not a one-size-fits-all solution but can be adapted depending on the situation. Emphasis on respect and compassion as the core values will be discussed in the decision-making process.

Presenter Viki Kind, M.A. is a clinical bioethicist, medical educator and hospice volunteer. Her book, “The Caregiver’s Path to Compassionate Decision Making: Making Choices for Those Who Can’t,” guides families and healthcare professionals through the difficult process of making decisions for those who are losing or have lost the ability to think.

Audience All Caregivers

ROOM 2C ALZHEIMER’S 101

Summary New caregivers will receive a crash course in the causes of memory loss, signs and symptoms of Alzheimer’s disease, the various stages of advancing Alzheimer’s disease, and behavioral changes associated with each level. For those caregivers who have a recently diagnosed loved one, this session will provide vital information to know what to expect throughout the disease process.

Presenter David Watson, Psy.D. is a leading Certified Principal Investigator specializing in Alzheimer’s disease. He is a neuropsychologist who has conducted over 300 clinical research trials on Alzheimer’s disease over the past 15 years, testing new investigational compounds. His research has contributed significantly to the approval of four existing medications currently on the market for symptomatic treatment of Alzheimer’s disease.

Audience New Caregivers

ROOM 2D ADVANCES IN DEMENTIA CLINICAL TRIALS

Summary Learn about the safety of participating in clinical trials for new medications, the importance of volunteers in the clinical trial process, advances in treatment and the benefits of early treatment.

Presenter Carl Sadowsky, M.D. is Director of Research at Premiere Research Institute. Dr. Sadowsky is also Clinical Associate professor, Division of Neurology, at Nova Southeastern University in Fort Lauderdale, Florida. A Fellow of the American Academy of Neurology, Dr. Sadowsky is a board member of the Southeast Florida Alzheimer’s Association. Among his career distinctions, Dr. Sadowsky is listed in Best Doctors in America and Best Doctors in America, Southeast Region.

Audience Professionals



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ROOM 2E VETERANS’ COMMUNITY RESOURCES AND CAREGIVER SUPPORT

Summary An overview of non-institutional care programs available through the VA Medical Center. This presentation will include information on programs such as Home Respite Services, Adult Day Health Care, Home Health Aide, Medical Foster Home and the Community Living Center. Ms. Hoff will also discuss state eligibility criteria for these programs and how to access them.

Presenter Thompsi Hoff, L.C.S.W., Department of Veterans Affairs Medical Center, West Palm Beach, is a Licensed Clinical Social Worker at the Veterans Affairs Medical Center in West Palm Beach, where she has worked since 2001. While there, she spent four years in the Community Living Center, two years on the medical/surgical ward and two years with the Home Based Primary Care program, and as a liaison to Community Adult Day Health Care facilities.


ROOM 2F MEDICARE IS COVERING THIS, RIGHT?

Summary At one point or another, home health care becomes part of the world of caring for a loved one with Alzheimer’s. The presenter will discuss what home health care is, what the Medicare qualifications are for home health care, what services Medicare covers in the home and what the patient is entitled to. The presenter will also discuss what Medicare does not cover, what may be covered under long-term care insurance and how to work with your home health care company to obtain all benefits available.

Presenter John Dalton has worked in the home health care field since 1992 serving in various capacities from marketer to regional manager. He is currently a member of the Home Health Care Association of Florida, board member for Partnership for Aging, and a founder of the Partners for Better Care.


ROOM 1G TOP TEN LEGAL PEARLS AND GEMS FOR CAREGIVERS

Summary Attendees will hear a discussion on the “must-knows” for caregivers, including how to secure the best care for your loved one, strategies to put in place to protect your assets and pay for care, advocacy tips for assisted living facilities and nursing homes, and the ins and outs of guardianship.

Presenter G. Mark Shalloway, Esq. is among the first 135 certified Elder Law Attorneys in the nation certified by the National Elder Law Foundation, and is a member of the charter class of attorneys Board Certified in Elder Law by the Florida Bar. Mr. Shalloway has served as President and is a Fellow for the National Academy of Elder Law Attorneys (NAELA). He has testified before Congress on long-term care.


ROOM 1H HOW TO COMMUNICATE WITH YOUR LOVED ONE – IT’S DIFFERENT NOW

Summary Caregivers will receive practical tips on how to communicate with their loved ones who have a dementia disorder, as well as specific coping strategies to help promote a positive quality of life for all family members.

Presenter Melanie Donohue is a Licensed Clinical Social Worker who provides supportive counseling and advocacy services to Medicare clients and their loved ones in private homes and assisted living facilities. Melanie has worked as a Medicare psychotherapist with Theracounsel, Inc. in Broward and surrounding counties since 2006.

Audience All Audiences

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ROOM 1I EVERYTHING YOU EVER WANTED TO KNOW ABOUT MEDICARE, MEDICAID AND THE ELDER HELPLINE

Summary How to navigate Medicare, Medicaid and the solutions that the Elder Helpline can offer to seniors in our community. Attendees will increase their knowledge of benefits and resources that are available to help solve challenges that they are facing.

Presenters Kim Clawson is the Project Director of the Elder Helpline with Your Aging Resource Center/Area Agency on Aging in West Palm Beach. Kim has extensive experience as a Care Manager serving with American Eldercare and as a private care manager with CareSource. Mildred Talbert is the District Supervisor for the Department of Children and Families for Circuit 15, Palm Beach County.


1:45 - 3:00 PM

ROOM 2A CAREGIVER’S ROADMAP

Summary Laura Jones’s personal story of coping with the various aspects of younger-onset Alzheimer’s disease; how she and her family have adapted, learned and grown from the ever-changing challenges of the disease. A not-to-be-missed presentation for new caregivers.

Presenter Laura Suihkonen Jones is a caregiver to her husband, Jay, who was diagnosed in 2006 with younger-onset Alzheimer’s disease. She is also a mother to Natalie, their 8-year-old daughter, and works as a Training Consultant for Component Control LLC. Both Laura and Jay are active advocates for Alzheimer’s on both national and local levels.


ROOM 2B UNDERSTANDING AND MANAGING BEHAVIORAL CHANGES

Summary The goal of this presentation is to educate caregivers regarding behavioral changes that may occur in patients with dementia and/or Alzheimer’s disease and present treatment alternatives for management.

Presenter Erin Dorval, Pharm.D. is assistant professor of pharmacy practice at Palm Beach Atlantic University, Gregory School of Pharmacy. Dr. Dorval is a community pharmacist who works with Alzheimer’s patients and their families through a variety of pharmacy settings including independent pharmacies and nursing homes.


ROOM 2C THE LEGAL AUTHORITY OF A CAREGIVER

Summary Attendees will learn the rights and limitations of both caregivers and patients on the sliding spectrum of incapacity and dementia. The impact of legal documents, such as Durable Power of Attorney, Designation of Health Care Surrogate and Living Wills will be addressed, as well as the importance of a stand-alone HIPPA authority document. Participants will also learn about possible improper intrusion of estranged family members and professional caregivers.

Presenter Ellen S. Morris, Esq. is a partner in the law firm of Elder Law Associates PA. She was admitted to practice in Florida in 1990 and devotes all of her professional time to elder law. Ms. Morris is the Legislative Chair of the Elder Law Section of the Florida Bar and former Co-Chair of the Elder Law Section of the South Palm Beach County Bar Association.


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THURSDAY MAY 5, 2011 1:45 - 3:00 PM BREAKOUT SESSIONS

ROOM 2D RE-NAMING ALZHEIMER’S DISEASE

Summary Dr. Todd will explore the new presentation for Alzheimer’s disease and how bio-markers may be of value in diagnoses. Attendees will understand the present means of diagnosis for Alzheimer’s disease. Attendees will also learn new bio-markers as indicators for Alzheimer’s disease, and their place in a clinical diagnosis.

Presenter H. Murray Todd, M.D. received his medical degree and completed his neurology residency at the University of Miami School of Medicine. He is Board Certified with the National Board of Medical Examiners, the American Board of Psychiatry and Neurology, and the American Society of Neuro-Imaging and Fellow American Academy of Neurology. His is the Medical Director of the Neurological Institute and Memory Center at North Broward Medical Center in Deerfield Beach.


ROOM 2E REDUCE YOUR STRESS: LEARN TO USE YOUR CAREGIVER SUPER POWERS!

Summary Improve your quality of life and decrease your stress by learning to live by and understand this Golden Rule: There is no way to be a perfect caregiver and a million ways to be a GOOD one. This session provides emotional and physical well-being support for caregivers through a highly interactive, humorous experience.

Presenter Judie Rappaport, C.S.A. co-founded Parent Care in 1991, one of the country’s oldest geriatric care management firms. She is currently President of Preferred Lifestyle Services, a geriatric care management firm specializing in Alzheimer’s disease and stroke families. Judie is the author of several books, including “Eldercare 911: The Caregiver’s Complete Handbook for Making Decisions.”


ROOM 2F EARLY STAGE ALZHEIMER’S DISEASE: DIAGNOSIS AND TREATMENT

Summary This presentation will provide attendees with an overview of Alzheimer’s disease and an emphasis on the early stages of this disease’s development. This session will also cover diagnosis and treatment, and the necessity in getting early diagnosis. Participants will learn the effects of Alzheimer’s disease on the brain, signs and symptoms, diagnosis, how to choose a specialist, treatment and new research findings.

Presenter Michael M. Tuchman, M.D. is Board Certified in Neurology as well as Psychiatry. He is an active member of the American Medical Association and the Academy of Neurology. He is a member of the Florida Society of Neurology for which he served as President 1990–1991.


ROOM 1G SELECTING THE RIGHT CAREGIVER FOR YOUR LOVED ONE

Summary This session will give attendees helpful hints and tips necessary in selecting the best qualified caregiver for your loved one diagnosed with Alzheimer’s disease. Participants will learn questions to ask of caregivers, the differences in available caregiver providers, types of funding available for caregiving and alternatives to in-home care.

Presenter Scott Greenberg, President of ComForcare Senior Services is the Vice President of the Palm Beach Chapter of the Guardian Association, and serves on the Statewide Board of the Florida State Guardian Association and Alzheimer’s Community Care’s Goodwill Task Force. He serves on the Board of Directors for the Center for Family Service and is a member of the Palm Beach County Family Caregiver Coalition.


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ROOM 1H BE THE FAMILY HERO, WHEN GUARDIANSHIP MAKES SENSE

Summary This presentation will define guardianship in the legal sense, how it works and which type of guardianship is the most beneficial to the caregiver and patient. Attendees will learn how guardianship can free family members to be the loving, caring relative they naturally are without the added challenges and responsibilities of making decisions and plans that may antagonize loved ones.

Presenter Joseph Bensmihen, M.S.W., C.R.G. is an advocate on behalf of families living with Alzheimer’s disease, as well as a care manager and a court-appointed guardian. He began his career as a Social Worker with the disabled and elderly 15 years ago.

Audience Experienced Caregivers

ROOM 1I ORGANIC AND VASCULAR CAUSES OF DEMENTIA AND FUNCTIONAL DECLINE

Summary An opportunity to review the many differential diagnosis of dementia and consider the possible vascular and metabolic causes. Attendees will understand and recognize the differences in multiple diagnosis of dementia, what to expect when undergoing testing and possible results, and learn of the treatment and prevention of the organic causes of dementia and functional decline.

Presenter Dr. Paul Acevedo, M.D. is a Licensed Neurologist who has extensive training in the treatment of all neurological diseases in adults. He is a graduate of the School of Medicine at Pontificia Universidad Javeriana in Bogota, Colombia and practices medicine in two major Hospitals in West Palm Beach, Florida. Dr. Acevedo was elected to the General Residency Committee for the University of South Florida, was Chief Resident Neurology at University of South Florida and appointed member of Chairman Search Committee for the Department of Neurology, University of South Florida.


3:15 - 4:30 PM

ROOM 2A MEETING THE NEEDS OF THE ALZHEIMER’S FAMILY

Summary This informative and interactive workshop will provide specific information on how an individual qualifies for, and the patient and caregiver benefit from, hospice care.

Presenters Dr. Bernice Burkarth, M.D., Chief Medical Officer, Treasure Coast Hospice, received her neurosurgical training at Albany Medical Center. She joined Treasure Coast Hospice in 2005. Lori Posdal, L.C.S.W., Community Relations, Treasure Coast Hospice, has extensive experience working with psychiatric and addiction disorders, opened her own private practice and served on the faculty at Tulane University. Lori turned her focus to assisting the aging population and joined Treasure Coast Hospice in 2005.

Audience: Professionals

ROOM 2B RECONNECTING THROUGH THERAPEUTIC ACTIVITIES

Summary A discussion on the benefit and use of therapeutic activities in the home setting. Attendees will gain a better understanding of different therapeutic activities and their correlation within the different stages of Alzheimer’s disease/dementia. There will be an emphasis on creating a failure-free and low-stress environment for both the affected loved one and the caregiver.

Presenters Elizabeth Jaegersen, L.P.N. is the Program Manager at Alzheimer’s Community Care’s West Palm Beach Day Center and has worked with the elder population in a variety of roles and settings since 1996. Elizabeth has had extensive experience serving the needs of Alzheimer’s patients, as well as, the concerns of affected families.

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Dropatie Singh, C.N.A. is the Activities Coordinator at Alzheimer’s Community Care’s Lake Worth Day Center and has worked with Alzheimer’s patients since 2000. Dropatie has attended seminars, workshops and training all designed to enhance the lives of the patients that she works with every day.


ROOM 2C WILL SOCIAL SECURITY AND MEDICARE BE THERE FOR ALZHEIMER’S FAMILIES?

Summary This session will explore the emerging needs of Alzheimer’s families as it relates to the Baby Boomer generation and their families.

Presenter Mary M. Barnes is one of the founding members of Alzheimer’s Community Care, Inc., a Florida-based, 501 (c) (3), not-for-profit organization founded in 1996 to provide specialized care to Alzheimer’s disease and related disorders patients and caregivers in three Florida counties. She has been the organization’s leader since its inception and continues to serve as the President and Chief Executive Office. Laura Feldman has been a grassroots organizer for the National Committee to Preserve Social Security & Medicare for the past 20 years. She is a native Washingtonian and is a graduate of American University and will bring her observations and perspective “inside the beltway” on the politics of Congress and the issues of aging.


ROOM 2D UNDERSTANDING BEHAVIORAL CHANGES AND SUPPORTING A QUALITY OF LIFE THROUGH ALL STAGES OF DEMENTIA

Summary Attendees will learn why these behavioral changes occur, and learn how to promote a sense of accomplishment and productivity in loved ones. Participants will discuss the Theory of Retrogenesis as it relates to the stages of dementia, identify abilities, and discuss approaches to promote a quality of life.

Presenter Chris Ebell, O.T./L . is a licensed Occupational Therapist in the State of Florida, specializing in assessment and treatment of persons with dementia and education for the family. Currently, she is the lead trainer with Dementia Care Specialists, a division of the Crisis Prevention Institute.


ROOM 2E DEMYSTIFYING ANNUITIES: AVOIDING SCAMS

Summary Are annuities really as good as they are promised to be? There are so many advertisements for these products promising life-long income, but how do you know if they are right for you? The presenters will discuss the various types of annuities, the advantages and disadvantages of investing in annuities, and what to watch out for when approached to buy an annuity. Not all annuities are created the same and given the unique needs of the client with Alzheimer’s it is crucial for the caregivers to understand the ins and outs of these products.

Presenters David Meyers is co-founder of The Spectrum Planning Group, providing solutions for insulating assets from long-term care expenses. David Brown, co-founder of The Spectrum Planning Group, manages assets using investment and income programs tailored to each client’s circumstances.


ROOM 2F DIAGNOSIS OF ALZHEIMER’S DISEASE IN THE PRIMARY CARE SETTING

Summary This presentation will offer an overview of the diagnosis of dementias related to Alzheimer’s disease in the primary care setting. Primary Care Physicians often have long-standing relationships with patients and may be the first healthcare professional that the patients discuss their memory concerns with. Participants will learn the questions to ask of your physician, how to discern between Alzheimer’s disease and other conditions, and the importance of caregiver involvement at the beginning.

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Presenter Michael M. Tuchman, M.D. is Board Certified in Neurology as well as Psychiatry. He is an active member of the American Medical Association and the Academy of Neurology. He is a member of the Florida Society of Neurology for which he served as President 1990–1991. Dr. Tuchman has a private practice in Neurology as well as a Clinical Research Center in Palm Beach Gardens.


ROOM 1G LIVING WITH ALZHEIMER’S: SPOKEN BY THE LOVED ONE, PRACTICED BY THE CAREGIVER

Summary Attendees will learn the disease process and its impact on the behavior of a loved one, offering simple solutions to caregiver challenges. Careful consideration will be given to preserving a loved one’s dignity.

Presenter Sally P. Moore, M.S.W., L.C.S.W., A.C.H.P.-S.W. brings over 27 years of personal, professional and practical experience to her work with Alzheimer’s caregivers and their loved ones. She assisted her father in caring for her mother and was the primary caregiver for her husband, both of whom were diagnosed with Alzheimer’s disease. After their deaths, Sally returned to college and earned her Masters in Social Work. She is a Social Worker for Hospice of Palm Beach County.


ROOM 1H TOOLS, SYMPTOMOLOGY AND TREATMENTS FOR ALZHEIMER’S DISEASE

Summary The focus of this presentation will be on the importance of obtaining an accurate diagnosis of Alzheimer’s disease or another type of dementia. Dr. Martinez will also discuss the vital role of the Memory Disorder Centers in the State of Florida.

Presenter Walter C. Martinez, M.D., F.A.A.N. is currently medical director of the Memory Disorder Center at St. Mary’s Medical Center, one of the 13 state sponsored Memory Disorder Centers in the State of Florida. He also serves as Director of Premiere Research Institute, a clinical research facility in West Palm Beach, and Senior partner at Palm Beach Neurology. Dr. Martinez graduated with honors from St. Marcos University in Lima, Peru. He completed his training in Neurology, Child Neurology and Pediatrics at Albert Einstein College of Medicine, Bronx, New York.


ROOM 1I THE CAREGIVER’S TOOLBOX: EMOTIONAL, LEGAL AND FINANCIAL CONSIDERATIONS

Summary A panel discussion with experts to provide strategies for dealing with stress and managing legal and financial issues to help caregivers negotiate their way through the disease process. An ideal combination of professionals that will speak specifically to caregivers coping with a loved one with Alzheimer’s disease or a related disorder.

Presenters Moderator, Sherri A. Greenblatt, Esq. is a principal of Florida Elder Law Concepts, P.A. and devotes her legal practice to serving the needs of our elderly and disabled population. Panelists: Judie Rappaport, CSA, President, Preferred Lifestyle Services Care Management and columnist for Scripps Treasure Coast Newspapers, Eldercare 911; Scott M. Solkoff, Esq. is a Florida Bar Board Certified specialist in Elder Law practicing from Delray Beach, Florida. Scott is co-author, with his father, of West Publisher’s state and national books on elder law. He is among the youngest attorneys in the country to have been elected a Fellow of the American College of Trusts and Estate Counsel (ACTEC); Paul Vattiato, Director, Life Stories at Intracoastal Family Office at Capital Guardian, has over 24 years experience serving as advisor, aging specialist, and financial planning specialist.


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FRIDAY MAY 6, 201110:30 - 11:30 AM BREAKOUT SESSIONS

ROOM 2A LONG-TERM CARE INSURANCE AND THE LAW

Summary This session will provide attendees with powerful knowledge to protect themselves and their loved ones. Topics covered will include assignment of benefits, what your policies should cover, and your options as a caregiver when claims are denied. Case examples, such as Ruderman class action case, will be used to educate attendees on legal rights and ramifications.

Presenters Steven R. Jaffe, Esq. has been an impassioned advocate for individuals, families and consumers, successfully representing them in their quests for justice for over 27 years. He serves clients in cases involving long-term care insurance, unsafe and hazardous products, unlawful consumer charges and assessments and other consumer debt and consumer fraud cases. Steven Michael Dunn, Esq. has been involved been involved in significant trial court decisions affecting the rights of Florida residents who have long-term care insurance policies, and was involved in the first appellate court decision in Florida on long-term care insurance.


ROOM 2B BRAIN + SENSORY INFORMATION = BEHAVIOR

Summary Dr. Oberlaender’s research focuses on the functional anatomy of the circuits of the brain — specifically, the cerebral cortex — that forms the basis of simple behaviors. This research involves the use of large scale, high resolution microscopic techniques, and the study of neuronal signals. Eventually, this may reveal how the brain processes learning. Attendees will learn the basics in 3D structure and anatomy of neuronal pathways, basics in sensory information that processes simple decision making, and the early effects of degenerative diseases on these pathways.

Presenter Dr. Marcel Oberlaender is in the Department of Digital Neuroanatomy at Max Planck Florida Institute and is currently involved in a research project exploring the re-engineering 3D anatomy and synaptic wiring of neuronal circuits.

Audience Professionals Only *This session will present technical information that requires previous experience with the topic.

ROOM 2C QUEST FOR THE CURE: LATEST CLINICAL RESEARCH TRIALS

Summary The presentation reviews current research theories and upcoming advancements in treating Alzheimer’s disease. Existing theories and compounds will be reviewed and explained in relationship to how they can potentially affect the progression of Alzheimer’s disease. Additionally, upcoming research trials designed to halt the progression of the disease will be discussed along with basic inclusion criteria to participate in these trials.

Presenters Dr. Mark Brody is the President of Brain Matters Research and Medical Director of the Memory Program at Bethesda Memorial Hospital. He is a nationally recognized expert in Alzheimer’s disease management and research, and is the Principal Investigator in numerous national clinical studies seeking to prevent Alzheimer’s disease. David Watson, Psy.D. is a leading Certified Principal Investigator specializing in Alzheimer’s disease. He is a neuropsychologist who has conducted over 300 clinical research trials on Alzheimer’s disease over the past 15 years, testing new investigational compounds. His research has contributed significantly to the approval of four existing medications currently on the market for symptomatic treatment of Alzheimer’s disease.


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ROOM 2D GUARDIANSHIP: IS IT REALLY NECESSARY?

Summary How guardianship works and how to create a viable family plan to minimize the risk of guardianship. The discussion will also provide alternatives and tools to use to keep families out of the courtroom.

Presenter Michael W. Connors, P.A. is board certified by the Florida Bar as a specialist in the field of Elder Law. He is also certified by the Florida Supreme Court as a circuit civil mediator. He earned his law degree from the University of Florida in 1986. He is a founding member of the Palm Beach County Chapter of the Florida State Guardianship Association, and a former president of the Board of Directors of the Florida State Guardianship Association, Inc. He is a member of the Academy of Florida Elder Law Attorneys, and, the National Academy of Elder Law Attorneys; he also serves on the Guardianship Committee of the Real Property, Probate and Trust Law Section of the Florida Bar.


ROOM 2E FOR BETTER OR FOR WORSE: BEYOND MEDICATIONS AND TRIALS

Summary This session will explore disease-modifying interventions that can be started immediately after diagnosis. Medical evidence shows that a number of approaches are available that may confer durable improvement or delays in decline. Attendees will become acquainted with a number of approaches that may confer durable improvement or delays in decline and time will be available for an interactive question and answer segment.

Presenter Eric Dale Kramer, M.D. is the Principal Investigator at JEM Research in Atlantis, FL, and also maintains a private practice, Medical Specialists of the Palm Beaches, specializing in diseases of the nervous system which include strokes, Parkinson’s disease, epilepsy, chronic pain and headaches, and more. He is the affiliate Clinical Assistant Professor in the Charles E. Schmidt College of Biomedical Science at Florida Atlantic University.


ROOM 2F SPECIAL NEEDS OF HOLOCAUST SURVIVORS

Summary This presentation will focus on the special care needed by survivors of the Holocaust. As survivors age, a number of unprecedented care issues can come up, especially if there is a diagnosis of dementia. This presentation will explore issues unique to survivors with dementia, a review of survivor experiences and reactions, and a clinical discussion of environmental and situation triggers that can hinder survivors’ ability to communicate their needs.

Presenter Eva Weiss, M.Ed., Ed.S.; Holocaust Program Coordinator, Alpert Jewish Family and Children’s Service has been the lead coordinator of the Holocaust Survivor Assistance Program at Alpert Jewish Family & Children’s Service in Palm Beach County since 1995. Eva was born in Russia and is herself the daughter of Polish Holocaust survivors and is a certified Gerontologist.


ROOM 1G THE EMPTY TABLE

Summary Participants will learn what are normal changes to the body as it ages, and how dietary needs change as well. Emphasis will be given to patients with Alzheimer’s disease, their dietary needs and addressing appetite challenges with dementia.

Presenter Margaret Gale, R.N., B.S.N. is a case manager and branch supervisor at VNA of Florida, providing clinical oversight and direct patient care to homebound clients with a variety of medical or surgical conditions.


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ROOM 1H CREATING BALANCE IN YOUR LIFE AS YOU TRANSITION YOUR LOVED ONE

Summary In this presentation, learn how Dale Carter’s ADAPT method can help a family guide their aging parent through crisis and transition. Kim Linder will show how to be a “mindful” caregiver for your loved one by creating balance in your life and building your circle of care. You’ll see examples of how to create that balance and see the ADAPT method in action as Dale and Kim give real-life scenarios, focusing on family communication, consensus and decision-making.

Presenters Dale C. Carter, M.B.A. is an eldercare advocate, author, speaker and coach. She is founder of “Transition Aging Parents,” host of a radio show and author of “Transitioning Your Aging Parent: A 5-Step Guide through Crisis and Change.” Kim Linder, C.S.A. is a radio talk show host, columnist, speaker and caregiver coach. As founder of Senior Holistic Living, she shares information, resources and wisdom to empower seniors to age gracefully utilizing a holistic whole-person approach to wellness.


ROOM 1I LIVING WITH THE LOSSES OF ALZHEIMER’S DISEASE

Summary This presentation will discuss some of the basic dynamics of grief including anticipatory and ambiguous grief as well as explore ways that Alzheimer’s disease impacts the grieving process. This session will include an introduction to the basic dynamics of grief, the uniqueness of Alzheimer’s in relation to grief, anticipatory grief, enabling the patient to grieve and empowering the caregiver through the grief process.

Presenter Chaplain Karen Modell, M.S.P.C. is the Bereavement Services Manger for VITAS Innovative Hospice Care of the Palm Beaches. Reverend Modell is ordained as an Interfaith Minister, has a master’s degree in pastoral counseling and a bachelor’s in religious studies.

Audience Experienced Caregivers

Alzheimer’s Community Care does not subscribe to or endorse any of the speakers, sponsors, presenters and /or exhibitors that are participants in this conference.

Palm Beach County Medical Society

“Looking out for Patients… Looking out for Physicians”

www.pbcms.org 561-433-3940



J.P. Morgan is proud to support Alzheimer’s Community Care

for their compassion and commitment.

Hospice of Palm Beach County is a proud sponsor of the 2011

Alzheimer’s Educational Conference

5300 East Avenue, West Palm Beach, FL 334071-800-HOSPICE • www.hpbc.com

Licensed since 1981. Accredited by The Joint Commission. 501(c)(3) not-for-profit organization

For every community, and every family – We’re There

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JEM Research Institute 130 JFK Drive, Suite 203

Atlantis, FL 33462 561-968-2933

Dr. Eric Kramer, Dr. James Goldenberg

and Dr. Mark Goldstein Board Certified Neurologists

JEM Research Institute is currently

conducting clinical trials for advanced treatments of medical conditions including Alzheimer’s Disease, Pain from Shingles, Depression, Multiple Sclerosis and more.

If you or someone you know is interested in

learning more please call

561-968-2933

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among its 1,600+ memberorganizations nationwide.

Together, we’re changing the face of care.For more information about AFA’s programs

and services for family caregivers and professionals,and to join our network:

www.alzfdn.org866.232.8484

FOUNDATIONOF AMERICA

THE

ALZHEIMER’SCOMMUNITY

CARE

is proud to count

"Caring for the Nation...One Person at a Time"

ALZHEIMER’S

PROUD Supporter OF:

Care and compassion.

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Harris Private Bank is proud to support Alzheimer’s Community Care.

Michael J. Dyer, Managing Director – West Palm Beach561-366-4216 | harrisprivatebank.com

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TRUST AND ESTATE SER VICES | PHILANTHROPIC ADVICE | FAMILY OFFICE SER VICES

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Harris Private Bank is a trade name used by various fi nancial service providers and Harris Financial Corp. Banking products and services are provided by Harris N.A., The Harris Bank N.A. and their bank affi liates. Member FDIC. Not all products and services are offered in every state and/or location. Harris Private Bank is a member of BMO Financial Group.

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2011 Alzheimer’s Educational Conference

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