2009 progress in comprehensive care for rare blood disorders … tong - health informatics... ·...
TRANSCRIPT
gpi
gordon point informaticswww.gpinformatics.com
2009 Progress in Comprehensive Care for Rare Blood Disorders Conference
Health Informatics Primer
gpi
Topics
1. Background
2. Health Informatics
3. EHR, EMR, PHR...
4. Connecting patient registries with the pan-Canadian EHR
gpi
• Gavin Tong, B.Sc., MBA
• Director, Gordon Point Informatics Ltd.
• Formerly:
– COACH Board of Directors
– VP, Interoperability & Standards, ITAC Health
– Manager, Standards Development Coordination, Canadian Institute for Health Information (CIHI)
Background
gpi
Health Informatics
“Health informatics is the intersection of clinical, IM/IT, and management practices to achieve
better health” - COACH
gpi
Health Informatics: A multi-disciplinary Challenge
Three core bodies of knowledge:Management Sciences Information Sciences Health Sciences
gpi
...Information for Better Health
• Primary Use:
– Information used directly in the provision of care
• Specialty clinics, GP offices, hospitals
• Secondary Use (Health System Use)
– Information used to administer and/or improve the delivery of care
• Researchers, governments, advocacy groups
gpi
• Promotion & advocacy
• Professionalism
– Code of ethics, certification, and recognition of excellence
• Conferences, education, & publications
COACHTaking Health Informatics Mainstream
gpi
EHR...EMR...EPR...PHR?
Common characteristics:• Life-time, complete, up-to-
date health information physician visits & hospital
stays diagnostic images & reports laboratory test results prescribed drugs and
immunizations ..etc.
gpi9
Clients/Patients
Integrated Shared View of Client / Patient Data
Pharmacy
Laboratory
DiagnosticHospital
Emergency
Homecare
Community Care
Center
Clinic Emergency Services
Specialist Clinic
INTEGRATED VIEW
Slide credit: Canada Health Infoway
gpi
• Electronic Health Record– Pan-Canadian approach to creating a network of
interoperable systems.
• Electronic Medical Record or Electronic Patient Record:– Often localized to Physician Offices or Hospitals
• Personal Health Record– Typically a health record that is initiated and
maintained by an individual (Paper, Software, Web Enabled)
EHR...EMR...EPR...PHR?
gpi
• Strategically working in partnership with the country’s federal, provincial, and territorial governments to create and implement electronic health record (EHR) systems
• Strategic investors not the builders
Canada Health Infoway
gpi
Pan-Canadian EHR Blueprint
Slide credit: Canada Health Infoway
gpi13
EHR Infostructure: Conceptual ArchitectureJURISDICTIONAL INFOSTRUCTURE
Ancillary Data
& ServicesRegistries Data
& Services
EHR Data
& Services
Data
Warehouse
Outbreak
Management
PHS
Reporting
Shared
Health Record
Drug
Information
Diagnostic
ImagingLaboratory
Health
Information
POINT OF SERVICE
Hospital, LTC,
CCC, EPR
Physician
Office EMR EHR Viewer
Physician/
Provider
Business
Rules
EHR
Index
Message
Structures
Normalization
Rules
Security Mgmt
DataPrivacy Data Configuration
Physician/
Provider
Physician/
Provider
Lab System
(LIS)
Lab Clinician
Radiology
Center
PACS/RIS
Radiologist
Pharmacy
System
Pharmacist
Public Health
Services
Public Health
Provider
Longitudinal Record Services
HIALCommunication Bus
Common Services
Client
Registry
Provider
Registry
Location
Registry
Terminology
Registry
Slide credit: Canada Health Infoway
gpi
14
EHRS EHRS EHRS EHRS EHRS EHRS EHRS
EHR Infostructure (EHRi)
Registry
Services
EHR Data & Services
Domain
Repository
Services
Communication BusCommunication Bus
Common Services
H I
A L
EHR
Repository
Services
Applications
Appl Appl ApplAppl
EHRS Solution (EHRS)EHR Infostructure (EHRi)
Registry
Services
EHR Data & Services
Domain
Repository
Services
Communication BusCommunication Bus
Common Services
H I
A L
EHR
Repository
Services
Applications
Appl Appl ApplAppl
EHRS Solution (EHRS)EHRS
Locator
Slide credit: Canada Health Infoway
gpi
EHR Activity In Canada
Slide credit: Canada Health Infoway
gpi
• When you arrive in the ER
• When you need access to quality care
RBDO Context
gpi
“Estimated 70,000 preventable adverse events occur annually in hospitals, resulting in 9,250
to 23,750 deaths”
Slide credit: Canadian Adverse Events Study, 2004
gpi
Arrival in the ER
Decision Support & Alerts
Organization RegistryProvider Registry
Client Registry Decision Support &
Alerts
Shared Health Record
gpi
• Provider and Organization Registries:– Primary use examples:
• Allows GPs to find specialists and comprehensive treatment centres by geography or shortest wait
– Secondary use examples: • How many haematologists are in
each Province/Territory? • Which regions are underserved? • Is the number of specialists
keeping pace with changes in geography and populations of people with rare blood disorders?
Access To Quality Care
gpi
CHS Strategic Goals (Abridged)
• Care and Treatment
• Safe, Secure Blood Supply
Primary Use
• Research
• Advocacy
• Public Awareness
Secondary UseEH
R D
ata
gpi
Strategic Challenges
1. Funding
2. Governance
3. Timeliness
Connecting EHR Data with Patient Registries
gpi 22
9892 89
79
42
2823
99 97 96 95
72
46
37
0
25
50
75
100
NET NZ UK AUS GER US CAN
2006 2009
Doctors Use OF EMRs, 2006 and 2009*
* 2006: “Do you currently use electronic patient medical records in your practice?”
* 2009: “Do you use electronic patient medical records in your practice (not including billing systems)?”
Percent
Source: 2006 and 2009 Commonwealth Fund International Health Policy Survey of Primary Care Physicians.
gpi
Tactical Challenges
1. Data not in the EHR
2. Primary use vs. secondary use
3. Privacy, confidentiality & security
Connecting EHR Data with Patient Registries
gpi
• Aligning messages with the key trends influencing care
– Rising costs of health care
– Chronic disease prevention and management
– Moving from acute to community care
– Physician shortages
– Rising patient consumerism
Overcoming Challenges
gpi
Targeting Your Message
Organization RoleMinistries of Health Fund the delivery of care and build the EHRs
Canada Health Infoway Strategically working in partnership with the country’s federal, provincial, and territorial governments to create and implement electronic health record (EHR) systems
Strategic investors NOT the builder
Canadian Institute for Health Information
Independent, not-for-profit organization that provides essential data and analysis on Canada’s health system and the health of Canadians
gpi
“Knowledge is Power”Francis Bacon, 1561-1626
Rising to the Challenge
“Knowledge is a commodity. Imagination is power!”
gpi
Thank you for your time!
Gavin Tong, Director, Gordon Point Informatics:
Thanks and Questions