2. skills for life - s3-ap-southeast-1. web viewduring diwali festival adhar got bulk order of diyas...
TRANSCRIPT
PROJECT ISRNGO – ADHAR
ANAGHA DNYANESHWAR KHEDKAR
HPGD/OC14/1764
SOCIAL CAUSE :- MENTALLY RETARDED
PRIN L. N. WELINGKAR INSTITUTE OF MANAGEMENT DEVELOPMENT &
RESEARCH
FEBRUARY 2016
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TABLE OF CONTENT
SOCIAL RESPONSIBILITIES
STUDENTS SOCIAL RESPONSIBILITIES
CORPORATE SOCIAL RESPONSIBILITIES
INDIVIDUAL SOCIAL RESPONSIBILITIES
FEW NGO’S WORKING FOR MENTALLY RETARDED
CHILDREN AND RESIDENTS
NGO – ADHAR
INTRODUCTION
FORMATION
WHAT IS ADHAR
HISTORY OF ADHAR
ADHAR PROFILE
FACILITIES AT ADHAR
PROGRAMMES FOR RESIDENTS
TRANNING AND EDUCATION
SKILLS FOR LIFE
LEISURE SKILLS
ENJOYING THE ARTS
EXERCISE AND GREAT OUTDOORS
ACTIVITY – SERVICES TO RESIDENTS
PROBLEMS FACED BY NGO
PROBLEMS FACED BY MENTALLY RETARDED RESIDENTS
ADHAR PRACTICES GOOD GOVERNESS AND TRANSPARENCY
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TRUSTEES AT AHDAR
ADHAR MISSION
ADHAR VISION
ADHAR’s STRENGTH & TOUCH STONES
AWARDS & INTERVIEWS
ACKNOWLEDGEMENT
BIBLIOGRAPHY
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SOCIAL RESPONSIBILITIES
Social responsibility is an ethical framework which suggests that an entity, be it
an organization or individual, has an obligation to act for the benefit of society at large. Social
responsibility is a duty every individual has to perform so as to maintain a balance between
the economy and the ecosystems. A trade-off may exist between economic development, in
the material sense, and the welfare of the society and environment though this has been
challenged by many reports over the past decade. Social responsibility means sustaining the
equilibrium between the two. It pertains not only to business organizations but also to
everyone whose any action impacts the environment This responsibility can be passive, by
avoiding engaging in socially harmful acts, or active, by performing activities that directly
advance social goals.
Businesses can use ethical decision making to secure their businesses by making decisions
that allow for government agencies to minimize their involvement with the corporation For
instance if a company follows the United States Environmental Protection Agency (EPA)
guidelines for emissions on dangerous pollutants and even goes an extra step to get involved
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in the community and address those concerns that the public might have; they would be less
likely to have the EPA investigate them for environmental concerns. "A significant element of
current thinking about privacy, however, stresses "self-regulation" rather than market or
government mechanisms for protecting personal information". According to some experts,
most rules and regulations are formed due to public outcry, which threatens profit
maximization and therefore the well-being of the shareholder, and that if there is not outcry
there often will be limited regulation.
Some critics argue that corporate social responsibility (CSR) distracts from the fundamental
economic role of businesses; others argue that it is nothing more than superficial window-
dressing, or "greenwashing" others argue that it is an attempt to pre-empt the role of
governments as a watchdog over powerful corporations though there is no systematic
evidence to support these criticisms. A significant number of studies have shown no negative
influence on shareholder results from CSR but rather a slightly negative correlation with
improved shareholder returns. Some studies have shown strongly positive correlations
between a CSR-type commitment to sustainability and company performance in the long-term
STUDENT SOCIAL RESPONSIBILITIES
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Student social responsibility is the responsibility of every student for his/her actions. It is
morally binding, and suggests that each person act in such a way that minimizes the adverse
effect on those immediately around them. It is a commitment everyone should have towards
society – contributing towards social, cultural and ecological causes. SSR is based on an
individual's ethics. Instead of giving importance only to those areas where one has material
interests the individual supports issues for philanthropic reasons. It forms the base for CSR or
Corporate Social Responsibility because if everyone in a business organization does his/her
bit the bigger things automatically fall into place. The trends however show that big charitable
organizations recorded high growth due to the SR efforts of individuals and not corporations
or the government.
CORPORATE SOCIAL RESPONSIBILITIES
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Corporate social responsibility or CSR has been defined by Lord Holme and Richard Watts in
the World Business Council for Sustainable Development's publication "Making Good
Business Sense" as "…the continuing commitment by business to behave ethically and
contribute to economic development while improving the quality of life of the workforce and
their families as well as the local community and society at large." CSR is one of the newest
management strategies where companies try to create a positive impact on society while doing
business. Evidence suggests that CSR taken on voluntarily by companies will be much more
effective than CSR mandated by governments. There is no clear-cut definition of what CSR
comprises. Every company has different CSR objectives though the main motive is the same.
All companies have a two-point agenda—to improve qualitatively (the management of people
and processes) and quantitatively (the impact on society). The second is as important as the
first and stake holders of every company are increasingly taking an interest in "the outer
circle"-the activities of the company and how these are impacting the environment and
society. The other motive behind this is that the companies should not be focused only on
maximization of profits.
INDIVIDUAL SOCIAL RESPONSIBILITIES
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"The individual social responsibility includes the engagement of each person towards the
community where he lives, which can be expressed as an interest towards what’s happening in
the community, as well as in the active participation in the solving of some of the local
problems. Under community we understand the village, the small town or the residential
complex in the big city, where lives every one of us. Each community lives its own life that
undergoes a process of development all the time. And everyone of us could take part in that
development in different ways, for example by taking part in cleaning of the street on which
he lives, by taking part in organization of an event, connected with the history of the town or
the village or by rendering social services to children without parents or elderly people. The
individual social responsibility also could be expressed in making donations for significant for
the society causes – social, cultural or ecological. There are many ways of donating, as for
example donating of goods or donating money through a bank account or online".
FEW NGO’S WORKING FOR MENTALLY RETARDED CHILDREN AND
RESIDENTS
1. Pratheeksha Bhavan School for Mentally Retarded Children,
Thodupuzha
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Pratheeksha Bhavan School for the Mentally retarded is an institution dedicated
for the education and rehabilitation of persons with Mental Retardation and associated
conditions. It is run by the sisters of Sacred Heart Congregation Jyothy Province
Kothamangalam. The institution had a humble beginning in the year 1978. The institution is
situated in the Thodupuzha Municipality and is on the Thodupuzha –Manakkad Road in the
district of Idukki.
Organisation Primary Email Address
Organisation Website
www.pratheekshabhavantdpa.org
2. Destination (A Real Home for Mentally Retarded Persons/Children)
Destination provide welfare services to the mentally challenged persons
especially who are homeless abandoned keeping them in our three shelter homes providing
residential rehabilitation services of different age group starting from 3yrs . The organization
also works for the welfare of animal, environment and promote computer education to the
underprivileged children and youth. Established in June 2005, Destination is located in
Kahilipara, Guwahati-19, Assam.
Number of Full Time Staff 22
Number of Full Time Volunteers 5
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Year of Establishment 2005
Organisation Primary Email Address
Organisation Website
www.destinationarealhome.org
3. DR. BRAJA VIHARI MOHANTY MEMORIAL MENTALLY RETARDED
BENEFIT TRUST
MAIN OBJECTIVES OF Dr.B.V.Mohanty Memorial Mentally Retarted benefit trust are
a) To arrange and provide care and rehabilitation to persons with Mental Retardation.
b) To set up ideal homes and service institutions including school, work shops, vocational
training centre’ s and hospital etc.
c) To conduct, organize, contribute to and involve in any research activity connected with
Mental Retardation.
d) To undertake such other activities as deemed necessary for the promotion, care, Welfare
and rehabilitation of persons with mental
retardation.
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Organisation Primary Email Address
Organisation Website
www.brajavihari.org
4. SWEEKAR ASSOCIATION OF PARENTS OF MENTALLY RETARDED,
AUTISTIC,C.P AND MULTIPLE DISABLED CHILDREN
In 1985, a small group of parents of mentally challenged children studying
in Nandanvan, a special school at Sitabuldi, Nagpur felt a need to associate more closely with
each other. This led to the formation of this organization with a desire to share their
difficulties, feelings and to explore ways to improve quality of life for their children. Each
and every parent realized the need to change the outlook of society towards the intellectually
challenged and with this thought in mind the organization was appropriately named as
SWEEKAR means ACCEPTANCE
Organisation Primary Email Address
Organisation Website
www.sweekarnapur.org
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5. Parents Association for Mentally Handicapped Persons (PAMENCAP)
We have founded PAMENCAP on 06.03.1987, special school for MR in
1988, Manochaitanya in 02.01.1999 and hostel and respite care on 01.05.2006 and planning
for lifetime shelter. We are providing a gainful employment to the persons with mental
retardation and paying up to Rs.30 to Rs.40 per day and free food, clothes, dance, music,
speech-therapy, physiotherapy and conveyance from home to work place. Thus, we are
making a difference to the less fortunate with a larger vision by making them self reliant to
mingle in the main stream and providing lifetime shelter for the needy persons with mental
retardation of other districts those who do not have parents or those who incapacitated to look
after.
Organisation Primary Email Address
Organisation Website
www.manochaitanya.in
Number of Full Time Staff 27
Number of Full Time Volunteers 2
Year of Establishment 1987
6. Nava Jeevana Parents Association For Mentally Challenged People
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The purpose of the project is to prepare children and youths with mental
retardation to acquire abilities, knowledge, skills and undergo some Vocational Training
which would ultimately lead them to employment and livelihood. The programme also
proposed to involve parents and members of the family or care givers to run the programme in
the long run.
Organisation Primary Email Address
Organisation Website
http://navajeevana-india.org/
7. Society for the Aid of Mentally & Developmentally Handicapped
"SAMADHAN'
SAMADHAN, a registered non-profit organization set up in 1981 in New
Delhi, India, has as its dual purpose the betterment of these disregarded communities,
specifically children with intellectual disability and their mothers. SAMADHAN’s philosophy
is that all persons with intellectual disability can be helped, if appropriate and timely services
are available. Over the years, it has effectively transferred this philosophy into action and
developed a viable model of service delivery linking services for the intellectually disabled,
with the needs of their mothers and of the women in the community, using locally available
resources and materials.
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Organisation Primary Email Address
Organisation Website
http://www.samadhanindia.org
8. AJINKYA SHIKSHAN SANSTHA
Ajinkya Education Society, Maharashtra working for the Mentally
retarded children since 18 years. Organisation runs special school for mental retarded
children. Even organised various programmes and activities regarding mental retarded
students. Organisation basically works for all types of disabled persons.
Organisation Primary Email Address
Organisation Website
www.ajinkyngo.org
9. ADHAR - LIFE TIME SHELTER FOR MENTALLY CHALLENGED ADULTS
ADHAR
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INTRODUCTION
The Association of Parents of Mentally Retarded Children is working for
adult mentally retarded. Association has built up residential complex named ‘ADHAR’ on a
5-acre plot in a beautiful rural setting at Thakurwadi, Mulgaon at a distance of 9 km. from
Badlapur (C.R.) Station in Thane District and on 3 acre healthy ,clean & clear natural
atmosphere at Pimpalgaon (Dukra) in Nashik District of Maharashtra.
ADHAR is the first institute in India of its type where we are taking
responsibility of lifelong care and protection of adult mentally retarded children. It works in
the spirit of Trusteeship and is managed by the Board of Trustees in which 7 out of 9 are
parents. At present we have 242 M.R children (male & female) under our care. Adhar is
providing them lifelong care, training and rehabilitation facilities with the help of
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Psychologist, Psychiatrist, Physio Therapist, Occupational Therapist, Medical Officers, Social
Workers, Special Teachers, Care Takers and other Office Staff.
FORMATION OF ADHAR
In the year 1990, around 25 parents of mentally challenged children came
together under the leadership of Shri M. G. Gore to find out a permanent solution for their
constant worry of “After us what? Who will take care of their special child?” Thus Adhar
Badlapur was born with the concept of residential institution taking lifelong care and
rehabilitation of special children for the benefit of parents and their children.
Adhar does not get any grant or aid from the government. It runs on parents’
contributions and donations. Since its inception, Adhar has been extending financial subsidy
to the parents depending on their economic conditions. The average age of the inmates is
about 45 yrs and average age of parents is around 70 yrs, which means that the parents’
contribution will reduce in future as they get older.
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WHAT IS ADHAR ?
• Association of Parents – Public Charitable Trust
• Humble Beginning in the year 1990 under Leadership Of “Late Shri M. G. Gore”.
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• 25-30 Parents came together to find out permanent solution to their worry ‘After us what?”
• Managing 2 Residential Institutions (Badlapur for Last 20 Years and Nashik for last 1 year)
• Catering 237 (181 Male & 56 Female) Mentally Challenged Adults
• It provides physical, financial as well as psychological relief to parents
HISTORY OF ADHAR
Adhar is a pioneer organisation providing life-long residential care for
mentally challenged adults. Late Shri M. G. Gore a qualified and dedicated renowned Social
Worker, after his retirement of working with mentally challenged children institution at the
Children’s Aid Society for 35 years was reading a newspaper report. It carried news that ‘A
lady in USA shot dead her only mentally challenged son as she was gripped with the fear
“who will take care of him after her?’
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Totally shaken with the news report Shri Gore appealed to parents of
Mentally Retarded Children for finding a everlasting solution to their problem. It was realized
that there are very few residential facilities in the field of Mental Retardation and mainly for
adults. Old parents are always haunted by a constant thought ‘After us what? What will
happen to our children? Who will look after them? They needed a reliable institution to take
over the life long responsibility of their grown up in the spirit of trusteeship.
Thus the ‘Association of Parents of Mentally Retarded Children’ was
formed and registered as a Public Trust in May 1990 by the parents of mentally challenged
under the strong leadership and guidance of Late Shri M. G. Gore.
ADHAR is the first institution of its type & size, which undertakes the
responsibility of life long care and possible training. We are providing round the clock care &
Protection, whole some food menu for which is prepared by Chief Dietician of Breach Candy
Hospital, medical care, vocational training center, yoga, recreational and sports activities with
the help of specially qualified staff, vocational instructors, medical and psychiatric experts
trained social workers and clinical psychologists.
Adhar has now 242 residents (187 males and 55 females) under its care. It
works in the spirit of Trusteeship and is managed by the Board of Trustees in which 7 out of 9
are parents.
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ADHAR PROFILE
• Registered under Public Trust Act 1950
• Registered under PWD Act 1995
• Registered under Foreign Contribution (Regulation) Act 1976
• Registered under Section 12 A of Income Tax Act 1961
• Exempted under section 80(G) of Income Tax Act 1961
• Adhar Logo is Registered under Trade Marks Act 1999
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FACILITIES AT ADHAR
• Well furnished dormitories for male & female
• Vocational Training Centers
• Separate Medical Unit & Nurse Station
• Special Dormitory of old aged Mentally Challenged Persons
• Special Care Unit for severely retarded
• Multipurpose Hall for various activities
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• Star bus & Ambulance
• Solar Water Heater System
• Power Laundry & Dryer
• Wind Mill & Solar Energy for uninterrupted Power Supply
• Solar Street lamps
• Water conservation through waste water recycling & water harvesting
• Dairy Project
• 2 residential Dormitories
• Medical Unit
• Recreation Hall
• Common Dining Hall with attached Kitchen
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PROGRAMMES FOR RESIDENTS
1. TRANNING AND EDUCATION :-
ADHAR encourage residents to grow to their maximum potential. The foundation of this
philosophy is a Ranch or Village resident's IPP, or Individual Program Plan or the Care Plan
for Villa residents. Developed as a collaboration between the resident, staff, and family, the
IPP evaluates where a resident is and creates resident-driven goals. Through Ability Centered
Training (ACT), including training opportunities, therapy, life skills, recreational activities the
IPP then plots a solid course toward achieving the resident's goals.
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The Individual Program Plan
Upon admission and then annually, a team of care providers and trainers evaluates each
resident's abilities in various areas using the ACT Assessment Instrument. Staff developed
this assessment instrument specifically for residents, applying advanced academic,
educational, and performance-based training concepts. The results of the assessment serve as
the foundation for the development of an Individual Program Plan (IPP) for each resident.
Creating the IPP
Staff and family members provide guidance and support, but the resident's involvement in his
or her plan is crucial to the overall process. Staff help each resident identify, understand and
discuss his or her strengths and opportunities for improvement. The staff then assists the
resident in developing specific goals and understanding milestones to be met in a specific
time period. The resident’s active participation, endorsement of, and agreement with the IPP
goals and objectives are essential concepts of Abilities Centered Training.
Putting the IPP to Work
Each resident is assigned a primary resident trainer to track his or her progress against the
Individual Program Plan and work with him or her one-on-one to meet goals and overcome
challenges. Additionally, multiple staff members are aware of a resident's unique goals and
regularly encourage him or her to stay focused and to remember the benefits of achieving
individual goals.
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2. SKILLS FOR LIFE :-
Life Skills training + Social Skills training = Skills for Life
From tips on grooming, to market math—residents receive a variety of life-skill-based
training. ADHAR offers training in shopping, cooking, money management and healthy
eating choices and much more. The goal of Life Skills training is to enable residents to reach
the highest level of personal independence possible in their daily routines.
Academic Skills Improvement combines reading and math
Combining reading and math into one training session helps residents develop practical skills
that enable them to function more independently. The basic concept is to learn to apply
reading and math skills to real world situations. So instead of learning addition, subtraction or
division as pure skills, residents learn how to apply math skills to shopping situations.
Strengthening reading skills helps residents better understand the written communications of
everyday life, such as product labels.
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Skills for Life training at ADHAR also includes:
Women's Health & Hygiene
Men's Health & Hygiene
Money Management
3. LEISURE SKILLS :-
At the beginning of each training semester, community directors work with the training and
education staff to determine the leisure training needs and interests of each resident. They
consult the resident’s annual Individual Program Plan (IPP) and then devise a schedule that
keeps each resident moving toward the goals expressed in his/her plan. Leisure training is a
vital part of the training offered at ADHAR. Whether residents walk, bike, garden or play
sports, the general idea is to encourage them to learn to use their leisure time to improve
overall health, vitality and enjoyment of life.
4.ENJOYING THE ARTS :-
The staff encourages and assists residents to schedule their own leisure activities. These may
range from walking around campus enjoying the beauty of ADHAR’s rural environment,
painting or handcrafts in the art studio, reading books chosen during regularly scheduled
library visits, or singing in one of the ADHAR choral groups, or playing an instrument in the
rhythm band. The leisure and recreation staff, as well as the resident trainers, help each
resident find the right blend of work and leisure time.
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5.EXERCISE AND THE GREAT OUTDOORS :-
Each resident's daily schedule includes opportunities for exercise. Residents can enjoy
individual and group activities at ADHAR’s gymnasium, softball field, recreation rooms,
walking trails, and Yoga.
ACTIVITY – SERVICES TO RESIDENTS
Details of the Activities being carried out for the beneficiaries at Adhar
Psychotherapeutic Intervention
Residential Clinical Psychologist’s Psychotherapeutic Intervention helps in immediate
catharses, which in turn help residents to release the pent-up emotions.
Psychiatric Care
Few residents need regular Psychiatric intervention. Cases are referred to Consultant
Psychiatric and under his guidance the treatment is given regular follow up is being
done with him.
Medical Facilities / Special Diet
Round the clock medical services are available at the campus. Nurses are working in the
3 shifts. Regular visits of Honorary Medical officer / Dentist / Physio Therapist &
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Psychiatrist are arranged. Regular routine check up. For major illness we are
connected with the hospitals in Badlapur city. (List of Doctors Panel is enclosed)
We are also arranging the different medical camps at our campus.
We serve the wholesome diet to our resident as per the diet chart suggested by the
chief dietitian Mrs. Sarala Mathew of Breech Candy Hospital. (Weekly Menu is enclosed
separately)
Case Work & counseling
Individual case study and counseling of residents & parents is the routine process
carried out by our Clinical Psychologist and Social Workers. ( few cases are enclosed)
Celebration of Festivals
We celebrate all the festivals at Adhar.
• Holi – all residents enjoy the Puranpoli
• Rakshabandhan – Rakhi & coconut rice is the main attraction for the Day
• Ganpati is installed for 5 days it is fun and frolic time for residents
• Diwali – Members of Rotract Club of Dombivli celebrates Diwali with residents every year.
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• Residents take part in cultural activity organized by Sushrusha, Ambernath (they celebrate
Apang Diwali Every Year)
• Christmas – Residents are taken for Mid Night Mass at Badlapur Church
• Khandobachi Jatra – Local Festival in February Children are taken to climb Khandobachi
tekdi for Darshan
Cultural Activities
In order to remove ‘Social Stigma’ about mental retardation Adhar carries out cultural
activities in and out side Adhar. Adhar group has taken part in many cultural events
arranged by different groups like Hello Nursery, Rythem Talent Feast, Bryan Dance
Academy, Ganesh Utsav Mandal etc. they take part in Dance & Music / Drawing & Painting
competition.
Games & Recreations
Games & recreation is an integral part of Adhar. Various indoor and outdoor games like
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cricket, football, carom, Badminton, running, skipping are conducted to keep them fit and
trim.
Residents take part in sports competitions.
Centralised Music System helps the residents to listen the music through out the Day and
relax.
Residents enjoy the ‘Toy Room’ in batches. They look forward for their turn to come.
Picnics & Outings
• Annual Picnic for a Day & some times over night picnic is also arranged for residents.
• Weekly outings at nearby areas are arranged every week end.
• Residents are waiting for it very desperately.
Yoga & Meditation
To keep body and mind in synchronized condition; yoga and chanting of ‘OM’ is
practiced every day.
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Vocational Training / Special Class
We have vocational training center at Adhar Badlapur & Nashik to keep the residents
occupied for the day time. From 10 am to 5 pm the residents are engaged with
different activities like chalk making / candle making / Agarbatti making / embroidery /
office files/ dusters / screen printing / painting / drawing etc.
Out of 242 residents 108 inmates are attending Vocational Training and 86 inmates are
attending the Special Class; remaining are severe or bed ridden.
Exposure to Group Activities
Residents are exposed their talents like Dance, singing, drawings, playing the musical
instruments, products made by them at Vocational Training Centers and other hidden
talents in front of visitors. Residents can interact very confidently with any kind of
visitor’s Group.
Maintenance Subsidy
Most of our parents are very old and from middle class families. It is very difficult to
reimburse the actual expenses from them due to their financial difficulties. We provide
maintenance subsidy to each resident. Besides that we also provide special subsidy to
the residents from very poor families. There are some cases who are totally depends
on Adhar. Details are enclosed separately.
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SHELTERED WORKSHOP
ADHAR has the Sheltered Workshop scheme for residents. They are engaged in making
various products under minimum supervision.There have been discussions with few
organizations to introduce activities such as assembling, rolling, etc. Introduction of such
activities from companies will help to expand Sheltered Workshop scheme. During Diwali
festival ADHAR got bulk order of diyas and candles from few companies. In the marriage
season too ADHAR gets bulk order of paper bags and candles. The in-company sale of
products has now become regular activity.
All ladies are making all kinds of Masala’s without using any electrical
machines. Rather than this they all prepare agarbattis, screen paintings, embroideries,
jewellery makings, stitching, vegetable cutting, cooking etc. Activities on regular basis.
Day Care Centre
The Day Care centre has 15 people with severe retardation. They are being looked after and
cared by trained staff. They are engaged through occupational therapy related activities like
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paper cutting, planing and sanding the wood, creating balls of yarn and watering plants. They
get ragi porridge and lunch. Often family members are given guidance on how to take care of
these individuals.
PROBLEMS FACED BY NGO
Lack of Funds
Most of the NGOs in India are suffering from paucity of funds. Government does not give
cent percent grants in aid or make delay in sanctions of grants for numerous programmes.
NGOs have to make matching contributions which they are some times unable to manage and
are, therefore, unable to avail themselves of the grants. Now a day’s charity is not so strong in
the minds and hearts of the people as it was in the ancient society.
Lack of Dedicated Leadership
Leadership qualities of the leaders in NGOs determine the quality and condition of the
services rendered by any organization. Especially dedicated leadership, ‘Leadership for the
sake of Leadership’ is a most important governing factor in this regard. In the post
independence era, unfortunately, the NGOs faced the crisis of leadership as the leaders who
pioneered voluntary action and worked for it with spirit of devotion and dedication choose to
enter politics to find berths in legislatures and parliament thus creating a vacuum for
dedication leadership in NGOs. With some expectations the leadership is concentrated in the
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hands of elderly people. The style of functioning of these elderly people exhibits
authoritarianism and frustrates younger people who are embodiments of new ideas, initiatives
and innovation which are not allowed to bt expressed and practiced
Inadequate Trained Personnel
It is believed that the personnel working in NGOs may be of personnel working in such
organizations is a sense of dedication and commitment and interest in the social services.
NGOs earlier were assumed to be served by unpaid social workers imbued with the spirit of
service and did not require any special education or training. But the present trend who are
having professional education are not interested to work with NGOs. Their vision has been
changed and are interested to work in urban areas only. Therefore, it is very difficult to get
trained persons who are either willing or trained to work in the rural society where most of
NGOs work. Moreover, these professionally trained persons have high expectations in terms
of salaries, status, opportunities for their growth in the career of their choice. More over, most
of NGOs due to lack of funds cannot able to spent some more funds for giving training to the
personnel employed in the organization .Some of NGOs are in fear of personnel who may
shift to another big NGO after taking training from it.
Centralization in Urban Areas
NGOs are more developed in urban areas as compared to rural areas. The backwardness and
ignorance of the rural people and lack of enthusiasm among social workers to among them in
the absence of availability of minimum comforts are the two important reasons for the
backwardness of the NGOs in rural areas.
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Modernization
Because of modernization, professionalisation and introduction of management techniques,
the traditional NGOs need certain minimum, infrastructure and administrative expenses.
Unfortunately, grants-in-aid rules do not allow for such administrative expenditure except
contingencies. This leads to evaporations of traditional NGOs in the country which use to lead
by great leaders.
Lack of Volunteerism/Social work among Youth
The basic characteristic of NGO is volunteerism. In early days, youth are making their career
in volunteerism but that enthusiasm seems to have faded these days. The extent of
volunteerism is declining day by day and turning it into professionalisation. Even the young
graduates from social work are interested in making their career in professionalism. This leads
to lack of efficient volunteers in NGOs
Lack of Coordination
The absence of coordination between NGOs existing at local, state and national level has laid
to the common problems such as overlapping, duplication, noncoordination etc, The absence
of such a common forum also incapacitates NGOs to offer united stand against the
government when it humiliates them by extraneous considerations at the behest of politicians
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and egoistic government officers. Moreover, the state of affairs also does not facilitate
exchange of information, data collection, research, training and publication and also does not
create favorable conditions where common difficulties can be placed before the government.
Lack of Public Participation
NGOs are meant to provide opportunities to the citizens for democratic participation but they
have not been able to fulfill this obligation due to the method and manner in which they
function, and failed to attract people, interested in construction work and develop channels for
peoples enthusiastic participation. Some of the factors responsible for such a state of affairs
are general backwardness of the people, absence of adequate number of dedicated persons,
over emphasis on targets and time bound programmes, political interference and vested
interests, easy availability of funds without proper planning and assessment of felt needs and
safeguards for the community, distrust of agencies and workers who do not have a base in the
community and are unable to win its support and lack of decentralization which could give a
feeling of being partners in development rather than development being thrust from above.
Area of Interest
Sometimes, NGO will prefer the donor area of interest in welfare activities going beyond his
own interest or working in more than one programme. This also leads to deterioration in
quality of service in particular programme.
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PROBLEMS FACED BY MENTALLY RETARDED RESIDENTS
A child with mental retardation can do well in school but is likely to need individualized
help. For children up to age three, services are provided through an early intervention system.
Staffs work with the child's family to develop what is known as an Individualized Family
Services Plan, or IFSP. The IFSP will describe the child's unique needs. It also describes the
services the child will receive to address those needs. The IFSP will emphasize the unique
needs of the family, so that parents and other family members will know how to help their
young child with mental retardation.
For eligible school-aged children (including preschoolers), special education and related
services are made available through the school system. School staffs will work with the
child's parents to develop an Individualized Education Program, or IEP. The IEP is similar to
an IFSP. It describes the child's unique needs and the services that have been designed to meet
those needs.
Many children with mental retardation need help with adaptive skills, which are skills needed
to live, work, and play in the community. Teachers and parents can help a child work on these
skills at both school and home.
Some of these skills include:
communicating with others;
taking care of personal needs (dressing, bathing, going to the bathroom);
health and safety;
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home living (helping to set the table, cleaning the house, or cooking dinner);
social skills (manners, knowing the rules of conversation, getting along in a group, playing a
game);
reading, writing, and basic math; and
As they get older, skills that will help them in the workplace.
Interpretation of the IQ scores
The DSM-IV classification system continues to describe those with mental retardation in
terms of degrees of severity that reflect the measured level of intellectual functioning. Four
degrees of severity are employed, with a fifth category reflecting situations in which the
person's
mild mental retardation, with IQ levels of 50-55 to approximately 70
moderate mental retardation with IQ levels of 35-40 to 50-55,
severe mental retardation, with IQ levels of 20-25 to 35-40,
profound mental retardation, with IQ levels below 20 or 25 and
Mental retardation, severity unspecific.
In early childhood mild disability (IQ 60-70) may not be obvious, and may not be diagnosed
until they begin school. Even when poor academic performance is recognized, it may take
expert assessment to distinguish mild mental retardation from learning disability or behavior
problems. As they become adults, many people can live independently and may be considered
by others in their community as "slow" rather than "retarded".
Moderate disability (IQ 50-60) is nearly always obvious within the first years of life. These
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people will encounter difficulty in school, at home, and in the community. In many cases they
will need to join special, usually separate, classes in school, but they can still progress to
become functioning members of society. As adults they may live with their parents, in a
supportive group home, or even semi-independently with significant supportive services to
help them, for example, manage their finances.
Among people with intellectual disabilities, only about one in eight will score below 50 on IQ
tests. A person with a more severe disability will need more intensive support and supervision
his or her entire life.
The limitations of cognitive function will cause a child to learn and develop more slowly than
a typical child. Children may take longer to learn to speak, walk, and take care of their
personal needs such as dressing or eating. They will have trouble learning in school. Learning
will take them longer, require more repetition, and there may be some things they cannot
learn. The extent of the limits of learning is a function of the severity of the disability.
ADHAR PRACTICES GOOD GOVERNESS AND TRANSPARENCY
• 7 of 9, the members of Governing Body are parents. Thus truly Parents Organisation
managed by Parents.
• No bar for religion or caste.
• ADHAR accept all category of mental retardation.
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• Admissions are given strictly on first come first basis.
• There is a rule that parents who wish to admit their ward at Adhar should
physically pay the visit to see the place and then take the decision of admission.
• Equal facilities and services to all residents. No discrimination for affluent parents
but the special concession in maintenance charges are given to parents in financial
difficulties.
• Every resident is happy and enjoy staying at Adhar. Many of It’s residents don’t wish
to go home even for a day.
• It gives adhar a great pleasure when they see the parents are free from their worries and
Look so relaxed when they see their children are very happy and comfortable at Adhar.
• It’s ADHAR’s achievement that many parents are visiting Adhar regularly even though
Their son / daughter are no more.
• Parents / visitors can visit the campus any time without informing and can take a round
to entire campus.
• The Trustees / Parents / staff / visitors are served the same food which is being
prepared for the residents. All of them are paying for their meals at Adhar.
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• Cash receipts are being issued immediately to the party.
TRUSTEES AT ADHAR
Late Shri Madhav Gangadhar Gore Founder Chairman
Shri V.M Gore
Tel. No. (022) 25341708
Chairman
Since 9/1/2000
Shri N. P. Desai
Mob: 9969688804
Secretary
Since 19/5/1990
Shri S.J.Khandkar
Tel. No. (0251) 2439942
Treasurer
Since 30/11/1991
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Shri S.M.Chandawarkar
Tel. No. (022) 24144350
Trustee
Since 17/1/1995
Shri M.L.Talwar
Tel. No. (022)24222088 / 23710543
Trustee
Since 6/7/1997
Shri K.S.Daryani
Tel. No.(022)26043296 / 56345946
Trustee
Since 24/9/1995
Smt. C.R.Saraswathi
Tel. No. (022) 25621608
Trustee
Since 4/3/2001
Mr. A. M. Wadhwa
Tel. (022) 26772036
Trustee
Since 22/5/2008
ADHAR Mission
To Address To The Daily Needs Of Mentally Retarded Children
And work For Their Life-Enrichment , Protection And Development
ADHAR Vision
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To Reach Out to Parents Of Mentally Retarded Children
And To Provide A Life-Time Shelter For Their Children
ADHAR’s STRENGTH & TOUCH STONES
• Trust, Support & Goodwill form parents
• Stable Committed & Dedicated Staff
• Location: Perfect Pollution Free, Hygienic & Beautiful rural setting
• Ability to settle Mentally Challenged Adults at Adhar & make difference in their lives
• Role Model to other Parents Associations working in this Area
• Accountability & Transparency
AWARDS & INTERVIEWS
• Awarded as ”Best Parents’ Association” on 26/9/2007 by The National Trust – (An Autonomous body of Ministry of Social Justice& empowerment, Govt. of India)
• Interview Jyoti Ambekar at Doordarshan (9 ½ cya Batmya) 20th Oct.2007
• Special Interview by Raju Parulekar telecast in “Samvad “at ETV Marathi on 9th Oct. 2009
• Jeevan prabha Puraskar by Chittapavan Brahman Sangh Vileparle on 5th June2010
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• Sangharsh Sanman Puraskar on 5th June2011
• “Adharmaya” by Dr. Shubha Chitnis A Book on Adhar was published on 23rd April 2013 by the hands of Padmabhushan Shri Mangesh Padgaonkar
• Vocational Excellence Award by Rotary Club of Thane Garden City 15th Feb. 2014
ACKNOWLEDGEMENT
This project consumed huge amount of work, research and dedication. Still,
implementation would not have been possible if we did not have a support of Mr. Patwardhan
and Mrs. Pai from ADHAR. I am sincerely grateful to both of them for sharing their truthful
and illuminating views on a number of issues related to the project.
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I am also grateful to my college for giving me an opportunity to work on
this project, which involved lot of expertise and technical know-how in the implementation.
Nevertheless, I express my gratitude toward our family and colleagues for their kind co-
operation and encouragement which helped me in completion of this project.
Last but not the least I would like to thank the residents at ADHAR who co-
operate with me. I learned a great lesson that how to live happy in any phase of life and how
to fight with all bad situations and come up with a smiling face on every new morning.
Please come and join hands with ADHAR
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FOR AN OPPORTUNITY TO CHANGE LIVES
MY VIEWS
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“A person who feels appreciated will always do more than what is expected.”I
strongly feel society should come forward and appreciate the NGO working on any
cause. This will make them work even better.
A “Thank you” note will definitely make a difference in the process.
BIBLIOGRAPHY
ADHAR HANDBOOK
WEBLIOGRAPHY
www.ajinkyngo.org
http://www.samadhanindia.org
http://navajeevana-india.org/
www.manochaitanya.in
www.sweekarnapur.org
www.brajavihari.org
www.destinationarealhome.org
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www.pratheekshabhavantdpa.org
www.adhar.org
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