1 involving people with dementia in the development of at guide – an online tool to support...
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Involving people with dementia in the development of AT Guide – an online tool to support decision making around assistive technology
Nada Savitch, Innovations in Dementia
Deborah Brooks, Trent DSDC
Stephen Wey, York St John University
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What we would like to cover today
• The AT Guide concept
• Methods for involving people with dementia in its development
• Lessons learnt about design and engagement
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AT Guide concept
• ATdementia website established and useful
But…– People with dementia don’t find traditional
website navigation easy
• AskSara tool – easy to use but not appropriate for people with dementia
• A meeting of minds
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In 2009 the organisations Trent DSDC in partnership with Innovations in Dementia CIC and the Disabled Living Foundation secure 3 year funding from the Department of Health to develop an guided self-assessment support tool:
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Topics on AT Guide
• Getting up, washed and dressed
• Making meals and drinks
• Getting out and about
• Keeping busy
• Keeping in touch
• Going to bed and getting up at night
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Listening to people with dementia
• Tips and advice for other people with dementia– relative merits of different types of assistive
technology– feelings about the ethics of some technologies
• Refine the language used in the guide • Ensure that images used were helpful and not
distracting or confusing• Ensure that the design of the tool was easy to
use
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People with dementia at the heart of the project
• Member of the reference group
• Informing the focus of the project
• Testing – Language– Questions– Layout– Design
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Making sure people are involved
• Meetings that suit individuals
• Using existing groups and supporters
• Focussing on people’s strengths
• Using a variety of methods
• Adapting existing protocols
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Some methods
• Individual semi-structured interviews
• Focus groups
• Reviewing existing information sources
• Card sorting
• Think aloud
• Paper prototypes
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Our findings
• Getting over the stigma
• Use of language
• Use of images
• People’s real experiences
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Getting over the stigma
• “Warning not barring”
• “Giving freedom and peace of mind”
• “Try to avoid the bad things”
• “Focus on the positive”
• “Little plastic things to help NOT symbols of your independence disappearing”
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Language is important
• “Wandering”
• “Forget”
• “Sometimes/usually/often”
• Clear questions
• Exact words
• Meaningful examples
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The importance of language
Have you ever got lost?
Are you worried about getting lost?
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Using images
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“Woman – having her photo taken. Brilliant smile – going down an escalator.
Meeting someone she likes or someone’s talking a photo who she likes”
“Someone out shopping”
“She has dementia, but a life – she’s doing her shopping. It represents the two parts of her brain.”
“It’s a lady – taking something .. You’ve got the same situation here. Use one half – a woman. Is she carrying a trowel? Are those files?”
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Real experiences
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Thank you
Help us to improve the tool further:Go to www.atdementia.org.ukClick through to the AT GuideUse the toolComplete the online poll and feedback questionnaire
Nada SavitchInnovations in Dementia [email protected]