© karen watchman. intellectual disability and dementia communication strategies to enable inclusion...
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![Page 1: © Karen Watchman. Intellectual Disability and Dementia Communication strategies to enable inclusion in research Alzheimer's Disease International 2012](https://reader030.vdocuments.us/reader030/viewer/2022032709/56649eab5503460f94bb1b2d/html5/thumbnails/1.jpg)
© Karen Watchman
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Intellectual Disability and Dementia
Communication strategies to enable inclusion in research
Alzheimer's Disease International 2012
Karen Watchman
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Agenda
• Wider research
• Communication strategies with three participants
• Key points about communication
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PhD research aims
To determine the process of increased marginalisation after a diagnosis of dementia in people with Down’s syndrome
Consideration of how far experiences were constructed by people with Down’s syndrome and how far they were socially constructed by others.
© Karen Watchman
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Participants
• Lucy – shared intellectual disability group home
• Hannah – generic care
home
• Andrew – individual tenancy
with outreach support© Karen Watchman
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Lucy
• Initially verbal
• Recognised photographs
• Increasingly non-verbal
• Developed strategy with pictures
© Karen Watchman
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© Karen Watchman
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© Karen Watchman
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© Karen Watchman
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Hannah• Limited verbal capacity
although could sing
• Early interest in my handbag
• Tactile/touch
• Importance of silence
• Body language
• Staff underestimated her abilities
© Karen Watchman
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Andrew• Maintained verbal capacity
• Increased difficulty with ‘word finding’
• Staff overestimated his abilities
• No adaptation of cues
• Increased isolation
© Karen Watchman
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Findings
• Importance of pictorial communication
• Importance of touch and affection
• Individual preferences
• Importance of silence
• Beware of under or over estimating ability
• Environmental impact
• Knowledge of previous communication strategies
© Karen Watchman
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Key Messages
• People with dementia can communicate through to end of life
• Communication requires an individual, proactive approach
• Getting communication right can have a positive impact on wellbeingand inclusion
© Karen Watchman
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Contact Details
Email [email protected]
UoEHealthSocSci
(Dementia education, research and information)
MSc Dementia at University of Edinburgh (part-time, online)
www.ed.ac.uk/health-social-science/issh/dementia
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© Karen Watchman